Posted , 9 users are following.
Morning all! I'm at last down to 5mgs but, like many others, the tiredness has kicked in again. Another of my silly questions coming up - how long is the tiredness likely to last?
Eileen, I know you have been on 5mgs for ages. Do you still get tired? (Excessively I mean).
I have a doctor's appointment coming up and will ask about adrenal glands being checked.
Does anyone know if RA causes tiredness? Can't imagine it does, but........?
Thanks in advance for comments.
C.
0 likes, 20 replies
Nefret constance.de
Posted
5mg is an awkward dose, you are waking up your adrenal system and it's got very used to being asleep and doesn't want to waken. You really will need to pace yourself throughout the day and rest when you need to. (I have no choice in the matter; if I try to defy it, I just fall asleep wherever I am which has led to some interesting days).
I do hope you get over it as soon as possible, it is so frustrating!
EileenH constance.de
Posted
It may just be the change of dose - give it a bit to see if it improves. MrsO's lovely rheumy keeps patients at 5mg for up to 9 months to let their body catch up.
No I don't really get excessively tired - at least, I didn't during the China trip and I had every reason to do so! Long days and lots of walking and even more steps!
Yes - RA is an autoimmune disorder and it is also associated with fatigue, it is a component of the autoimmune part of the disease. Nefret has said it all!
If you'd like some reading - have a read of Rheumablog, written by a lady in the USA who was first diagnosed with rheuma in Germany (hence the name of her blog). Wren can wax lyrical about the fatigue. She's had it for years.
constance.de EileenH
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MrsO-UK_Surrey constance.de
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paula63201 constance.de
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I cannot offer advice, just sympathy.
I am sort of where you are. Am alternating between 5.5 and 5 mg every other day. I am experiencing fatigue. I do all the things I usually do, but just with a feeling of fatigue.
I have been asked to report for Jury duty and hope I can get out of it. Cannot imagine they want a half asleep person sitting there. Sitting is the operative word. I need to get up to stay awake!
Hope you feel better!!
Paula (ehemalige Muenchnerin)
EileenH paula63201
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MrsO-UK_Surrey paula63201
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EileenH MrsO-UK_Surrey
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MrsO-UK_Surrey EileenH
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margo25238 paula63201
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EileenH margo25238
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Another way of reducing very slowly is using the "Dead slow and nearly stop" plan described in the replies section of this thread:
https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
paula63201 margo25238
Posted
I use a pill cutter to cut the 1 mgs in half. Mine have a line goint through them.
paula63201 EileenH
Posted
I have to provide a document from my doctor to get out of Jury Duty.
'Thank you for your email. I am sorry to hear of your illness. Do you have a doctor that would be able to write a note saying that you are not able to serve as a juror due to your illness. I would need a note or other documentation to be able to excuse you.'
Called the rheumy today.
MrsO-UK_Surrey paula63201
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I hope your rheumy is accommodating!
EileenH paula63201
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I'd have thought photocopies of any diagnosis letter to the GP plus a current prescription for pred would be adequate.
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