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Dry Sinus and aching eye sockets

Posted , 5 users are following.

kandypat
kandypat

Hi all, Dry sinuses are part of Sjogrens I believe.  I dont have a cold or anything but I wake up with a pain behind my eyes, my airways are clear.   If I go to the doctors he will say sinusitis and give me antibiotics - which work I must say.  Is there any other way to sort my problem out?

0 likes, 31 replies

31 Replies

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  • Roadcan
    Roadcan kandypat

    Posted

    I'm a long time sinus sufferer. I go old school with water steam inhalation, add salt to the water and a little very little amount of Vicks . It works wonders'
  • mandy95
    mandy95 kandypat

    Posted

    Hi I would suggest using a sea salt nasal spray daily this tend to moisturise your sinuses and make sure that you use a good preservative free eye drop x
    • lily65668
      lily65668 mandy95

      Posted

      That sea-water nasal spray is a real life-saver for me! It's saved me many a night with a blocked-up nose and a throat full of gunge stopping me breathing.
    • kandypat
      kandypat lily65668

      Posted

      Hi Lily,  thankyou for your reply.  I went to the Healthfoodshop today

      but they dont have a sea-water spray.  Could you tell me the name

      of what you are using and I can get it on-line.  I live in ireland.  thankyou

      Kandypat

    • lily65668
      lily65668 kandypat

      Posted

      If anyone else out there is looking for where to find the product, message me privately. (You can't post product names on this site.)

      Kandypat - I've only just this minute spotted that you're in Ireland. I hope they'll deliver there from the UK. However, as an afterthought I went on their French home site (the one just ending in .com) and entered Dublin in the box on the "où nous trouver" (where to find us) page - and it turned up dozens of locations.

      Good luck!

      Lily

    • kandypat
      kandypat lily65668

      Posted

      Thanks Lily,  I think boots do it but I was the other end of town, so I got an equivalent from the health

      food shop and its very good.  Thankyou so much it worked!

    • lily65668
      lily65668 kandypat

      Posted

      Glad to hear it Kandypat. I know how even a minor relief of symptoms can make life a bit more bearable.
  • pam_87693
    pam_87693 kandypat

    Posted

    Yes sadly dry sinuses, dry mouth, dry guts, dry vagina, dry ears, dry skin, dry eyes, Sjogren's has a lots to answer to! Try to avoid air conditioning, that is terrible for sinuses and Sjogren's. I would suggest an atomiser in your bedroom, or a small bowel of water with menthol, eucalyptus oil or similar to help you sleep at night and put moisture into the air. Nozoil is quite good if you live in the UK. Have you thought of joining a Sjogren's charity? Also there are many FB groups for friendship and advice. I run British Sjogren's for UK residents. The BSSA is our charity. Good luck 🍀
    • kandypat
      kandypat pam_87693

      Posted

      Hi pam 87693

        I live in Ireland and Im not aware of any groups here, but in fairness I havent looked.  I will join the FB group thanks for good suggestion.

      I think I have had Sjogrens for about 30 years, but when the PBC started  I put it all down to old age. I was diagnosed  8 months ago.   I dont know if Im any better off knowing whats wrong to be honest.  Nothing has changed except Im on Urso and   I didnt have sore arms and hands before taking it, and now I have no feelings in my toes, and my sense of taste is going.  Getting to see a specialist takes for ever.  But all in all Im fine, and will soldier on.. Im 72 and I dont have any demands on me so Im very 

      fortunate. 

       

    • lily65668
      lily65668 kandypat

      Posted

      Hi Kandypat, I doubt whether the numb toes are anything to do with Urso. This is a classic symptom of Sjogren's itself. One of my big toes was numb for 10 years, with terrible electric-shock sensations every time I touched the nerve running down the inside of my instep. Incredibly, this suddenly reversed one day, quite spontaneously. I also used to have problems with strange sensations in my fingers if I held my hands in the same position for too long - holding a phone was a problem and I woke up with alarmingly dead fingers and feet several times a night.

      Fortunately, most of my Sjogren's symptoms went into spontaneous remission 10 years ago, when I was in my early 60s. However, just to compensate, I've been in the grip of an RA flare-up for six months now - knees, hips, right elbow and now (for the first time ever) I'm in real trouble with my left thumb joint. This is a nuisance, as it means I can't grip anything to unscrew bottle tops etc. and I live alone. Still, the other night I decided to try the nutcrackers and found that worked very well! I've just put in a telephone order for my standard homeopathic remedies, which usually work in about six months.

    • kandypat
      kandypat lily65668

      Posted

      Thanks for that,  sorry to hear about your RA flare-up,  have you tried

      coming off gluten/wheat?  I heard that all autoimmune people are on the way to  being gluten intolerant, I had a test that was negative but I can say that going off wheat/gluten and dairy, cleared up lots of things.  Plus it made me feel I was 'doing' something for myself.  I try to have an anti inflammatory diet - What homeopathic remedies work best for you?

       

    • lily65668
      lily65668 kandypat

      Posted

      I'm not a great believer in gluten-free, unless you have coeliac disease, of course. However, as I've got older, wheat products have become harder to digest so I tend to eat very little anyway. I get a sore, heavy feeling in my stomach if I eat too much wheat-based stuff.

      This flare-up is partly my own fault. A couple of months ago I cooked and ate two large bunches of rhubarb in one month. I know perfectly well that rhubarb sends my uric acid levels sky high but I just gave in to a craving!

      At around the same time I had a potentially nasty accident - a minor dizzy spell caused me to fall near the bottom of a down escalator. Scared the living daylights out of me - sitting on the escalator, being carried onto those metal teeth at the bottom with 20-odd people coming down behind me, and unable to move. Fortunately, I had the presence of mind not to try and push myself up off my hand, or I'd have lost my fingers! Screamed blue murder for someone to stop the escalator but nobody knew how. In the event two very young lads - only about 15 I think - grabbed me and hauled me unceremoniously off. I'm eternally grateful to them. I was badly shaken but fine immediately afterwards. The pains in all my joints and muscles started a week later. I think it's partly down to being pulled sharply (but thank goodness they did!) and partly the shock. However, I'm confident this will eventually clear up.

      I expect to make a full recovery. Just a case of drawing in my horns a bit over the next few months while ensuring I get enough exercise to maintain flexibility. Ah, the joys of getting old...!

      Emis Moderator comment: I have removed product/company names as we do not allow repeated posting of these in the forums. If users wish to exchange these details please use the Private Message service.

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    • lily65668
      lily65668 kandypat

      Posted

      Oh-oh - I suspected I might get modded for mentioning a product name but thought I'd get away with it as it's not available in the UK. Seems not! Sigh...
    • pam_87693
      pam_87693 kandypat

      Posted

      Sadly PBC is a side effect of Sjögren's syndrome. As an old friend once said you get a diagnosis of Sjogren's and lots of other problems jump on for the ride. I am so sorry about PBC.
  • pam_87693
    pam_87693 kandypat

    Posted

    If you live in the UK I suggest you ring the BSSA the charity for Sjogren's. They will tell you where the best Sjogren's consultant is for you. If you wish to chat on FB British Sjogrens would make you most welcome.  
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