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DVT and multiple clots in lungs

Posted , 5 users are following.

claire0911
claire0911

has anyone been put on to any of the new drugs instead of warferrin. ive been on rivaroxiban for 2 wks now. would like to hear how other people are doin on them and if they feel comfortable not getting INR checked on a regular basis

 

1 like, 7 replies

7 Replies

  • karen62535
    karen62535 claire0911

    Posted

    Hi I was first put on the same as you just over 5 months ago, but have now changed to something else as I found they made me really itch, to the extent my head had heat lumps and I felt it almost burning at times. Not pleasant at all. Also not getting checked is very scary especially as you are not aware how you are supposed to feel and if it's normal.
  • Basset_mammy
    Basset_mammy claire0911

    Posted

    Hi Claire I'm

    On rivaroxaban since feb this year . I wake every morning like I'm hungover even though I take it at 6 at night . My hair is falling out really badly and I have chronic acid reflux with huge bloated stomach . I'm going to ask doc about it next week

  • jeanne_91900
    jeanne_91900 claire0911

    Posted

    I've been on rivaroxaban for three months and have experienced haemorrhaging in one eye, breathing difficulties, headache and severe backpain, whether the latter is related I don't know.  I recently had a dvt and, as I have anti-phosphilipid syndrome, must continue taking an anti-coagulant.    I have now approached my GP on three occasions with regard to the side effects which are seriously affecting the quality of my life but each time am met with a blank stare.

    No checks have been made on me to see how things are progressing and I think perhaps it is easier for GPs to prescribe rivaroxaban as opposed to other anti-coagulants as fewer checks are necessary.  Easy life being a GP!

     

    • Basset_mammy
      Basset_mammy jeanne_91900

      Posted

      Hi Jeanne I'm now 7 months in and although I had a lot of side effects in the beginning I'm fine now it seems to have settled . Still have the occasional nose bleed but not too bad .
    • jeanne_91900
      jeanne_91900 Basset_mammy

      Posted

      I am pleased that the side effects you experienced with Rivaroxaban have now settled but would be interested to hear what they were and how they affected you.  Having again woken up with a blinding headache and having to use an inhaler, I am seriously considering following an alternative and natural way of 'blood thinning'.

       

    • Basset_mammy
      Basset_mammy jeanne_91900

      Posted

      Hi it was a bit similar I woke up with terrible headaches and that horrible head fog like a hangover . If I took it with food every evening it was ok but if I didn't have food I would get a bad sickly tummy . My hair fell out by the handful in the first three months but that seems to have calmed down now too . X
    • jeanne_91900
      jeanne_91900 Basset_mammy

      Posted

      I'm pleased that you no longer experience these side effects and thank you for letting me know what they were.  Fortunately I have had no hair loss which on top of everything else must have been demoralizing for you. Thank you once again and hope all goes well.

       

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