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E-Petition for HS

Posted , 4 users are following.

angiepcooper
angiepcooper

Having had two recent severe flare-ups in the groin and arm-pit areas, I searched the net for any new remedies which may help me. On searching I found there is an e-petition with around 800 signatures on the H M Government e-petitions website to recognise HS as a serious and debilitating medical condition and to apply for a change to the Disability Living Allowance & Personal Independence Payment application policies. Having been in complete agony over the last few weeks and unable to move my arms properly, I think my employer would understand more if this was in place. Please help by signing the petition. Thank you.

 

0 likes, 6 replies

6 Replies

  • kaymate
    kaymate angiepcooper

    Posted

    I've always wondered why this isn't a recognised disability. Great find Angiepcooper,

    thank you.

  • nikki1734
    nikki1734 angiepcooper

    Posted

    I've signed it, but without adding stress to the situation I do get DLA (high rate care, low rate mobility) with HS being the major factor. When I had my assessment for ESA I mentioned HS and was told that the condition doesn't matter, it's how it affects your ability to live your life. Those assessment results were used to decide on my DLA award also. my advice is not to name the condition, just talk about how much it limits your life. Hope this helps
  • angiepcooper
    angiepcooper

    Posted

    Thank you nikki1734 and hypercat. I'm just extremely frustrated that I never seem to see the same doctor at my surgery twice and on one of my last visits, the doctor really didn't have a clue what HS was, how to treat it, and how it can impact everything you do! It's bad enough trying to explain to a doctor let alone my employers!

     

  • Emis_Moderator
    Emis_Moderator angiepcooper

    Posted

    If anyone wants the direct link please use the Private Message service (see bottom link below) to exchange as we do not post direct links to petitions etc. as per:

    http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

    Requests for users to take part in surveys/research/television programmes etc and petition links. 

    For anyone wishing to post these - we recommend you post directly onto our Facebook page wall (http://www.facebook.com/patientuk) or if you use Twitter, you can tweet details to us (https://twitter.com/patientuk) and we can retweet your message.

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    Regards,

    Alan

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