extreme hyperhydrosis.... EVERYWHERE
Posted , 4 users are following.
I am writing in the hopes that someone can help my dad.
For the past 10 years, he has suffered from very bad hyperhydrosis - ( excess sweating) all over his body. He sweats 24/7, even in his sleep. He sweats from his back, stomach, head, arms... everywhere. It is becoming much worse and his doctors have essentially said there is nothing he can do besides dry himself off.
If anyone has any information about hyperhydrosis, we would be immensely grateful. There isn't much out there at the moment so we're feeling a little lost for hope.
If you know anyone that suffers from similar symptoms it would be great to get in touch.
Thank you in advance.
0 likes, 6 replies
sheryl37154 selvie
Posted
Other than that and checking what he eats (spices?) there did not seem to be a good answer.
Mine was caused by having a small tumour on my pituitary gland, so he should ask for his pituitary gland hormones to be checked. He may have to go to be referred to an endrocrinologist for that. There are other possible underlying medical causes too. So it depends on how far his dr will check them out. Assertion may have to be applied.
I understand how he feels - it is a miserable situation and drains energy and life from him.
selvie sheryl37154
Posted
Thank you so much for your comment, I have booked him another appoint to speak with his Dr to have him referred to a endrocrinologist. Unfortuenely, his Dr's have essentially said there is nothing else they can do, so we've had to result to the internet. Fortunately, this has already proved to be much more efficient already! Am I right in assuming you're hyperhydrosis was also not in your hands and feet? And has it stopped now?
Again, I can't thank you enough for your comment.
sheryl37154 selvie
Posted
It is so frustrating that gps think that if they do not know, then no one knows. That is why they should be sending patients to specialists, e.g. endocrinologist.
My hyperhydrosis was mostly my head, face and neck. It just poured out and ran down my back and front, dripping off my eyelashes. My hair constant stank. It was foreever wet from sweat or sticking it under the shower in the middle of the night.
I would also have whole body sweats at night, waking up with wet sheets and pillow. I had gone in search of a mattress made solely of natural products, with bamboo/cotton covers and sheets. No polyester, memory foam, microfibre allowed. To no avail.
Once I started carbergoline (for prolactinoma), the sweats stopped. Such bliss. While I still take the medication, I am having trouble with some sweating again, mostly from back of neck. It is like the tap won't stop dripping now. I do live in a hot, tropical climate which does not help, but I sweat (from back of neck) more than my husband does at night. He covers up with a sheet, and I am kicking it off.
But I can suddenly get freezing too, shivering violently. I have haemochromatosis and it can damage the hypothalamus which is supposed to regulate our temperature. That is another issue that should be checked out - ask for Iron Studies (not just iron and Hb).
Good luck with it.
dylan62269 selvie
Posted
Hi,
So sorry to hear about your dad. I suffered from hyperhidrosis of the hands and feet and tried every imaginable solution before finally having the micro ETS surgery done in San Antonio this past summer. I am thrilled with the results. My hands and feet are now completely dry! I have noticed some compensatory sweating though on my lower back, stomach and back of my knees when I am in humid temperatures. I am still 100% happy with the results and only wish I had it done 25 years ago!
Your dad's symptoms sound different than mine though in terms of the all over sweating. I would suggest he try an oral medication such as glycopyrrolate, oxybutynin, clonidine, or a beta blocker. I did experience some improvement with these oral medications but did not like the side effects of dry mouth and blurred vision. They definitely helped though! They have generics for these medicines so I think they only cost about $10 a month or so.
Good luck!
selvie dylan62269
Posted
Hi,
so glad to hear you have found treatment for yourself.
Yes, his is quite a rare case. He was put on oral medication which I do not know the name of right now, as soon as I find out I will let you know. Essentially, they were pills that they give to patients before they go into surgery to dry their bodies. However, this was really dangerous and his other Dr took him off those right away.
I will mention the ones you have mentions in our next Dr's appointment.
Thank you so much for your comment, I am immensly grateful for your help.
HappyB selvie
Posted
I have the same thing...generalized hyperhydrosis. I've been to more Drs. Than I can count. I have had 6 neck surgeries-they may have nicked a nerve-in which case I have no hope. I take about 7 showers a day. I can't sleep for more than an hour a day. The Drs. Have recommended a Sympathectomy-who had is a very dangerous surgery-plus they say that you can come out worse than before you started. I was hoping to get some help on this forum-but I don't seem to see any. Good luck to your Dad.