Feeling fed up!
Posted , 8 users are following.
Hi me again, sorry to keep going on but getting really fed up now!
I have been on 10mg of Carbimazole and 45mg of propranalol for 6 weeks now since before Xmas. I know people have said on this site be patient it takes a good while to feel better, but if i could just explain how i live at the moment, I wondered if it was typical of having an overactive thyroid!
I tried to just use propranalol when my pulse racing, however as soon as i stopped for just one day racing pulse was back! I can put up with aches and pains, but i'm not living at all !!!!
Mornings are worse takes so long to come round! If i do manage to stay up and try and have a normal day, i find by by the end of the day i am speeding find it hard to slow down, i then get into bed dead tired but my head won't switch off and I can't sleep! So I can't get up in the morning and then i sleep for about 24 hours and then try it all over again! My husband and daughter are getting very frustrated with me, so i feel guilty about staying in bed! I'm sure they and the rest of my family think I'm not fighting this and i am weak!
I don't want to be like this ( i am not depressed as i do suffer with this) so again family think it might be depressed! There is no point in me going back to doctor as he has told me it does take a long time to feel better! I am having bloods done again Thursday so will see him Friday! Sometimes i feel it' s all in my head! The other thing I haven't mentioned i am b12 defienct and have injections for this, plus i am on antidepressants so they probably don't help with tiredness!
Any feedback i'd be very grateful!
0 likes, 12 replies
jean62175 Welsh_girl
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Welsh_girl jean62175
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I think since medication i have got rid of a few symtoms, but feel the tiredness has got worse, and i only feel better after a really long sleep!
sharon192 Welsh_girl
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christine57219 Welsh_girl
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You don't have too long to wait before you have your bloods done and so the doctor hopefully will be able to review/adjust your medications depending on what the results show.
Let us know how you go on.
Christine
Welsh_girl christine57219
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hypnocool Welsh_girl
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Welsh_girl hypnocool
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Have you found your diet has made a big difference?
christine57219 Welsh_girl
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netti Welsh_girl
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linda187 Welsh_girl
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It is helpful if you always get and keep a copy of any lab tests that are done on you for your own file and post results and meds dosage when you post to a Board like this. It gives me a better idea of where you are at regarding meds dosage and your body's response to them. I know stress triggers Graves disease and mine was triggered by an abusive co-worker. It then feels like a chicken and egg argument - i.e. was it the stress that caused it or is my current stress due to it? For me, while my excessive thyroid hormones were controlled quickly by 10 mg of Methimazole, my TSH and some physical symptoms were not until I added supplements to my treatment protocol. I read an article by an Italian endocrinologist on the benefit of adding 3,000 to 4,000 mg of regular L-Carnitine per day. As soon as I did that, my TSH which would not rise on just the meds, began to rise and I started feeling better. I also found out I was deficient in Vitamin D so I added vitamin D3 1,000 to 5,000 IU per day as well as Magnesium 200 mg daily. If you have a high anxiety level, the herb Lemon Balm is very helpful to calm yourself. I would not be able to take 40 mg of Propranol at all. I was prescribed 10 mg and didn't need it after I started on the methimazole. Also practicing techniques like mindfulness and meditation are helpful to stop the brain from overactivity. Hope you feel better soon.
hypnocool Welsh_girl
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veronica28452 Welsh_girl
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I relapsed a second time after 18 years remission. I have been on PTU for about 8 months and was put on propanolol for palpitations. When my levels became stable, I was taken off propanolol, however I now realise I should have been taken off them gradually, I had 2 admission to A & E with chest and thyroid pain and breathlessness, they said stopping propanolol suddenly can cause 'rebound' symptoms, perhaps this is what is happening to you? My Endocrinologist told me to take them like paracetomol when I needed them. I am now off them altogother as my levels are within normal limits and I am feeling a little more like a human being. I am having RAI next month and despite some negative comments I cannot wait, I have a life to lead and cannot spare the time to relapse again and possibly again! I wish you good luck. Perhaps your husband and daughter could do with some education on this most horrid disorder, but ,please know that you will be well again when your body gets back into balance. Take care and perhaps chat about how you ought to be using propanolol?