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Fibro/ Restless leg syndrome

Posted , 13 users are following.

kaz_40
kaz_40

I have restless leg syndrome, some of the sensations you can have are, Burning, Crawling,Creepy and a tugging sensation. I have had the burning sensation. It has been very painful. it has caused me to have sleepless nights. Have any of you ladies gents had this  x

1 like, 48 replies

48 Replies

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  • glenys58335
    glenys58335 kaz_40

    Posted

    Hi, yes I have had this for over twenty years now and without medication it is impossible for me to sleep. I take Ropinirole 2mg and Pregabalin 150 to 225mg per day, however there are times when even this fails to settle it.

     

    • kaz_40
      kaz_40 glenys58335

      Posted

      Hi glenys58335 blimey over 20 years, I feel for you. Ive had it for 2 weeks thats been enough the burning sensation has been driving me mad.  Its a new symptom for me, fibro loves throwing new things at us.. I cant take tablets for fibro Ive had severe reaction to everything Ive taken.I only get relief from hot waterbottles and wheat bags. take care gentle hug
  • diagnosisisalie
    diagnosisisalie kaz_40

    Posted

    Not that I can recall. Sounds like it would be a challenge to get any rest.
    • kaz_40
      kaz_40 diagnosisisalie

      Posted

      It certainly has been a challenge to get any rest, the burning is a horrible sensation to have oh the joys of fibro not take care
  • Maggers
    Maggers kaz_40

    Posted

    Hi Kaz

    Sorry  I don't have any miracle cures - it's truly horrible. Have you tried ice packs?  I had it back last year and could not have even the lighest clothing or sheets anywhere near me. I found aloe vera gel helped a little with the burning.

    • kaz_40
      kaz_40 Maggers

      Posted

      Hi Maggers I havnt tried ice packs but will give that a go. I cant bear any sheets clothing on me at the min they are so painful also. Im nipping out in a bit will grab some aloe vera gel try that also thanks for that maggers. take care .
  • Caza
    Caza kaz_40

    Posted

    Hi kaz, I was diagnosed with Fibro a couple of years ago but have suffered with restless legs and severe cramp's for over 10 years. It drives me mad I take Baclofen and Pramipexole which usually keeps it under control also Gabapentin for pain and muscle stiffness,Omiprazole for acid reflux, Metroclopramide for nausea and Colofac for IBS.

    I am suffering with restless leg's at the moment. Hope you feel better soon Caza x

    • kaz_40
      kaz_40 diagnosisisalie

      Posted

      we could do with a magic wand it would be waved around franticly on every 1.If only eh take care
    • kaz_40
      kaz_40 Caza

      Posted

      Hi Caza its a horrible sensation to have hope it soon goes away, I too suffer with cramps Ive had the burning sensation for 2 weeks now get it both night and day, cramps I get quiet oftern the not so joy of having fibro take care gentle hugs x
    • deb97936
      deb97936 Caza

      Posted

      Hi Caza.. just wondering what doseage you use of gabapentin.  I take to but it hasn't done a thing for my muscles. wondering if I need to talk to the doctor about doseage..?
    • kaz_40
      kaz_40 deb97936

      Posted

      Hi Deb if its not helping what your taking, I would definitly have a word with your gp and ask if they can up the dosage or give you something else to try. 
  • Flowerlady
    Flowerlady kaz_40

    Posted

    Hi Kaz

    I get that too, it is horrible makes me jump sometimes.Good luck at hospital todaybiggrin

    • kaz_40
      kaz_40 Flowerlady

      Posted

      The burning sensation is horrid wish it would hurry up disapear flaming fibro. will be glad when hospital is over arnt looking forward to going.sad never mind Im thinking of treating myself to something after so that will cheer me up.take care Anne 
    • Flowerlady
      Flowerlady kaz_40

      Posted

      Excellent idea, it will do you good to have a treatcheesygrin
    • kaz_40
      kaz_40 Flowerlady

      Posted

      its anexpensive treat you ought to see my husbands face its a picturelol
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