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Fibromyalgia public gathering

Posted , 4 users are following.

Oompa
Oompa

Does anyone know if there are any groups I can go to for this condition? I find if I'm face to face I hope I can deal with it better. I live in Birmingham

0 likes, 18 replies

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  • Kikirae
    Kikirae Oompa

    Posted

    Hi Oompa, There is a National Fibromyalgia Association website. Scroll down to community and chose education and support groups. At the bottom of that page select. Find a support group location near you. It will list all the states. There is a support group in Alabama. I hope this helps.
    • Oompa
      Oompa Kikirae

      Posted

      Hi kikirae, I'm actually Birmingham UK. I wonder if there is something like that here in England?

    • Oompa
      Oompa Kikirae

      Posted

      That for the information though
    • Oompa
      Oompa Kikirae

      Posted

      Sorry that's supposed to say thanks for the information, silly predictive texts

  • Kikirae
    Kikirae Oompa

    Posted

    The same info also have international support groups. Scroll down to the bottom of the list. Type in National Fibromyalgia Association.
    • Oompa
      Oompa Kikirae

      Posted

      Hi Kikirae, thanks for that but I can't seem to find it but the website has a lot of information that I will print and give to my employers.  I will keep searching thank you

    • Kikirae
      Kikirae Oompa

      Posted

      Click on community and you will see a list of options. Choose international support group. I hope this helps.
    • Oompa
      Oompa Kikirae

      Posted

      Hi there were a lot of sites with similar names, but I found it eventually, unfortunately though there are only 3 and none are nearby, none in my area 😔

    • Kikirae
      Kikirae Oompa

      Posted

      Sorry to hear that. If I find another site. I'll be sure to let you know about it. It's hard when you feel alone and misunderstood because family and friends don't understand what your going through. I find this online site helpful because I don't have a local support group near by as well. Healthline website talks alot about fibromyalgia and offers alot ways on how to cope fibro and depression associated with condition. Type healthline/ fibromyalgia. In the search link.

    • Kikirae
      Kikirae

      Posted

      Sorry I can't enter website links to be more helpful this website don't allow

    • Oompa
      Oompa Kikirae

      Posted

      Thanks kikirae, yes it's hard, I felt so awful yesterday I just cried in the shower, then started at work again today. But today my manager actually turned round and said she wants to help, so I may be making progress. Thanks for the info I will look, and I'll definitely keep following what's going on.

    • Kikirae
      Kikirae Oompa

      Posted

      I hope can make special accommodation for you if needed. I pray for strength and endurance because it's a difficult condition to deal with.

  • charley123
    charley123 Oompa

    Posted

    I would suggest contacting your doctor, or whoever diagnosed you, as they may be abe to point o in the right direction. My doctor needed people to sign up for the sessions to go ahead, you may need to see whether that is a possibility, I hope this helps?

    Charley

    • Oompa
      Oompa charley123

      Posted

      Thanks Charley123 it does help, but my gp isn't very good and I often see different people. The person who diagnosed it isn't easily accessible so not sure how I can go about it, but I will persevere. I finally opened up to my best mate today and she wants to be there for me, which is nice I guess.

    • charley123
      charley123 Oompa

      Posted

      I completely know this feeling, I saw 3 doctors before finding the one who diagnosed me, unfortunately she is ony accesible 3 days a week, and is in very high demand. 

      I hope you find something that will help you

      Charley x

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