fibromyalgia symptoms

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Their are over 100 symptoms of fibromyalgia what symptoms have you experienced so far with fibro.

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  • Posted

    It's hard to know which are fibro, which are other known conditions or which are something new! So here are all my symptoms lumped together - I have pain in my neck, down both arms, upper back, ribs, pelvis, both hips, knees, feet and hands. Numbness, burning and pain in both hands and fingers plus it feels like everything has an electric current running through it, my IPad feels red hot to the tips of my fingers so it's difficult to use. I fall over, not dizzy but more like I've drunk a bottle or two of Rum, I don't drink. I'm exhausted/tired to varying degrees all day every day, IBS possibly separate condition , who knows. Feeling down, not depressed but down, one I forget till I try to go somewhere alone Agoraphobia, I didn't know that's what it was till I was referred to a psychologist then a few weeks after I'd seen him my GP asked how my Agoraphobia was doing. I'm fine in the car or if someone is with me but panic on my own, worst attack in Morrisons, I was so scared I had a panic attack, sat on the floor in a ball, nobody stopped, I think they thought I was drunk. I think that's all but something else may pop into this awful memory of mine! Oh yes Brain Fog!
    • Posted

      That is terrible that no 1 stopped to help you when you had a panic attack in morrisons how awful for you. I have pain all over the my body from top to toe dizzyness loss of balance fibro fog earache tinnitus temperature variaion hair loss sppech problems difficulty swallowing depression bured vision dificulty walking numbness in hands feet legs stiffness concentration very poor short term memory loss fatique and some I cant remember. I feel for you having Agraphobia and panic attacks bless you. I had a panic attack sat night not nice things to have. all we can do is take each day at a time and cope with with this horrid condition as best we can take care thank you for sharing wish I could wave a magic wand over us all to make us better neutral  
    • Posted

      Just had a temperature change, completely forgot about them, boiling hot, sweating but my skin is cold to the touch! So sorry you have earache and tinnitus, I've only had tinnitus once, it was really horrible, luckily it was only for a couple of weeks, I can't imagine having it any longer, I think I'd go mad! I hope if nothing else they can cure the earache and tinnitus for you.

      magic wand waving frantically, hope it works for someone out there!

    • Posted

      Hi shelagh we need that magic wand to work and fastsmile last night I was boiling hot had to get up put cold flannel over me, friday night I was ice had bed socks on quilt on the bed plus another cover hot water bottle on my back for the pain and my heating on my husband was roasting? bless him
    • Posted

      I can live with the cold but the heat is horrible! Sometimes I feel like I'm going to pass out but never do thank goodness!
    • Posted

      I have come close to fainting when ive been really hot sweat pouring out of me luckily my husband has been around when its happened wouldnt want it too happen if I was in on my own that doesnt bare thinking about gentle hugs take care
  • Posted

    like shelagh has said, its really difficult to allocate which symptoms are down to the fibro and which are other stuff, some identified, some not yet.  I ache all over, particularly badly upper arms which hurt like hell in the muscles.  My neck and shoulders are stiff and achey too.  My right arm is a dead weight some days, just wont lift on its own.  My upper thighs have now started hurting too - not in the hip but in the muscles at the top of the thigh.  I get 'hazy' spells - where I'm not quite tuned in to what's going on around me.  I get word loss too - like I cant focus on what the subject is or what the object is I'm referring to.  I'm tired all the time but sometimes so fatigued I cant function properly and have to stop and lie down.  My chest hurts some days, not a sharp stabbing pain but like someone has kicked or punched me in the chest and bruised it.  I get waves of sadness just wash over me occasionally, not sure this isnt just the weariness of dealing wiht the pain or the frustration of it all.  I'm super sensitive to noise, especially loud crashes or bangs and persistent noise like a dog barking or the thump thump thump of loud base music from a car or neighbour's house.  I get very overheated - totally unlike the hot flashes I used to get through menopause; this is like standing next to a fire and I get quite swimmy and a little faint with it.  I've started to get headaches - never had a headache in my life, not even with a hangover before this.  They're prone to make me feel a little nauseous too.  The latest wonderful symptom is tummy ache - lower stomach, like a gripe pain not necessarily after eating anything, they just come on at odd moments.  
    • Posted

      oh, and I forgot the hair loss - it's started shedding again badly, this really is the icing on the cake and terribly upsetting.  
    • Posted

      I wonder if you have IBS too Loxie or my IBS is part of the fibro! I have hair loss too, I didn't put it down to the fibro, I don't know what I thought it was! So tired today, going to lie down for a bit!
    • Posted

      For many years I suffered with IBS but some years ago I became a vegetarian and not had any stomach issues since, meat obviously didnt agree with my digestive system. Maybe it's reappeared possibly due to the stress of dealing with all these other fibro issues. My GP was very disinterested in the hair loss - indicating it was down to 'age' - what tosh - my partner's mum is in her 80's and has a fine head of hair and my neighbour is my age with lots of other health issues and has wonderful thick glossy hair.  Mine was thick and healthy too, even after menopause!  It only started falling out badly about two years ago and seems to get worse when I'm having a pain flare up.
    • Posted

      I hope it isn't IBS coming back, it's a horrible condition. I had every exclusion diet possible, it took a long time to go through each one for three months only to find that wasn't it and then to put it down to IBS. I still go through phases of thinking it's all in my mind, even all the fibro stuff, because there is no actual damage to see on scans/X-rays etc as there is with other things I think I must be imagining it all. I just thought the hair loss was my age or hair type, maybe not! What a lovely condition this is!!

      Hugs on there way x

    • Posted

      I couldnt agree more with you shelagh, it truly pees me off that all of the horrible symptoms and problems I'm experiencing seem to be resulting from nothing that shows on tests, x-rays, bloods, etc.  One of the GPs at my group practice seemed totally astounded that I wasn't jumping for joy that my blood tests came back 'normal' - I pointed out that if they'd resulted in any other disease whatsoever, I'd be getting a) effective treatment and b) sympathy - neither of which is forthcoming for fibro!
    • Posted

      GPs can be the worst! When we moved here we had to change gps, the first one I saw in the practice looked at my notes said "hmmm fibromyalgia ", I figured he didn't believe in it so next time I saw a different doctor, this one is great! I had one years ago who said fibromyalgia didn't exist and even if it did it burned out in ten years so I should be over it. When I mentioned this to the Rheumatoligist she said it was news to her and wouldn't it be nice if it did! You'd think after all this time it would be well recognised, maybe we could accept it better if the doctors did!
    • Posted

      oh loxie wish I could give you a hug. I got upset on sat as I had washed my hair more hair come out. From what I read it can happen with some people that have fibro we are all different so what 1 person gets another person may not. oh bless you Our hair will hopefully start to grow again I hate this condition and how we are all suffering. big hug coming your way wish their was something I could to help us all.take care Im thinking of you 
    • Posted

      Hi loxie My mu had very thick right right up till she passed away. I tokk after her with how my hair was. My hair loss and the how fine it has gone just seemed to happen quite suddenly this year.it came as quite a shock and really up set me. just hope our hair starts to grow back and quickly.take care gentle hugs
    • Posted

      Hi shelagh the last time I saw my gp she said to me you know theirs no cure for it dont you. my friends nephew has had fibro since he was 7 he is now 44. I wish fibro was more out their like other conditions like ME MS. its so annoying when  you hear of drs saying it doesnt exist   cant believe that one dr saying to you that it burns its self out. what an idiot to say that shows his ignorance where fibro was concerned. I was told by my gp, that fibro waxes wanes and you can sometimes go iinto remission. where you may not have any symptoms at all eg 3 months 6 months. then it can suddenly come back, I think drs need educating in this condition. take care gentle hugs
    • Posted

      thats the troble we dont know whats down to the fibro or what else could be the cause. If Im in any doubt I always check with gp. I have stomach ache its in lower stomach. nothing triggers it just comes on then goes again. Im very sensitive to noise cant stand my son playing his music or the tele being loud .I have problems wihh my speech not being able  to prononce words sometimes I havnt been able to speak and other times I ve had slurred speech Which my dr happened to ring me when that happened, she rang an ambulance as she thought I was having a stroke. I also have ME and ms. I suffer really with stiffness in my legs I am achy all over all of the time. the joy of having fibro at least on here we are all in it togeather
    • Posted

      Thats what got to me the most seeing specialist after specialist blood test after blood test and all tests coming back negative, like you say drs were  bemused by me that I wasnt happy with the results.? well i wasnt happy with the results I just hoped something would show up as to what was going on with me, rolleyes
    • Posted

      While I'm not glad that you have these awful issues Kaz, I am relieved to find that it's not just me imagining all this and that others can relate to what I'm going through.  I'm so sick to death of having my doctors insist on only listening to one symptom at a time and for many of them, telling me its my age or just shrugging their shoulders.  Oh to find one who has made any effort whatsoever to understand how wide ranging the problems can be with this vile condition and to treat me wholistically, ie taking account of all the issues and symptoms.  Referring me for more blood tests, referrals for appointments months and months (even  years) down the line with neurologist etc., isn't helping one little bit.  For heaven's sake they can replace organs, limbs, even faces, there's a cure for almost every disease known to man, even cancer now, yet something like this, which is 'invisible' in terms of any internal damage the best most can offer is 'take a pill' (most of which dont do a bit of good).  grrrr, sorry I veer from resignation and deep sadness to absolute fury and today is my day for ranting sad
    • Posted

      Hi Loxie you rant all you want. I dispair with drs and specialists to be honest with you. My gp treated the symptoms I had seperatly. Which saw me seeing specialists upon specialists for every part of my body, from head to toe no part of me was left out?. After having every test known to man, and feeling like a pin cushion from so many blood tests, my gp finally after 10 years sent me see a rheumatologist. who diagnosed fibro in march last year. That was only after having more tests? and doing the pressure point test. I felt relieved to finally have a name to what was going on, and set about getting as much info as possible. My dr tried me on every tablet pain patch on the market. I was unable to stomach any of them the reactions were so severe. so I plod on as best as I can gritted teeth hot water. I was taking Ibuprophen but thats now affecting me too. so not taking pain meds. last night I was in a lot of pain from muscel spasams in my back and was rooted to the spot in my bathroom for 15 mins unable to move. I hate this condition with a passion. but know Ive just got to battle on regardless and take each day as it comes. So I can relate fully understand where your coming from. at least on here we have each other for support. I think it helps to let off steam to people that know what your going through. take care gentle hugs  
    • Posted

      I'm so very sorry to hear you're in such distress with it at times.  I hurt all over and am exhausted the whole time but the peripheral symptoms, eg hair loss, stomach issues, etc etc., aren't in isolation impossible to cope with, I just want to find a way to get at the root cause rather than be fobbed off with pain meds, which like you, either dont work or make me even more ill.  Becoming housebound and zombied out on opiates is NOT the route I intend to take, I shall continue to research everything and anything and I'm going to keep annoying my doctors to the point where they will either listen to me or shoot me smile  I hope you find things other than toxic pharmaceuticals that help your condition Kaz, and if I chance upon anything at all that seems to be working, this forum will be the first to know. xxxxxx
    • Posted

      Hi loxie from what Ive read up on and been told by my gp we are, lacking certain chemicals in our brain eg serotin and I think theirs another 1. my gp said as yet their is no cure, I know like many other conditions its being reserched into wish they would hurry up and find a cure?. In our body we have whats called transmitters, our brain sends signals to different parts of the body to work eg brain to mouth to open.its abit complicated to explain b ut basically these signals are slow in getting to where they should be going. fibro is affecting everything in our body our autoimmune system. our body just isnt as we know working as it should. our pain signals are being told we are in pain when we arnt. so unfortunatly for us we are in constant pain most of the time.It Lewts hope a cure comes sooner rather than latersmile take care keep plodding the best we can x 

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