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I have had PMR now for 6 years. I have had my prednisone down to .5 mg per day. I had a flare up, my gp suggested I go back up to 1, however it doesn't appear to be working yet (4th day). I really don't want to take too much as I have been almost been in remission, but the back ache is painfully. Comments please?
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amkoffee joan123456
Posted
It would seem that 1 mg is not enough, and that you are not in remission as you think. Or your back pain is due to an injury or something else all together. Do you know if you possibly could have injuied it? Being a lower back sufferer myself I can tell you that I am not 100% sure when or how I injured my back, I just know that it started hurting one day. Of course for me I didn't have PMR to blame the pain on so there was no confusion. And as I've aged I have also aquired a lot of arthritis in my back. That is another thing that you could have in your back. Any one of these is something you might consider.
joan123456 amkoffee
Posted
Thank you for replying, I haven't had an injury and I remember the pain from the pain I had before I was diagnosed with PMR and it is identical. I was wondering myself if I should go up another 1 mg, and see what happens there. I will wait one more day then try that. Thanks
BettyE joan123456
Posted
I know how disheartening it is to feel you've almost got to the end only to be knocked back. I had PMR altogether for eight years in two episodes and there were numerous glitches along the way but I did get there in the end.
If 1mg. is not controlling the symptoms then it looks as though that is not enough. If you are not happy to monitor your own doses could you get a 'phone call from your GP to ok something higher?
I used to keep detailed records of doses and how I was feeling and take them to my appointments and I was then left to adjust as and when.
joan123456 BettyE
Posted
pam1793 joan123456
Posted
Being on Prednisone is awful. I'm down to 12 mg from 60 mg one year ago. I already had the cataract surgery, but after gaining twenty pounds I'm anxious to see if the continued decrease will help get rid of some of this weight and water retention. Being in my sixties I know it's not going to just fall off. If you're down to one mg, try not to get discouraged. That's is great that you've made it this far! Hang in there!
amkoffee joan123456
Posted
kathy67492 BettyE
Posted
Betty, it is so nice to hear from the people who have gotten thru the PMR!
Thank you for responding on this forum...8 years is a long time, but leaves us hopeful😊
joan123456 pam1793
Posted
barbara73592 joan123456
Posted
Hi Joan,
I started on 30mg a year ago and am now down to 7mg. I must admit though in the mornings,I am very stiff and sore. I take my prednisolone after breakfast and gradually throughout the day the stiffness gets better. If in a lot of pain I also take paracetamol which helps a lot. By the afternoon and early evening I am much better,but never absolutely pain free. Like you ,there has been the odd occasion where I have wondered if I had had a relapse,but my Rheumotologist advised that when tapering you can often get symptoms of PMR but it can be the body reacting to less steroids and adjusting itself to to the lower dose. Obviously in your case,if you do not feel any better after a few days you will have to increase your dose a little to get back on an even keel. Like other sufferers I also find it useful to keep a daily log of symptoms and the current dose of medicine.
I think too it's important to keep as active as you comfortably can.
Regards,
Barbara
joan123456 barbara73592
Posted
Thank you Barbara, great information. I continue all my activities no matter how painful. 😊
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