Frozen Shoulder My Experience and Should I Have MUA?

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It appears that I am the lone male member of the Frozen Shoulder Forum.  I have been reading many of the posts and my heart goes out to all--especially those in the early stages where the dread, fear, pain and horror are at the highest levels.

I am a healthy 50 year old manly man, not a diabetic and I have no thyroid issues--no illnesses or diseases.  I am svelte and in good shape.  

The onset of the hellish Frozen Shoulder in my life began about 17-18 months ago.  The first 6 months were a true "Season in Hell".  Under extreme stress and darkness as a loved one had been placed in various I.C.U. wards I will always wonder if somehow the condition/disease appeared due to stress and stress hormones/reaction.

As my arm froze and I could not sleep I soldiered on believing that it was some sort of short term muscle issue.  Hoping against hope as they say--this "denial" continued until I had to prop my arm up in bizarre postions with pillows, laundry and contraptions in a "lost cause" attempt to find a pain free way to sleep.

All my positioning of my arm was to no avail.  I would lie in bed disconsolate and demoralized in agony.  No amount of Aleve medication would help and I feared to take too much after having seen one friend die of renal failure and another from liver failure after a lifetime of tylenol pill popping.

The pain and loss of motion became so intense that after about 4 months of absolute dark, horrific, hellishly nightmarish enduring the malady I sought out an Orthopaedic Surgeon.  

He administered a steroid injection into my left (non-dominant) shoulder and encouraged P.T.  His female nurses were surly, mean-spirited and officious types which served to make me feel worse.

After a few weeks of high priced and silly P.T. with a group of "money-makers" I gave up on going to P.T.

I went back to the Doctor and demanded surgery.  The nurses were even more vicious to me and the doctor agreed to do the surgery.  At the last minute one of my brothers intervened and strongly importuned me to delay the surgery.   He feared that the Doctor was merely after some easy "Cha Ching".

I delayed and sought out second opinions.  I was directed to a noted surgeon who devotes his entire practice to "The Arm".

Dr. Second Opinion or hereafter Dr. Arm Specialist quickly diagnosed the malady.  Dr. Arm Specialist told me that I had a "Severe Case" of "Frozen Shoulder" and that he "Would not do surgery for at least 3-4 months".

The Arm Specialist doctor told me that I had to perform months of P.T. and verify that I had done it before he would even consider surgery on me.

I went to a big strong P.T. lady who worked me and stretched me unmercifully---but it helped.

I would scream and yell as she pulled and tore the Hellish Adhesions inside my arm.  The office staff would close their doors because of my screaming.  The other patients would stare at me with pained and angry expressions--but I did not care because of the pain and the need to rip the Adhesions apart.

I would think of hardened super glue looking "Spider Webs" holding my arm in the  Frozen Postion as my P.T. and her helper would actually "Rip and Tear" the Adhesions as they pulled my arm this way and that way.

I had to do my own stretches and strengthening exercises and movements on my own.

After about 4 months (and several Cha Ching visits he demaned during the time!)  Doctor Arm Specialist said that I had regained about 60 percent of my motion.  

The "at rest" pain had diminished quite a lot but the stretching pain was still very much alive and well.

The doctor agreed to peform a "Manipulation Under with Pin Hole Arthro" during the manipulation if he felt it necessary.

He said that if he were advising himself or his son/brother he would say avoid the surgery and keep working the arm in P.T. and/or on my own.

He knew I did not want to miss work and he said there was/is no certainty that the MUA would/will work well or at all.  He also said that the Frozen Shoulder could come right back and become worse than before after the MUA.

I have waited until now and finally sought out forums and found this forum site.

I have about 75 percent of motion back and the pain is there when I stretch.  

I feel that I am not the full healthy person I was before because of this condition.

I am considering the MUA if Dr. Arm specialist is still willing to perform it or if he won't then I can seek out another Specialist who will.

I hope some kind readers will tell me how their MUA experiences/surgery and recoveries went and any thoughts they might offer on my decision on whether or not to have the MUA performed.

The good news is that my Frozen Shoulder Nightmarish Odyssey did improve to a degree from the worst Frozen/Pain stage.  But, the range of motion is still greatly diminished and the pain is there when I stretch.

It feels like a full and horrid Super Glue Hardened Spider Web Holding My Left Arm to a certain limited range of movement.  If I pull really hard the pain is quite bad and I can feel those Hideous "Adhesive Super Glue Spider Web Type Adhesions" being pulled and pulled.

In a bizarre psychological/emotional form of what Emerson called "Compensation" I have tried to find some joy in the recovery and the process of struggling to get better.

My faith in Christ and God has increased during this episode.

I may have neglected to mention that the onset was "Idiopathic" and "Insidious".  I did not sustain any memorable injury and I was not involved in any accident.

I am aware that men are afflicted in about 30 percent of cases and that usually folks with Diabetes and/or Thyroid issues are afflicted.

I have no diseases or maladies and I am very very manly and male.

I empathize with all who are reading this post and who have suffered with the vile and insidiously horrific malady of "Frozen Shoulder".

One thing I try to keep in mind is the idea of Albert Schwitzer the famous protestant missionary convert who said "if you are feeling sorry for yourself...go find some people or person who has "it worse" than you do and spend time helping and visiting with them".

Thank you!

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  • Posted

    Bobby you poor chap. Sorry you have had sucha  rough time.

    Many people have no idea how they got it - but in hindsight remember some heavy lifting (as now they wouldn't offer to lift a bag of cold hard cash - because it hurts)

    Manual handling training teaches us all to bend with our knees and lift portecting our back - but we need to warm up and stretch our shoulders too - rolling shoulders, rolling neck and windmilling arms. I tell everyone to do this now.

    there is deifinitely a link between stress and onset and this condition has aserious impact on mental health too - so make sure you get the right support for your mental well-being - stress and depression come hand in hand with the pain, sleep deprivation and medication dependency,

    I had 2 very different experiences with my 2 shoulders. So all I can say is that it is a bit like a broken leg - some people have 3 weeks ina cast a nd 2 physio sessions and are back playing soccer - others have operations, pins put in, traction, onths of physio and walk with a limp/use a stick forever more - but it is still a broken leg.

    For both shoudlers i had arthroscopic release (key-hole surgery). With one I was off all meds 2 days after surgery - with the other, I am 4 weeks post surgery and really still in as much pain and dependent on morphine, although my mobility is better.

    Wishing you a speediy recovery.

    • Posted

      I had the same surgery and was very fortunate of have an experienced surgeon, after therapy doing better.this is full time management . Always treat when necssary with heat an wear a apring splint if possible to work with the therapist.
  • Posted

    Gosh Bobby....are you by any chance a school teacher. That was almost an essay you wrote.

    Sorry you are suffering....every one of us on here has suffered pretty much the same way. I must admit the medical system in your country and I'm presuming your in the UK seems to give you the absolute run around with medical attention. Sorry your still not 100%. I've had successful surgery for a torn rotator cuff and been told I won't be back to normal or full range for 12-18 months. So good luck with your journey...hope it improves soon 😊

    • Posted

      Kerri,

      I am an American in the U.S., not a schoolteacher, I write too fast and without proof-reading anything (keeps it real).

      This "disease" of "Frozen Shoulder" is just vicicious, painful and debilitating enough to be maddening and nightmarish but not bad enough to cause one to "give up" into self-pitying dispair.

      I have found the adage about "time healing all wounds" to be sort of applicable with my case of Frozen Shoulder.

      One slightly unique (not entirely unique to males) part of being male is that we (I) tend to have the expectation of constant and daily full strength and full faculties regardless of and without any thought to a "calendar".

      So--when some unforeseen "speed bump" or "bad days" come along regarding physical health we tend to have a rougher go of it than many females that I have known.

      As my sister, mom and nieces have made known to me--they grow up with several days a month of feeling bad.  While most men suffer these "bad days" only when they have a cold or allergies.

      So--as the "Minority" suffering gender in this god-awful disease/malady I have to say that males have it worse than females if only because we (certainly "I") are not usually experienced with any degree of physical debilitation or "bad days".

      My first real taste of "Cryptonite" to borrow the metaphor from "Superman" comics/movies/pop culture.

      I Re-Read C.S. Lewis' phenomenal work "The Problem of Pain" for the 14th time and as always it helped me understand what and why such things occur.

      I suppose all who have the FS "Badge" have a sort of civilian purple heart if they deal with the injury with courage.

      One last thought---I saw a bloke in the Wal-Mart and he was perambulating along with a markedly and distinctly bad gait and shuffle.  As I watched the unfortunate fellow (a man of about 40) I realized that he appeared to have suffered some type of major stroke and that he was "Frozen" on half of his body.

      His face (half frozen) and his limbs "Frozen" as he used one of those Aluminum or A LOU MIN YUM as my British Bloke Friends would say!

      canes to help his balance and to prevent his sometimes deeply listing gait to turn into a full "Capsizing" of his person.

      I smiled at him and he flashed a pained, nay a "tortured" grimacing smile at me.  It was all that I could do to hold back a sudden and nearly uncontrollable flood of tears and sorrow.

      It became suddenly clear to me that my seeming "horror" of "Frozen Shoulder" is/was a mere triffle that has and will improve over time---while the afflicted bloke I observed smiling back at me in a grimaced way has to endure his "Frozen Half" condition probably for the duration of his years left on this Earth.

       

    • Posted

      Whoa.....there you go with that essay writing again. I'm an Australian in Australia. Your right it is a god awful insidious nasty disease and no there is no point in giving up into self pitying despair......your right. And yes we females ALL know we are the stronger tougher sex and that most men don't handle being ill or incapacitated too well.......BUT.......you don't have a choice with F/S we all just live in pain hoping for a miracle. Hope your miracle is coming soon Bobby 😳❌❌❌
    • Posted

      Hi Kerri,

      Hope you are continuing to improve?  Waves and winks from the Scot in Scotland!!  Mandy xxx

    • Posted

      Thanks Kerri, yeah, English Literature major! More Hawthorne than Hemingway in my writing....modernity is a 140 Twitter texting world! :-), Proust and Tolstoy would be appalled.

      Brevity is the soul of wit!

      Stay strong...I love Australia! :-)

      Bobby

    • Posted

      Hey Mandy...how are YOU doing my lovely??

      my shoulder is improving every day....I'm at week 5 post op now....one more week in the sling. Coming off my last med at the moment....suffering a bit of withdrawal....body aches and pains. I've been on a morphine based med for 3 months and my body doesn't want me to stop it.......it is screaming for it, but I have to be strong and ignore it. It's only day one....god I hope it's over quick. Sending you gentle hugs and kisses 😘❌❌❌

    • Posted

      Lol......Bobby, English Lit major.....well that explains your very descriptive essay writing I guess 😜

      😘💚💛❌❌❌❌

  • Posted

    Hi Bobby (hi everyone else!)

    Your experience to date sounds nothing short of horrific, the therapy in particular. 

    I'm always amazed and more so every day of the varying opinions of surgeons on the treatment plan.  I'm in the UK and though I work in the NHS I had my capsular release surgery privately via health insurance we contribute through via my husbands employers.  I was very lucky. The surgery on the whole has been a success, immediate relief from 'that' pain but full mobility is not back fully but I can live with it, physio continues for another 3 sessions. Your description of the therapy you have had I almost gasped, my surgeon had said to me no matter how much physio I had it would not have made it better, maybe even worse prior to surgery and although I was too far gone for injections I would never hesitate to recommend the same procedure to others.  My surgeon was diplomatic about manipulation (always under anaeasthetic I had thought - not you?) and even in my surgery the manipulation was minimal and only one direction to reduce injury, risk of tear or fracture. I don't know what to make or your surgeon to be quick frank and find reading the whole experience quite hideous, I really feel for you.  I'm sorry I cannot help you any further than what we have all done with one another in sharing our experiences and supporting one another through this awful, awful, very misundestood condition.

    • Posted

      Have you tried Xiaflex injections.mthe helps open the frozen shoulder. 4 months later a little pain ad one road to a complex &'complete recovery.

       

  • Posted

    Hi Bobby,

    I agree with your frozen shoulder may have started due to stress from the trajedy you were experiencing.  I have spent many sleepless nights on the computer studying everthing there is about frozen shoulders. 

    I am also a very healthy athlete (but a woman) and I lived 3 years, because of 2 frozen shoulders, in the hellish nightmare you lived in recently.

    My husband is a Physical Rehabilitation Doctor so I had him to reflect with throughout the nightmare.  He is the 1st to admit that 1) there is no definitive answers regarding frozen shoulders and 2) many people are overdiagnosed with FS and therefor when people like you and I are living in hell others don't understand  believing we are exagetating.  To me that was the 2nd worse part of frozen shoulder.

    My opinion is don't get the surgery Bobby. YOu are 75% there as I am with my 2nd and at this point you experienced the worst part so be patient, keep doing your exercises and stretching and it will eventually get better.

    I did not do surgery with either.  I do wish I had with the 1st because the extreme pain and no sleeping lasted almost 2 years. But yours is past that extreme stage.

    Sorry for your suffering.  There is always the beauty of needing God more during our darkest hours so we can hold onto the only good part of this horrific infliction!

    Sheila

    • Posted

      I agree with you. Have yor tried Xiaflex an surgery?
  • Posted

    Hello Bobby , your not the only male and we are the same age , firstly your account of PT would be enough to put me off of revisiting the place , I can't begin to imagine the agony of having my arm terrorised in that manner without being put to sleep first . 

    I'd  been suffering with FS for around 3 months and managing at work and life with changing the way I did certain things . That was until two weeks ago when I was in a road accident , basically two cars piled into the back of mine , this slammed me against the steering wheel and now the damage is hell with almost no movement , I've just had my medication changed and referred to an orthopaedic consultant as urgent .

    i had before the accident a visit to a private PT he actually said something that surprised me , he diagnosed FS and said that I would be wasting my money having continued PT when I could do this myself at home ,, he demonstrated some exercises . 

    Thats was of course before the accident and in my particular case .

    hopefully this living hell will be treated soon , I really can't imaging living with this pain for months even years from what I've read , I sympathise with every post I read from people suffering with this condition .

    i hope everyone gets the treatment they need , quickly ...

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