GCA SUFFERERS -HAS ANYONE HAD TROUBLE WITH HEARING ?
Posted , 13 users are following.
I have read that GCA can affect other arteries than those to the eyes. I have had the frontal dull headaches for weeks, and continue to have the headache even though I have been on Pred for a couple of months. 2 days ago I woke with really blocked ears - tried sinus remedies, gradually during the day hearing almost returned to normal. Lunch time today, both ears blocked badly again. It was sudden onset and is getting worse. Have never had this problem before. (unless swimming in the surf) (which I havn't been doing lately ) Has anyone else suffered with this problem ?
2 likes, 47 replies
misdiagnose Flutterbie57
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tina-uk_cwall Flutterbie57
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But going back to your problem, if your GP hasn't an answer ask to be referred to someone who has. Regards, christina
misdiagnose tina-uk_cwall
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EileenH misdiagnose
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misdiagnose EileenH
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EileenH Flutterbie57
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Be careful using aspirin though as it can be one of the causes of tinnitus. Other NSAIDs can do it too and at first I blamed using ibuprofen (Advil) to try to manage the PMR pain.
MrSolo_UK_Lancs EileenH
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misdiagnose MrSolo_UK_Lancs
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ptolemy MrSolo_UK_Lancs
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misdiagnose EileenH
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Susanne_M_UK Flutterbie57
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LisaCACO Flutterbie57
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http://www.ncbi.nlm.nih.gov/pubmed/9872482
As misdiagnose said, the docs seem disinterested. they focused on the visual and the fact that they caught it "early" meaning I didn't go blind. There has been no discussion about the vascular damage to the rest of my body. I've had to ask all the questions and do all the research myself. *sigh*
misdiagnose LisaCACO
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EileenH LisaCACO
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Many doctors' level of knowledge is from several years ago, from when they trained. I too jump up and down about the lack of knowledge, but they have vast amounts of new things appearing every week - if they read it all they'd have no time to see patients. As for seeing a different sort of specialist - the number of autoimmune disease specialists is not large so the waiting lists would be enormously long and you would have to travel long distances to see them. I would do so - but I know people who think 100 miles is too far to travel to a top expert. I was told once that 30 miles was too far.
But the primary problem remains the same for GCA as any other autoimmune disorder: every patient presents differently and so it is extremely difficult to make the diagnosis by a snap of the fingers. A rash is a rash - measles looks one way, chicken pox another. But autoimmune disorders overlap - even the autoimmune disease specialists struggle at times.
misdiagnose EileenH
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Emis_Moderator tina-uk_cwall
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I have deleted your post re the documentary. Please do not post these in the forums. If you want to pass the details on you can use the Private Message service or post a general comment saying there is a documentary, contact you for details etc.
Regards,
Alan