Posted , 11 users are following.
hey, I feel so low at the moment just constantly tired and have no energy just want to sleep 24/7. my Mri scan came back clear so my specialist is investigating further. He gave me two injections into my cheek to numb the pain for up to 16 hours, since that had weared off the pains in my face and teeth have just got worse. I'm still taking 1100mg of tegretol a day but that isn't enough. I've been in so much pain that they've also given me gabapentin to take 300mg a day. I was wondering if anyone else has took this medication, is it any good? does it create bad side effects along with tegretol?
0 likes, 10 replies
Hellsfairy katiehdmahon
Posted
Hi Katie, so sorry to hear that you're having such a bad time of it...I take gabapentin alongside tegretol. I don't tolerate tegretol well, so I'm only on 200mg three times per day, and 300mg of gabapentin three times per day, and then 50mg of amitriptyline at night. Getting the right medication and dosage takes time. I hope you get some more lasting relief soon.
Take care
Lynn x
Hellsfairy
Posted
greg66242 Hellsfairy
Posted
Hey Hellsfairy,
I am tapering off of Lamectal, so I can tolerate Gabby. Now, what do I have to look forward to in regards to kicking butt on the burning of the face pain, or the electrical jolts?...that NOBODY CAN FATHOM IT REALLY HAPPENS! I have researched that one med (Carb, or Oxcarb, and others, work for stabbing, and Gabby and others work on constant burning pain. Do you or anyone out in "monster" land have first hand knowledge of what needs to take place?
God Bless,
Greg
Hellsfairy greg66242
Posted
Hi Greg! Well, in my case Gabby did work initially quite well for the burning pain, but now unfortunately it isn't really doing much except making me feel even more zombified than I was on a lower dose. Having said that, it may work well for you, I sincerely hope so.
I was told by one 'doctor' that of course there actually was no pain, it was just my brain telling me there was!!! Well, I'm sorry but if my brain tells me I'm feeling pain, then I'm feeling pain....He is no longer my GP!!
Warmest regards
Lynn
patricia64722 greg66242
Posted
i had the stabbing for 15 years 3 years ago I had a balloon compresion done and I am now ok No nothing for just over 3 years . I have got my life back Hope you find a solution for your self Good Luck
Baudwalker katiehdmahon
Posted
Hi Katie
I was on 4 x 600Mg oxcarbamazine (tegretol with lesser side effects 4 me at least) and and with that 3 x 200Mg of pregabalin(lyrica is another name) a day.
That 'JUST' controlled my circumstances pain wise but just about made me the perfect zombie. Took best part of 12 months of trial and error of various medications to get to that stage.
Surgery for a totally sepearate issue on my face somehow has reduced everything to just needing paracetemol backed up with oral morphine a few times a day.
Keep at it WITH your GP and don't hesitate to suggest remedies you see here. GP is best person to asses what will suit you and monitor any side effects.
I kept researching TN and when I found an interesting site I would pass the link onto him and he would investigated at his leisure. He was very happy to do that and we found the result that worked together.
Most GP's don't see a TN case in a year so it is to be expected they need to brush up on it to give the best support.
Good Luck and never give up!
karen36710 katiehdmahon
Posted
clint71 katiehdmahon
Posted
Knowing what I know now, I would've had MVD surgery much sooner. It's the option most likely to permanently get rid of TN, and of course recovery is easier the younger you are. TN will not go away on its own. The pain may stop temporarily, but it always comes back, and it gets worse over time. The meds WILL stop working eventually. I don't see the value of getting by with medication for years, only to have surgery anyway.
karen36710 clint71
Posted
marilyn49807 katiehdmahon
Posted
Hope you are better with pain. I started out taking 900 mg a day of Gabapintin and now taking 1500 a day and hardly have much pain unless something sour or sweet,gotta be careful and always hurts alot when brushing my teeth. I did not like Tegratol at all. Gabapintin will make you a little dizzy but nonthing real major. Anyway let me know how you are doing. I will keep you in my prayers. God bless!
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