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Hi
I finally did the VNG test on monday and the ENT said I have Vestibular Dsyfunction. So he is sending me for therapy. My dizziness is feeling of swaying or rocking when I sit is the worst and i have it laying down and standing and walking. Its pretty much constant when it starts, I have days when it on and off and some days i get lucky and don't have it, but those are few and far between. The ENT says it sound like dis imbarkment syndrome but i was never on a boat and he said there is a mechinism in the ear that tells the brain if you moving or not and mine seems to be stuck. But believes the therapy will help it along to clear up quicker. Does anyone else have this and did the therapy help? I have also noticed in the past week when i'm sitting I feel like I'm falling thru space. This is very scary to me and now causing more panick. I'm trying my best not to panick but very hard. The ENT also said I could take my xanax when needed but not all the time, he said this will calm the anxiety and the dizzienss, whick it does to a degree.
I then saw my endocrinologist becasue I am hypothyroid and have been for 15 years. He asked me if the ENT checked for viral, because he has 2 other patients with this and nothing worked for them and now they are on anti viral meds. Also saId the thyroid being auto immune can cause this to be worse.
If anyone has any help please could you share it. I'm so tired of this, its been going on since last July and i"m sick of being afraid and having anxiety.
Thanks for any help.
Patty
0 likes, 12 replies
marion50354 patty818
Posted
My treatment started with doing the Epley Maneuver every day. Saw how to do it on youtube and also my physical therapist gave me a diagram on it. I did it for many weeks--and I saw some improvement. But now all.
Next---and most helpful--I had vestibular therapy. They take lot of dizzying tests to diagnose exactly which ear is involved. Sometimes the floor moved! Then they taught me exercises to do at home. They were hard but I did them faithfully. After 6 vestibular therapy sessions, I was somewhat better. But my therapist said I didn't need to come more. She sent me home with more exercises to do at home--some invoved turning the head while walking. AND it worked. After many months the dizziness went away.
But...from time to time if I lay down flat, get up too fast, or turn quickly to one side, I can get momentary dizziness. So outside and indoors I am careful and take things much slower. BTW, I am prone to seasickness, really sensitive.
The conclusion is: I probably have some sllight malformation in my ear--actually both. Why the vertigo comes on suddenly, no one knows. But I've had it before--I am a "relapse" case--and I noticed it that the times I got it I was going through a painful loss.
Take heart. If you do what they prescribe, I think you'll get there. Good luck.
dee50000 marion50354
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marion50354 dee50000
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When I had a certain test where I had to look into some telescope like thing, they found that my eyemovements were curling to the left. I think thata's part of the imbalance problem. (I also got nauseas,) I was diagnosed with BPPV, and I think I read on the web or my vestibular therapist told me that the eye problem comes with BPPV;. But it stands to reason that any imbalance could cause that.
I totally believe in the therapy. While you're doing it, you often feel worse; also when you do the home exercises. But apparently the treatment is trying to "coax a particle back into place." If you're doing the therapy now, it's possible that you need to do it longer. Mine took several months.
dee50000 marion50354
Posted
And the vestibular rehab exercises at home are for retraining the brain to get use to the imbalance, creating new pathways that have been damaged, etc.
dee50000 marion50354
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Mary_McAvoy marion50354
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johntran patty818
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patty818 johntran
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What type of chiro is that? What do they do? I'm in sarasota fl. How does this help dizziness?
dee50000 patty818
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dee50000
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johntran patty818
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johntran patty818
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