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harrishill

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harrishill1
harrishill1

Hello everyone, My PV is under control right now. I am also happy to see fall coming in California. I have been sweating long enough. I walk every day, and it is so very nice when we have cool mornings. My arthritis has been giving some problems, but I started taking my tumeric capsuls as an anti-inflammatory. Don;t want to take any drugs that may interfere with my Hydroxyurea.

harrishill

1 like, 3 replies

3 Replies

  • vicki29681
    vicki29681 harrishill1

    Posted

    Hello 

     I too sweat soooooo much i get so annoyed by it all. I live in PA and really look forward to fall also. I have foot pain that feels like my foot is on fire. it comes and goes so i guess that is part of this affliction? i was only diagnosed this year. i am 6

     i am told i do not have cancer but the more  i read i wonder. ??? i feel  tired and unmotivated most of the time. Is that part of this too?  My Dr seems to think i am ok getting blood work every 3 weeks and so far i have not had to have blood taken since August. 

    I am sad too . Is that part of this affliction? 

    Thank you 

    • vicki29681
      vicki29681

      Posted

      That should read i am 65
  • harrishill1
    harrishill1

    Posted

    Hi Vicki, sweating is definitely a part of PV. I've not had foot burning. Some say burning feet is part of diabetes. Every time I clean or vacuum, my head sweats. However, I notice it is much worse if the house is hot. I can go for an hour walk, and not sweat if it is cool. I have to say I believe I just can;t take the heat. My haematologist usually asks if I have night sweats, but I don;t have them since I've been on Hydroxyurea. I know some people call PV cancer. From all my research, I have learned we can live 10, 20, or 30 years after being diagnosed.I have a high red blood count. If and when I get a blood count that is too low, then I will call it cancer. I've read that PV can turn to cancer, but isn't cancer before that. Have a very nice day.

    harrishill

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