Have I got PMR?
This is a really great site and has a lot of useful stuff for a newbie like me so many thanks to all the contributors and fellow sufferers.
I have lots of question I want answers to but the main one is have I got PMR? because my consultant and GP seem to disagree on the diagnosis or the treatment and I am feeling like piggy in the middle right now. I have outlined the progress of my complaint below and would be very interested in hearing how these fit the experience of others.
Background. I am 62 years old, been fit and active all my life and up to 4 months ago regularly ran 10 miles, went to the gym, played competitive bowls etc. At end July/Aug 09 I developed a severe chest infection and cough that lasted for most of August and September. In mid Sept the first signs of my current complaint started with a strained feeling in the inside of my left leg from the hip joint to the knee. This was so painful that I couldn't lift my leg off the floor and sleep was difficult. I hobbled around for a bit and then a week or so later my right leg started to play up and both legs felt as though I had just run a marathon. I saw my GP who said it was muscular and put me on a course of Ibuprufen. A week or so later my right shoulder started to hurt really bad and then another week later my left shoulder. The most recent development is my right wrist and hand which are so painful in the morning that I struggle to butter a slice of toast. I ache all day but nighttimes are especially bad and the aches and pains in my shoulders/arms and hands keep me awake. My legs though are still achy but much improved and whilst I still can't run I can walk 2 or 3 miles without too much problem which I don't understand given the state of the rest of me. In the morning especially I am like an old man and so weak I would loose in a fight with my 18 month old grandson.
My GP and consultant disagree with the diagnosis because my blood tests do not confirm it and my GP took me off the 15mg dose of steroids the consultant prescribed after a couple of weeks even though I was much improved. The past 3 weeks, since I stopped taking the steroids, have been really bad and my quality of life just above zero so I am seeing my GP later this week to sort it out because I can't go on like this.
Apologies for rambling on like this but any advice would be most welcomed.