HAVE I GOT TRIGEMINAL NEURALGIA
Posted , 4 users are following.
A few months ago I started getting a really sharp pain in one of my teeth on the upper left side. It came on quite suddenly & was really painful for several minutes. I saw my dentist and she couldn't see anything obviously wrong, although she thought I might need root canal treatment. The frequency of the pain has increased to most days and across adjoining teeth. Painkillers reduce the acute pain fairly quickly but I'm then left with an aching and tingling sensation in my teeth and gums and also my jaw and cheek bones, which can last several hours. These symptoms only affect the left side of my face at the moment and do not seem to trouble me whilst sleeping. I do wear a night guard on my teeth as I have a tendency to clenching and wondered if there was a connection. However, reading comments on this forum suggest Trigeminal Neuralgia. Presumably if it is, a dentist can't really help and I need to see my GP?
1 like, 15 replies
sandy5221948 bunty53
Posted
I'm not the right person to be answering, because my doctor is still trying to decide if I have Trigeminal Neuralgia or cluster headaches. However, the nerve has 3 branches divided by the upper head, then the middle which includes the area around the upper teeth, side of the nose, and into the eye. The last part is the jaw area. I am affected by everything but the jaw. Mine started off in the upper forehead with the "ice pick" stabbing. Now, it hits me through all those areas and it hurts even the roof of my mouth. If you have it, it will probably spread to the other areas. Mine started in mid October, and by November I was really suffering. You can't really know if the OTC meds are working. I thought mine were, but now I know it was just that my pains were going away on their own. NOTHING helps a TN attack. I had Oxycodone that was left over from my husband's surgery, and it wouldn't touch it. The ER gave me pain meds, and it did nothing. They did give me an IV that I think worked. Maybe I just wasn't going to have an attack those days, but at least the pain was gone for 4 days. When my attacks start, I have that same tingle that you are talking about in my teeth. Then it moves into my nose, and the tingle is gone, and the pains from hell set in. That's all I can say to help you. At least you have an idea what you've got. I went into this without a clue, and neither did the 4 doctors I saw during 4 different trips to the ER, one to my regular doctor, and one to the dentist. My next stop was at the ENT doctor, who diagnosed me within 5 minutes. Now, the neurologist he referred me to is the one that says TN and cluster headaches have the same symptoms, and it's too early to call it. I wish you luck.
bunty53 sandy5221948
Posted
sandy5221948 bunty53
Posted
I meant to say traditional pain meds don't help. I'm taking Gabapentin and I'm on my second longest streak of no pains. I't s been 3 days, and I hoping it continues. I started off with 100 mgg, then they uped me to 200 mgs, and now I'm on 300 mgs 3 times a day. I've been told Lyrica is much better, but as long as this works, I'll stick with it.
caroline25339 bunty53
Posted
From what you described it sounds like TN. Avoid the root canal until you see your GP and ultimately a neurologist. An MRI should be done to really see what's going on. Unfortunately pain killers aren't really going to help. There ARE meds that can help manage the pain, I.e. anticonvulsants, Lyrica, Cymbalta, etc. That is the starting point...surgery is your last resort. Talk to your doctor as soon as you can.
bunty53 caroline25339
Posted
Stupid1 bunty53
Posted
I am defient in vitamin b12, I have just that Trigeminal Neuralgia patients r deficient we need to get b12 shots and thise can b administered every day for two wks, or get pills that dissolved under the tongue.
Need to take 100,000 a day to build up in system dont taje made in lab one take Methylcobalem, seems their is a sheet on brain that tells doctors that patients r defiecient in b12, my doctor who did endocopy on me told me I was deficeent, while in hospital neurosurgeon had b1 given to me while in after surgery pu I was given the cheap one that is manufactored dont but that one.
I have and u can also just type in google b12 and Trigeminal Neuralgia. And u can read about the relstion between being vitamin deficient and it being the cause of TN.
Methylcobalamin
God bless us and keep us and give us peace
sandy5221948 Stupid1
Posted
I am vitamin B12 deficient, too. So, I took the pills and took a higher dose than she told me to take, because I couldn't find what she said, or the higher dose was cheaper...I don't remember. So, the next time I was checked, it was at the high end of normal, so I stopped taking it. I had my physical last week, and was told I was low again. I had no idea a low vitamin B12 had a connection to TN. I'm going to google that right now! I've only had TN for about 2 months. If taking B12 would help me....I'd take it in a minute! Thank you for that
Stupid1 sandy5221948
Posted
methylcobalamin is not a man made b12 but the one with the name Cyanise is made in a lab and I have found out it does not.
I called my primary care physician and asked fir the shots and this is from a person who hates shots, but if I am unable to stand that needle will be taking thevunder the tongue version has to be 100,000 I am going to c ifbdoc can get the Methylcolamin prescribed to me.
I remember when I was a small child that my mom made me and everyone in the family take a sweet tasting powdered b2. When I becaame a grown up I stopped taking what Mom had me take, I am anemic so I have to eat loads of liver and beets whenever I get tired, but I do not even do that anymore. I will start back doing what my Mom told me to do, I should had never stopped listening to my Mom, had I never stopped I would not have this TzN.
I will come back on here and give u that part of the brain that it said this coating or sheet it was on.
It was something like (metalin) was a shorter wird, I will find and get back to u.
This is what
I goigled b12 and trigeminal neuralgia.
God bless us and keep us and give us peace
sandy5221948 Stupid1
Posted
I just ordered this on Amazon......Vitamin B12 Sublingual -- B Complex Energy Pill with B12 Methylcobalamin, B6, Biotin, and Folic…
I bet I ordered the wrong thing! I did it because it was one that I could order and get in 2 days. It is an under the tongue kind. I don't even know the strength.
Stupid1
Posted
I meant to say Facial Pain Neuropathic facial pain, vitamin B12 & Myelin.
This is the information: Trigeminal Neuralgia and B12 - - 100, 000, please read thisbarticle.
I don't know how to podt the artivle, but my niece tried to post but it didn't work.
This Myelin is the reason y we need B12.
God zBless Us And Keep Us And Give Us Peace
sandy5221948 Stupid1
Posted
I copied and pasted from what you had written, and it tried to take me to some porn sites, lol! Then I read what it said and realized what you meant to say. What I ordered has 1,000 units. My doctor said to take 500. I know that may be low, but even usiing the cheap 1,000 units (I used a higher dosage than what she said) the lab results said I was higher than I was supposed to be. Then I went off of them, because I was so high, and came crashing down. I have to wonder if that could contribute to getting TN. I went off B12 in August, and started getting the headaches, and face pain in October. That's just something else I have to mention to my doctor when I go back.
Stupid1 sandy5221948
Posted
I had. @ one time stopped taking then--when I had ovaries removed, but started taking
The wrong kingld of B12 has to be Meth,
God bless us and keep us and give us peace
Stupid1 sandy5221948
Posted
Just make sure that you are taking lmethylcobalamin under tongue is the best, that article that I gave title to u says way back that TN was bN treated with vitamin B12 methylcobalamin and then for some reason the doctors started treatment with other medications.
I know that the man made in the lab one is the one with the (cyanicobalomin) I threw that bottle away because it is made in a lab and it is sold cheaply even the doctors in the hospital give it to patients but it is not the real thing it is made out of plastics.
I don't know if we are being used as Lab Rats because doctors give us this stuff that is not the real thing as a medicine or what I know it is not the doctor's fault but the formulary that is given to them to give to us but the doctors know that that one with the word (cyanide in it is not the nature made B12, but the man made B12 that was made in a lab), so as a doctor you would think that they were study enough to know that we should be taking the methylcobalamin vitamin B12.
Like I said next will b my first B12 shot and will still b taking this real deal B12, methylcobalamin, good luck to you and all of us have a Merry Christmas and a Happy New Year
God bless us and keep us and give us peace
sandy5221948 Stupid1
Posted
Thank you for your research and sharing it with us. I didn't know better than to think the drug store B12 was good. I just told my daughter to order the under the tongue B12, too.
Thank you again, and Merry Christmas to you too!
bunty53 Stupid1
Posted