Posted , 5 users are following.
I have an ENT appointment in 3 weeks for my MD, but I really don't think I can wait that long to be seen. It may not seem that long but when you're getting severe attacks on a daily basis, believe me it's a long time to wait. It's really depressing me. I've rang the hospital and asked if they have any cancellations available but there aren't any. I obviously don't want to go to the ED as it's not an emergency, I really don't know what I can do.
0 likes, 12 replies
naomi68931 terri-ann28375
Posted
I wish you well.
terri-ann28375 naomi68931
Posted
I'm already following that diet, I started it when I first got diagnosed 10 years ago. Medication also isn't helping despite an increase and nor are exercises given to me - even the so called miracle one on Facebook. I'm at the end of my tether.
naomi68931 terri-ann28375
Posted
terri-ann28375 naomi68931
Posted
angela84522 terri-ann28375
Posted
If you are I would suggest to take salt intake down to 1000 mg a day and no caffine or alchol. Get some Dramumine ( I like the chewable non Drowsy) You can start on a diuretic too. I would suggest a natural one for now and you can switch it up after your appointment. Horsetail or Dandelion work real well .. which ever you can get. Whole Foods or GNC should have them. Another thing to try is Pine Bark it has really helped me. So sorry! This should get you stable before your appointment. You can go from there after you see your doctor. REST!
terri-ann28375 angela84522
Posted
Hi, sorry I'm in UK. I already have a low salt, caffeine free and low sugar, alcohol free diet. I don't like getting natural products as they can interfere with my prescribed medication, although I wish I could.
JMJ terri-ann28375
Posted
Dear Terri-Ann,
You're right....unless you've been there, no one realizes how long 3 weeks can feel. It is beyond depressing.
What are your attacks like? Do you have meds for vertigo, nausea, and anxiety?
There are at least a few people on the forum who have been helped by staring into a mirror during an episode of vertigo. Somehow it "tells your eyes and brain the truth" — that the room really isn't turning around you. Perhaps it would be worth a try. I' so sorry. wish I had more answers. I know how miserable you must be.
Take care,
J=
terri-ann28375 JMJ
Posted
Hi,
I get this really awful feeling that everything is upside down, luckily that only lasts for about 5 minutes, but then I get the room spinning and when I lie down the boat rocking sensation which can last for anywhere between 2 to 4 hours and I get really strong nausea like I'm just about to be sick. I am also really disorientated with it and very tired.
I have Prochlorperazine to take when an attack comes on, I also take Cinnarizine 30mg 3 x day and Betahistine 16mg 3 x day as prophylaxis. I got given some exercises by the hospital to do 3 x day, nothing is working. I also take Sertraline 200mg and Quetiapine 100mg am, 200mg pm as an antidepressant and antipsychotic as I do suffer from quite severe depression anyway.
JMJ terri-ann28375
Posted
It sounds terrible. I hope you're just allowing yourself to rest and sleep a lot.
You said that you've had MD for 10 years. So, it sounds like your disease is progressing. Have you noticed any changes in your hearing? I know that there have been a lot of posts about Betahistine and how it's frequently underprescribed. Do you have a GP you could call, and possibly get the Betahistine dose bumped up?
Most important thing is to keep yourself safe. Typically, those exercises aren't meant to be done while you're in an acute crisis. They are supposed to improve your quality of life and make you less sensitive to an attack. But it sounds like you're too sick to be struggling with exercises right now. Try not to put more stress on yourself than you absolutely have to.
This is such a rough time for you.
J-
terri-ann28375 JMJ
Posted
I was going to ring my G.P. in the morning and see what they suggest. My hearing is low in the ear I have the MD in, I had a hearing test done at my last ENT appointment. The trouble is it's also bad in my other ear and I have to wear a hearing aid in it. The specialist I spoke to at the hospital doesn't want the Betahistine increased anymore as she said I was on the maximum dose.
So, all I can do is see what happens when I speak to my G.P.
JMJ terri-ann28375
Posted
I'm happy that you'll at least be able to see your GP! S/he might be able to prescribe something that will get you through the next 3 weeks. Make sure you write own all of your concerns and take them with you: With that kind of fatigue, it's so easy to forget! And she's got to know how desperate you are.
RE: your being on the max dose of Betahistine: I think that's the recommended dose that a non-specialist might prescribe. At least one of our members has been prescribed quite a bit more, and has found complete relief with the increase. I've clipped this quote from one his posts:
[I was started on the same dose of betahistine as you (the max recommended in the British National Formulary!!) and had 2 or 3 bad attacks before things calmed down. When I got to the consultant, once the diagnosis was confirmed, my dose was tripled to 48mg tds and stayed on that until 6 months had passed without an attack. I then weaned off gradually and had a total of 21 months remission. Currently following a threatened relapse I am taking 64mg tds and hoping to come off it again in a couple of months.]
So there's something hopeful! And you might also be a great candidate for intratympanic steroid injections. You just won't know till you get to that ENT consult. I hope that in the meantime, your GP can give you something that will lessen the misery. Please keep us updated.
Wishing you relief, soon!
J-
jackie72283 terri-ann28375
Posted
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