Posted , 4 users are following.
Sitting here reading all your stories and thank God, you have all got through it and on the road to recovery.
I'm here on the search for advise for the horror of my brothers life. He is a single dad to his boy with Austism, unable to work from a work related inujury to his back My brother with un-diagnosed diverticulitis, ended up in A & E with severe abdominal pain, must have been bad for him to ask my mum to drive him (an experience like no other). Had to have emgency operation, where they had to remove half his bowel and fitted a colostomy bag. Cut open from groin to chest. Spent time in ICT, they needed the ICT bed, so while waiting for a bed on a ward, he got stuck in A & E. Naked except for a sheet, no blanket (hot in ICT) not so hot in A & E.
Got on a ward, basically no care or compassion being given at all. He is 41 Years old. Tubes still coming out of everywhere, both sides machines, tubes, drips etc. Pain relief given late every day, has to constantly request it, then it finally gets brought. Then have to wait til it kicks in, for it to then to start wearing off to nothing and the process starts again. Told him he has start to walk, which he has said, if you help me I will. (tubes, wires etc) been in bed now for 3 weeks, so weak and muscle wasting. They are quick enough to get him out of bed to dump him in a chair, but won't give him anything so he can get himself upright. Walking frame to lean on, nothing. Just expected to stand up from sitting position and walk.
He has been complained for the last week, he can't breath properly and noticed a lump under his arm. Being a weekend, waiting til today for a consultant to look at the resluts of the tests that they have carried out to see what they are going to do. Turns out he has a blood clot under his arm and pnemonia. (Probably from when they moved him from ICT to A&E to ward - in nothing more than a sheet)
Due to his back injury he asked for a bed more suitable that he could adjust, to be told they are for the elderly and inferm.
He is now not in very good place, mentally and honestly doesn't think he will get out of the hospital alive.
Me being 65 miles (whole family since he has been in there have had the sickness and diarrhea bug - in one form or another) so couldn't go down at weekends, incase he caught it, 2 kids at school, 1 at nursery and hubby who works all the hours God sends, I can't be with him and fight his corner. My sister tries and complains, but feels like it is on deaf ears. Every visit though it is a stand off over his pain relief. Everyone else in the ward is of the older generation, so he doesn't really have anything in common or anyone to talk to.
Visitors are never there when the Dr comes to ask questions.
What are we to do! I want to go down at the weekend, but now have a cold (run down for caring for averyone else and worrying about him) I don't want to kick off too much, in case his care deteriorates further.
Need help, don't know what to do.
0 likes, 13 replies
jane73671 lola123
Posted
lola123 jane73671
Posted
Thank you. I've got My aunt (the pit bull) to go up tomorrow to see for herself. She is going to put the balls in motion. Half my family don't speak to the other, so both halves are probably thinking the other half would have already complained. I'm the go between, so I've dictated they both have to complain. My friend has suggested contacted PALS, my aunt is popping in there after, so she get them involved also. Once she has her teeth into something, she ain't going to stop.
I myself was in the same hospital and had the best care ever. Lucky dip by the sounds of it.
jane73671 lola123
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lola123 jane73671
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jane73671 lola123
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lola123 jane73671
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jane73671 lola123
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sana_82089 lola123
Posted
I agree with Jane, keep them chased and I am sorry about your bro hope he recover soon. I know it's not easy but it will get better
lola123 sana_82089
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Thank you. I'm Getting everyone on to it.
LucyB53 lola123
Posted
My heart goes out to you and your brother.  Know that the group here is saying a prayer for your situation.  Please keep us abreast of how  your situation fairs.
Lucy
barbs55 lola123
Posted
Sorry to hear this terrible story. I don't know where you are but most hospitals in the UK have a PALS service The Patient Advice and Liaison Service (PALS) offers confidential advice, support and information on health-related matters. They provide a point of contact for patients, their families and their carers. There is a link to find the one for your brother's hospital here http://www.nhs.uk/Service-Search/Patient-advice-and-liaison-services-(PALS)/LocationSearch/363
I really hope you get the support you need very soon.
jacqueline01135 lola123
Posted
Hello Lola, your brother's situation is by no means a ""one off ""
If you contact PALS,, you are going down the best road ,They will persue
it as far as you want to go .I have used them , and they do get results.
the word is out ,that you have to shout loud (figuratively ) speaking .to get
results.
lola123 jacqueline01135
Posted
Hopefully will see a change.
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