Help with managing the pain associated with Achalasia
Posted , 17 users are following.
Hi, I'm a 41 year old mum of 4 who lives in Jersey Channel Islands and have had Achalasia for 17 years now, (I have had a balloon dilatation and botox 3 times) to manage the pain that comes with the condition I drink warm water which generally helps, but there are times when nothing I do stops the agony of the spasms (I do think of knocking myself out) which can last for hours anytime of the day or night until I end up being sick, I would be really grateful if anyone could suggest anything else that may help with the pain.
0 likes, 20 replies
paddie46788
Posted
Merryl
Posted
symptoms sutch as bringing up white frothy stuff, this brings on dry heaving for me. Food also sticks in my chest.
I am waiting for a Barium Swallow to find the cause of gagging/heaving Have you been offered an operation
I have lost over 2 stone since this began a year ago, but my weight is steady at the moment.
Tamar72
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Merryl
Posted
Thank you for your reply, I haven't been diagnosed with anything yet. I saw a speech and Language therapist yesterday and she said my swallowing is not a problem.The problem is food sticking in my chest..She said I need the Barium Swallow. I am hoping it is not Achalasia, It sounds very unpleasant.
I Have read about HM and the people on here who have had this operation said it seems to work well for most of them.
I wish you all the best if you choose to have the HM.
Best wishes
Merryl
LouLou21
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AlanJM
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Some people find taking buscopan is helpful.
There is a section on the OPA website (Oesophageal Patients Association) - go to oesophagus and then achalasia - with some notes from a meeting with Majid Hashemi, the surgeon at University College hospital in London, that may help.
It does sound as if you might need surgery - but it is important to have thorough diagnostic checks first rather than repeating procedures that may not work for long. And one must not jump to conclusions about the best thing to do before you have been seen by the excperts.
Merryl
Posted
Could you tell me how Buscopan helps this condition
Regards
Merryl
AlanJM
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ellis_emmerson
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I had chronic pain post hellors op for years. I took all sorts of painkillers but got sick of them as none was totally effective..my pain was in chest and across diaphragm area....I had a course of acupuncture which was fab and did reduce pain to a lower level....Ihe only thing that I always fell back on was my TENS machine, it seemed to distract the pain to the stimulated area. Ift was most effective if I used it regularly.....I feel for anybody suffering pain.i had it for four years daily......I reach for TENS if it flares up now.
saxman
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Bobby from Florida, U S A
1blindmice saxman
Posted
Because achalasia is caused by the LES not working and it practically has to be "broken" to help you in any way and I don't think you should stick anything 7 inches down you throat and not worry about a perforation of the esophagus that will quickly kill you if not treated asap. That's what pnumatic dillations and the other procedures have a barium swallow right after and surgeons on stand by.
AlanJM
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The aim surely has to be for expert diagnosis and the best treatment option first time round, if possible?
cm123 Tamar72
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clinton69 Tamar72
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Im a 33 year old man and have had achalasia for at least the last 6 years although it was only diagnosed in 2011 i had a few different tests like the one's you have all taked aboutt and then have the balloon dilation done this helped me loads at the time of my operation i weighted just 60kg (just over 9 stone) the most terrible time of my life, im now back to around 13stone but since the operation i struggle to now even lose any weight,
i take 20mg Omeprazole tablets that i take eveyday - it hasnt stopped the pain but they do help.
Pasha333 Tamar72
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Pasha333
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