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Help with Parents and Sports Physician

Posted , 4 users are following.

Guest
Guest

Hello,

I am 19 and have been recently diagnosed with fibromyalgia. Among other symptoms, I have been struggling to walk due to severe leg and knee pain, accompanied by tingling and numbness. At my last appointment with my sports physician, he told me I am no longer allowed to use my walker, as I will not cause any damage to my body without it and he also wants me to walk more.

As a result, my parents have taken my walker, which I paid for myself, away from me and I am struggling to do basic tasks. Walking without a mobility aid is extremely painful and as a result I have lost my job, am unable to leave the house and am not getting the exercise I need. If I still had my walker, I would be able to go out, get a job and get the exercise I need.

Does anyone have advice on how to get my parents to listen to me?

0 likes, 6 replies

6 Replies

  • Meh1305
    Meh1305 Guest

    Posted

    Hi there!

    I'm sorry to hear you're suffering and in pain. I would advice seeing a different doctor or physician. Ask for a second opinion on his advice.... Surely your parents can see how much pain you're in and how much you're struggling to do you're daily tasks without it?

    I really hope you get something sorted soon! I just lost my job too! I know how you feel. Hang in there!

    Take care xx

    • Guest
      Guest Meh1305

      Posted

      Thank you for your reply!

      I am going to ask for a refferal to a rheumatologist at my local hospital who specialises in fibro, so hopefully that will help and I am planning on talking to my parents about my walker, but I doubt they will listen to me because they have always taken a doctors words over mine.

  • jeanne81532
    jeanne81532 Guest

    Posted

    Hi there, clearly your sports physician doesn't understand fibro! Could the person who diagnosed you speak to your parents? I use a crutch when I go out, and sometimes two, and like you, couldn't go out without them. Do your parents not see what is happening to you without your mobility aid? Do you live with them? If not, perhaps they don't realise how much you are struggling, and if this is the case, then I suggest you sit down with them and explain how your life has changed since they took the walker away. Good luck, gentle hugs xx

    • Guest
      Guest jeanne81532

      Posted

      Thank you for your reply, its reassuring to hear that other people with fibromyalgia need mobility aids as well.

      I live with my parents and I am planning on talking to them to explain how I feel. I am also going to ask for a refferal to a rheumatologist who specialises in fibro, so hopefully that will help the situation.

  • ihavenonickname
    ihavenonickname Guest

    Posted

    Warm hug....once a child reaches their majority and completely supports themself and lives on their own, the active job of parenting a child needs to retire.

  • bronwyn97278
    bronwyn97278 Guest

    Posted

    Hi AutumnRaine:  I am Very sorry that your physio and parents have caused you this issue. Firstly, I agree with the comment re "your physio not understanding Fibro,"; as difficulty walking is a BIG issue for many of us. Secondly, as a 19 year-old, what/why do your parents "decide" what you can and can't do?  Even if you live with them, and supposedly pay them rent (or did when you were able to work), how can they "tell" you what to do?

    ?Yes, find yourself a Good Rhuematologist who really understands Fibro, and ask either one of/both to come with you, and Listen to the Many symptoms that we suffer from, and get advice given on how to cope.  Perhaps if they were to read some / all the comments put on here from other Fibro sufferers about how we cope, this may also help them to  understand??? .  Many of us have had many problems trying to "get the message across to family" re what our symptoms are like, as we LOOK well.  I am imaging that your Physio and family are concerned that you will lose Muscle by using an aid to walk with, but this has not happened to us others. Yes, I do SMALL leg exercises to keep muscle (eg leg raises while lying in bed, or using a chair/bench to lean against; any stretching of leg muscles etc). The same applies for arms/back etc,; but do still need to use aids at times (especially if doing a lot of walking).  The other reason I NEED an aid, is that this Auto-immune disease is now  Attacking my Inner Ears (the Horizontal tube between ears) and Re-arranging the Crystal Salts , which is causing me Much Dizziness, and have had falls, hurting my arm/broken my elbow, had a Tendonites which needed surgical repair, etc.  None of you would want this to happen to you, so this is also a reason to use something to Support you.

    ?I do hope that you can sort this out, as it seems an extra Stressor, which is NOT good for any Fibro sufferer.          Please let us know how you get on?                   Many hugs and thoughts fo r you,  Bron

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