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Hemiplegic migraine

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Kasper77
Kasper77

Hi i have been recently diagnosed with hemiplegic migranes. I had my first attack at age 25. Before this i had migraine as a teenager and vertigo as a child. I have been sick for so many years and during this time I was diagnosed with stroke,TIA and also ive been treated as if i was crazy or faking my symptoms. Often it seems when a doctor can't figure out what is wrong with you their ego causes them to blame the patient. I have also just recently been found to have a pfo, which is a whole in the heart. So its very difficult to know am I having a migraine or a stroke. I have very strange auors with these migraines. I cant think i feel like i am pushing through a force field when trying to talk ,its actually painful. It feels as if gravity is pushing down on me causing weakness an paralysis. Can anyone relate.

0 likes, 3 replies

3 Replies

  • margaret22116
    margaret22116 Kasper77

    Posted

    Yes I so can relate to you. I have an auto immune disorder diagnosed 12 years ago. I have a form of vasculitis. I was ill since childhood with periods of remission.

    I have such extreme aura and a lot of symptoms. There was no understanding of my condition until I finally developed joint pain and went to see a rheumatologist. From there I was diagnosed. It was a hard road to travel. I was around 40 by the time I was diagnosed. The aura was very extreme. Tests showed nothing and I was treated like I was crazy....hysterical pr both!

  • margaret22116
    margaret22116 Kasper77

    Posted

    Kasper with all this going on I think there is something similar causing your problems here. When I was little they thought I had a hole in my heart too. It tuned out I didn't but I had heart murmur and various problems caused by vasculitis which can attack your internal organs and ultimately cause tia or stroke.

    I used to wake up with stroke like symptoms. My illness 'mimics' stroke. It can actually cause stroke though thank god I have never had one.

    I currently see a vasculitis specialist in Cambridge UK and am currently symptom free. 😊

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