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Henoch-Schonlein purpura in adults

Posted , 5 users are following.

decrimor
decrimor

Hello.

I have had a rash on my lower legs for around 3 weeks and my GP or hospital cannot diagnose what it is.

I had HSP when I was 3 years old but the doctors are sure that the condition is so uncommon in adults (I am now 35) that It would ne unusual to get it twice so far apart.

Anyone else had HSP more than once.

0 likes, 8 replies

8 Replies

  • mrsmop
    mrsmop decrimor

    Posted

    I had to look up HSP and found this:  Henoch-Schönlein purpura, which is, I assume, what you are talking about.

    Have you recovered now?  It says that it often goes away without treatment but, it also said it is a result of the autoimmune system not working properly.  I wondered how you are now and whether you have developed an autoimmune condition of some sort?

    Hope all is well

     

  • karen1737
    karen1737 decrimor

    Posted

    Hi,

    Not sure if you'll see this or not. I've had it off and on for about 12 years.

    I've gone as long as five years without it before.

    -Karen

  • karen1737
    karen1737 decrimor

    Posted

    I began having flare ups in my early 30's. I haven't had one for about five years until a few months ago. It's only now tapering off.

    It is uncommon in adults, but you should find a new doctor who is willing to investigate and make sure you don't have kidney issues.

    Take care.

  • barber883
    barber883 decrimor

    Posted

    I first got it last year as a adult 48     it is something ur stuck with my docs tell me   can come and go. Mine got to far progessed before they knew what it was. it took heavy steriods and chemo drugs to get it under control.
  • Magstah
    Magstah decrimor

    Posted

    Hi

    I am a 59yr old woman literally just diagnosed today with HSP. Has anyone controlled the symptoms through changing their diet? Can anyone recommend cream for the rash? I currrently don't want to think about taking tablets, but would like to find out all I can about this condition.

    I currently seem to have a mild version which has appeared as a rash on my legs and buttocks, and has apparently caused a rectal thrombosed pile. Not a great topic for discussion I guess, but has anyone else had rectal problems?

    Thanks!

    • barber883
      barber883 Magstah

      Posted

      yes I got to the point where I had a lot of bleeding amd it was due to the part of lower intestine to where it conected on to the collin.  The chemo drugs help clear it up along with the steriods
    • Magstah
      Magstah barber883

      Posted

      Hi

      thanks for the reply. I think part of my problem is going to be that i have had cancer and I did not react well to chemo drugs! Every time I had chemo I had to stay in hospital for about a week as I was constantly throwing up. I can't function on chemo drugs and refused Tamoxifen once I'd finished chemo and radio due to the side effects. I am currently in remission cancer wise, but can't imagine a life taking chemo drugs. Good to hear they help you though!

  • wendy92629
    wendy92629 decrimor

    Posted

    I think it is possible. Have you had any major upsets recently? During your childhood how was your health generally? did you suffer from low immune system lots of colds, sore throats, joint pains, urine problems, or anything like that? can anything you might of considered normal be linked I wonder. Please have a good think about this. Do you suffer from fatigue? interested further in your story thanks
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