Hidradenitis Suppurativa victim :'(

Hello, I have recently been diagnosed with HS and I have exactly the same as what you described.  I started with it when I was a teenager too but the doctors and hospitals didn't know what it was.  I also had tetrayline for over a year and it didn't work, I am now on doyxyclcine too and had to wait more than 3 months for them to kick in, I don't know about you but when I get them it hurts to work so it's best to get rid of them if possible.  I would keep on the tablets and use bio oil to try and get rid of the scars.  No one has mentioned plastic surgery to me to get rid of all my scars, how did it go, did it work and was it painful?

I understand I have had this for 26years my previous GP had no idea what it was sent me for blood work nothin he then sent me to a specialist a dermatologist who looked at it for maybe and I mean maybe 2 seconds and said its just acne just use acne soap and walked out this was years ago when it could have been helped or even gotten rid of it for good but now I have a new GP who is sending me to an other dermatologist hoping this one will even try to help me I have had to do all the research to find out what was wrong with me now that it has spread starting at the groin then arm pits to under my breast to now my hair line on my face and neck I almost always have one flared up and even once one in my arm pit got so bad I got blood poisoning lost feeling in my whole arm had to go to emergency to have it cut open so infection could start draining it has been a very long painful existence for my entire adult life now almost 44 I will still have to wait 6 months to a year to even see this next dermatologist whom I hope and pray that will even try and help me this chronic disease has affected every aspect of my life as well as my mental well being do what ever it takes to take care of this issue ASAP before it gets as bad as my cumstances have become and the best of luck to you and all others suffering with HS to be properly diagnosed and treated

Hello, I've been reading these posts with interest, although I don't have the condition myself.I was wondering -  if you have tried everything, and nothing seems to help, have you considered alternative therapies? I was thinking of homeopathy. I was treated for a condition, and it did work - at the time, like you, I'd been to every doctor, and had every pill, but at that point if someone had told me to run round a tree naked at full moon, to effect a cure, I would have done it!

You have nothing to lose, and if it could even just lessen your symptoms, it might bring you some relief. Hope you don't think me intrusive, it's a long shot, but it might help.

Hi, that's exactly how I was diagnosed! I printed everything on HS out and brought it to my doctor. I had surgery on both armpits and on both panty lines on Thurday. It was a plastic surgeon in NY who did it. The only one I could find here who was familiar with HS and has done surgery on it in the past. I have stitches now, but he missed one on my panty line! I have no clue how he missed it, it was clearly circled with magic marker. I'm seeing him on Monday for a follow up. As painful as the surgery was, I'm hoping that at least the one really bad one that I had on my left panty line will be gone for good. That was huge, painful and always draining something. It also had visible tracks that actually looked like train tracks. I'm worried about what the scars will look like, but it's got to be better than that. I'll post as I go along and let you know my results.