Hidradenitis Suppurativa: You Can Have your Life Back!

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Hi. My name is Catherine and I have been suffering with HS for over 23 years. They first started out as red bumps in the vaginal area. After repeated infections my doctor surgically removed the tissue. That didn't work. The lesions started appearing in the same location but on the opposite side. My physician didn't know what these bumps were and in 2009 he sent me to a dermatologist. She took one look and told me instantly that I had hidradenits suppurativa. I was in shock. I read up on everything I could find. I was put on doxycycline for the next 4 years and was miserable. The anti-biotic would cause me to have yeast problems and subsequently I was put on diflucan to deal with the yeast. It was a never ending problem. Now my red bumps were rupturing and weeping. This was new for me.

I went online to read as much as I could about HS. I read medical information and blogs. It was highly informative. There was a commonality of humiliation and pain, depression and the desire to feel normal. One entry caught my attention. It was about a woman who had suffered from HS and finally went to a Naturopath. He gave her two food sensitivity tests,an IgE and an IeE. She found out what foods she was allergic to and immediately removed them from her diet. She is now HS free.

I couldn't afford to go see a Naturopath and so I decided to start on a diet of protein (chicken) and salad (basic lettuce,cucumbers with olive oil and vinegar), vegetables such as green beans, squash, carrots, english peas,broccoli, cauliflower. I removed eggs, dairy, gluten which is in bread and a myriad of foods which include flour. I also removed Nightshade veggies and fruits.

Once I was stable ...which took about a week, I added eggs. I had no flares. That food was safe. I then added dairy products, again no flares. I added beef and fish with no problems. I was anxious about adding flour/gluten back into my diet as I was sure that this was the food group that I was sensitive to. However, after introducing gluten back into my diet there were no flares. That left me with only one group to test and that was the Nightshade veggies and fruits. This group includes: white potatoes, tomatoes, peppers including paprika (not white or black pepper), gooseberries and goji berries. These foods have alkaloids in them to fight off bugs. Interesting?

So, I added foods from this group into my diet and ....I FLARED!! I finally had the information that I needed. I immediately went through my pantry and removed any and everything with red pepper, tomatoes,and paprika. Paprika is everywhere. It is in hot dogs, mayonnaise, mustard and seasonings. If you eat processed foods...beware as it is in everything. I learned to read all the labels of everything at the grocery store and even double check it once it was in my pantry.

I am in remission and I intend to stay there.My lesions are flat. All that exists are scars and I can live with that.

I am certain that HS is the body's response to a food that the body is allergic to. It is not due to "not being clean enough" or due to being overweight. It will only respond to antibiotics for a short term and then those fail to work. Topicals don't work either. I do believe that once HS comes into your life, it takes over everything that you love. I was a victim to this disease for too many years. I have now, taken back my life. You can change your diet and be free. I recommend that if you decide to find out what foods you may be allergic to in order to be free from this disease that you consider incorporating these supplements: turmeric (wonderful anti-inflammatory), zinc, vitamin c, a probiotic, and green tea for itching It is a natural anti-histamine.

I hope you find this helpful. God Bless You

34 likes, 68 replies

68 Replies

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  • Posted

    Hi Catherine...great that you had remission.I wanted to know if you are still continuing to be in remission?
  • Posted

    Hi catherine ,your post just chnage my life,after 5 day without alkaloids im in remission,like a miracle.

    Thx you so much and im working to spread the information

    wish you luck

    peace and love from canada

  • Posted

    Very interesting reading thank u
  • Posted

    Hey i am suffering from hs really bad I would like to talk to you so please comment if you can
    • Posted

      Yes i am i cry every night like now i have one n i can barely walk i gotta constantly miss School (college) because of this the medicine is not working i just want surgery done because nothing seems to work i just want m life back
  • Posted

    I have just posted up a discussion and this thread has really intrigued me.. Think it's time to go through my cupboards ;-) 
  • Posted

    Catherine thank you so much for helping my wife and family of 5. My wife is 31 and has delt with this condition since 17 yrs old, probably thinking and feeling she was disgusting "what a horrible feeling for such a beautiful, well put together woman" I can not express enough gratitude with you sharing such a tragic story. We "mostly her" will go to sleep tonight feeling like there is hope, again THANK YOU so much for being such a strong person sharing your story. Again time and time again i have felt only like a number not like a human of god and you now inspire us to write back we want to know if you are still in remission and are looking for your best advise. We are going soon as possible to purchase TUMERIC to start the healing process. I owe you more than you could emagine, again we thank and luv the info... Be strong Live Well... TTYL
  • Posted

    I think it's fantastic the amount of self-researched information online about HS and potential remedies. I also think it's disgraceful how sufferers are left to sort it out themselves. I've only been diagnosed recently and have only really been having problems for about 18 months, which is nothing compared to many others stories I've read on here. I'm going to try going to a Naturopath but I suspect most of us suffer for the same reasons, and that is an allergy to nightshade vegetables and fruits as catherine aluded to. I may try cutting out these first before paying a fortune to a "professional". I was also shocked to find that a HS charity only had £4k in donations last year. Surely there's more that could be done, it may be the most simple of triggers. Thanks for your story Catherine, it is very brave of you as it is a terrible, embarrassing disease that really deserves more funding and research.
    • Posted

      I'm curious to hear if you did cut out the nightshade vegetables and if so how your HS symptoms were effected?

  • Posted

    Hi Catherine, 

    This post is so inspirational!  I too have been thinking about gluten free as a treatment option.  How are you feeling now?

    Thanks for sharing! 

  • Posted

    I have also had HS for years. Tried skin antibiotics, steroid shots, laser hair removal, surgery and even autoimmune drugs... spent lots of money and cried myself to sleep. 3 months ago, after reading this and another blog about nightshades and HS, I cut them out. I too, am in remission! Praise God! The first two months of trying to eat nightshade free, the cysts I had would open up every few days. They would not grow larger nor would I get new ones... just the old ones would open up and have a raw spot which was much better that more cysts and inflammation but I wondered why this was happening? After 2 months of my no nightshade diet, I read the ingredients on shredded cheese (which I probably ate at least 2 meals a day). Shredded cheese contains POTATO starch! Aackk! Who would have thought? It keeps the cheese from sticking together! After buying block cheese and shredding my own, I have not had any cysts for the past month! My cysts are no longer coming out or opening up! No inflammation!  Thank you for sharing this life changing article! I went bike riding with my family last week for the first time in YEARS! THANK YOU!
    • Posted

      Awesome!!! I want to go bike riding for so long time!!! Super happy for you and looking forward to changing my diet!
    • Posted

      I'm curious to hear if you are still in remission after changing your diet? I've tried so many things and nothing works. I'm skeptical but hopeful that you've continued to be HS free.

  • Posted

    Interesting read!

    I'm currently on a gluten and dairy free diet due to digestion problems mainly but I am intrigued to try this to see if it helps with the HS.

    Thank-you

  • Posted

    Wow...that was very informative Catherine...I have been suffering from HS going on 30 years.. just got diagnosed with this last year! Due to the shame and pain I only brought it to a few doctors attention.. Until last year when my new doctor happened to see another outbreak I was having at the time says oh yea that's HS. She gave me some paperwork on it...My goodness all this time I honestly thought I was a freak and nobody could understand what I was going through emotionally,physically, mentally not to mention my self esteem, it was a never ending nightmare.I have been reading, studying, and learning ever since.My goodness what a relief it was to know other people actually did know how I was feeling inside.They could relate.That was a gift all in itself...but anyway thanks for sharing your story.It makes sense and I will definitely look into your theory!!...Thank so much and God bless you!!!
    • Posted

      I have also  just replied to Catherines post and like you have had this complaint for years (over 40!)Without diagnonis. Are there any things through the national health that has helped you since your dianosis?

      Please read my full post on Catherines page.

    • Posted

      For some reason I just found your post...don't know why I didn't see it before.I apologize for the late response. To answer your question.. I am still experimenting with different things...have found that cutting out the night shades veg...have helped ..but saving for a food allergy test...I think that's my best route at this time.

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