Posted , 3 users are following.
I'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramapril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic idiology (excuse the spelling) This focuses on strict diet control, with taking 100percetate herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time. A
1 like, 3 replies
caitlin16
Posted
apbaron
Posted
Signs began to appear as her blood pressure increased, headaches became common, dramatic weight loss occurred, and fatigue came on. This all began to make sense as doctors looked back at the old records from when she had HSP. From there, they determined that her kidney's were severely damaged and was diagnosed as HSP with Stage 4 Kidney Disease.
About a week ago, an HSP flare up came on with severe stomach pains and her renal doctor sent her to to the ER where they basically had no idea what was going on for two days thinking initially she just had a bad UTI. They helped her manage the pain and kept her for 4 days. They also found something abnormal with her colon and have her coming back in a few days for a colonoscopy.
As a past smoker, I mentioned the benefits to her but don't think she's completely convinced.
@CAITLIN: Would greatly appreciate if you could elaborate on this further so I can show her and talk to her doctor about it.
@Beaty: You mention you were at stage 3/4 last year. My wife was diagnosed in may 2013 at stage 4 (16% function) and maintained this up until this last flare up. It appears function has decreased further and they may have us take steps to proceed with the transplant. It scares me because while of course I'm going to give her my kidney without question, what happens when she has another flare up? I'd be curious to know if the donated kidney in other kidney recipients with HSP last as long as those without HSP?
As you know, there's just not a lot of info out there! Frustrated...
apbaron
Posted
Join this discussion or start a new one?
New discussion Reply