Hypothyroidism?
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I could do with some help if anyone is willing to read this very long post!
I'm a 22 year old woman. The last year or so I've had fairly manageable fatigue which I never thought a lot of, but in the last few months it's become awful to the point that I can barely get out of bed in the morning, take at least one day off from work a week (despite loving my job) and tell myself I'll work at home but end up in bed all day. The days I do go in I'm often in well after 9, and generally have to head home around 3 or 4 beacuse I'm so exhausted. It's like I have a fog in my brain which makes it hard to concentrate on anything from work to conversations to films, and my short term memory is poor. I only recently found out this can be a symptom of an underactive thyroid, and I wouldn't be convinced they were linked... except that my nan, mum, both maternal aunts and my younger sister all suffer from it.
I haven't had any weight gain which I know is another common symptom but my sister has quite severe hypothyroidism and has never suffered from weight gain. I do have bad muscle/joint pain and stiffness, various mental and emotional issues to do with anxiety and depression, cold extremities, breathlessness, poor coordination, hoarse voice, swollen tongue, post-nasal drip, and dry patches of skin. I am very prone to UTIs, thrush, sore throats, headaches, and constipation. I know that these are symptoms "normal" people get all the time, but hypothyroidism is the only thing I've found that links everything I've ever thought was abnormal about me. My diet is very good and I walk fast enough to build up a sweat for an hour a day to get to and from work.
My doctor is reluctant to diagnose me with this beacuse my hormone levels are within normal range, which I understand, but she's also unwilling to discuss my symptoms and keeps sending me for more blood tests. This week I'm getting my white blood cell count checked as she thinks it could be viral because my CRP level was high - it seems unlikely to me that it would have been going on for so long if it was, but I'm no doctor. I'm also getting my Vitamin D done again as the lab forgot it last time. I'm completely open to the possibility of it not being hypothyroid, but it's the only thing I've found while researching that fits, and with every woman on my mum's side having it it does seem likely.
So my questions are: do I sound like I fit the bill? If so, how can I convince my doctor? If not, any ideas - literally anything - as to what it could be? Thank you so much to anyone who took the time to read all that, absolutely any information would be so helpful.
Blood test results for the last month, and how they were "graded":
Serum TSH: 2.2miu/L (normal)
Serum FT3: 5.8pmo/L (satisfactory)
Serum FT4: 19.2pmol/L (satisfactory)
Glucose: 2.7mmol/L (low, but I hadn't eaten before this test)
Coeliac: Negative
Liver function: Normal (can give breakdown)
Full blood count: Normal (can give breakdown)
Ferritin: 17ug/L (satisfactory)
C reactive protein: 9mg/L (high)
B12: 216ng/L (normal)
Urea and electrolytes: Normal (can give breakdown)
1 like, 33 replies
Scazzoh alice79312
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dave64969 alice79312
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alice79312
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Ranges were:
TSH: 2.2 miu/L (0.35-4.5)
Free T3: 5.8pmol/L (3.9-6.8)
Free T4: 19.2pmol/L (10.5-26.0)
I think my main issue at the moment is getting her to listen to my symptoms, which going from family experience is hard unless you get a sympathetic GP. She does know about my family history which is why I've assumed she must genuinely think it's something else - something viral at the moment as she wants a white cell count to go along with my elevated CRP (despite my white cell count being normal last time). If she keeps not taking my symptoms into account I will take your advice and find another doctor. I didn't know that it was possible to have a trial run of levo if you had symptoms, that's really good to know.
Thank you both so much for your advice
Cwhite1 alice79312
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alice79312 Cwhite1
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LAHs alice79312
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The words "normal" and "satisfactory" are just someone's opinion.
LAHs
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shellyC19 alice79312
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My name is Shelly and I am a nurse in the USA. I have Hashimoto's thyroid disease since 1987. Hashimoto's is a sneaky disease since it can sometimes produce normal levels in people while a person may have symptoms of it. It also can take years for it to become worse and things pop up at different times in your life.
Having infections is important to note: Many years ago I would get sick easily with similar to your description above. I also had symptoms at different times of my life and I can remember at about 12 years of age having constiaption problems. Later other symptoms came like feeling tired, brusies, feeling cold, low energy, etc...
All of what you say matches up with low thyroid (HYPOTHYROIDISM), but you need a TPOA antibodies test. You can have a so called normal TSH and still have it underlying.
I would ask for you to ask your GP, to refer you to an Endocrinologist. Many GP's are good but do not really know all that much about the stages of thyroid problems. You also should log your symptoms and create a time line on paper to when you noticed first symptoms and log it out and hand a copy to the Endo. Thyroid disease can be a family trait. My Aunt had it, my sister and I have it, and it skipped my father.
I really would push for an Endocrinologist and or ask your GP to run more advanced blood work on you, such as Sedimentation rate, TPOA tests, Thyroglobulin Antibody test, Reverse T3 test.
I hope this helps, Any questions you can PM me or ask here.
Shelly
alice79312 shellyC19
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I spoke to my GP today and she's happy to do a TPO antibody test on Thursday along with redoing my neutrophil count as that's a bit low, so hopefully when that comes back in a week I can get some answers. If not I'll do as you said and speak to an endocrinologist. I've started keeping a diary of symptoms and diet. In the mean time I'm going to start taking vitamin supplements that could help if I do have hypothyroidism, and if they do I might have some more evidence.
Thank you again for your advice, and for believing me; it's very frustrating not being listened to when I know something isn't right.
shellyC19 alice79312
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Yes, in some people who get Hypothyroidism, it can come from other problems in the family line and not be Hashimoto's. It is wise to test for it and by doing the antibodies test we can more or less rule it out.
Also ask your GP to check you for Lupus, which can cause a problem with your immune system and it makes you easily susceptible to infections and causes muscle aches and pains along with fatigue and a rash or redness area on face, and more.
Regards, keep us posted on how you do,
Shelly
alice79312 shellyC19
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shellyC19 alice79312
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Your welcome , and keep us posted, we care how you are doing.
Shelly
liz63278 alice79312
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I would definitely get your Vitamin D levels checked. I was diagnosed with hypothyroid about 6 weeks ago, and having discussed my symptoms with a friend who was feeling much the same as me (and what you describe) she decided to get her thyroid checked too. Her GP also did Vit D levels. It turned out she had very low Vit D, but normal thyroid. It may be the same for you?
Good Luck!
alice79312 liz63278
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barbara98940 alice79312
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barbara98940
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alice79312 barbara98940
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barbara98940 alice79312
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alice79312 barbara98940
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