Hypothyroidism and fibromyalgia
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I have been taking levothyroxine for about 2 years and since then have developed painful muscles and joints. I have seen an endocrinologist, who added Vit D, and a rheumatologist who diagnosed fibromyalgia. I don't really want to accept the fibromyalgia diagnosis, and can't help wondering whether the pain and exhaustion I feel is due to hypothyroidism - or the treatment! My GP is totally unsympathetic. I feel I'm just a nuisance to him. Any advice, please?
0 likes, 20 replies
denisemoore susan18765
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denisemoore
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melody93815 susan18765
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susan18765 melody93815
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LAHs susan18765
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You could try a different brand of Levo if your doctor doesn't understand endocrinology. I would advise get off Levo, get on to a different drug like NDT Armour or Barbara's Thyro Gold and you will probably have to change doctors. We all have to keep doctor shopping as unpleasent as that sounds but you probably only have to go there once a year to get your prescription. My current thyroid doc is 200 miles away and I go once a year for a year's prescription.
denisemoore LAHs
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LAHs denisemoore
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My doctor is in California and I suspect that you are in England. If you are in the US then Kaiser Hospital will prescribe NDTs - although not all of their docs will.
For what it is worth, my dose is minimal (1 and 1/4 grains) and when I wake up in the morning my legs are stiffer than normal and it hurts to walk. I go to the bathroom about 6:30am (when I awake), I then take my NDT and go back to bed for 1/2 to 1 hour. The next time I get up (for breakfast and the day) the pill has kicked in and there is no pain anywhere.
My basic answer to your last question is, yes, you are probably undermedicated. Docs try and keep it to a minimum for good reasons but they don't have the time to fine tune your dose, this seems to be up to us.
denisemoore LAHs
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denisemoore LAHs
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denisemoore
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LAHs denisemoore
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I am sorry that this is probably not the answer you want, it is far from a perfect system even for the people who can pay thousands of dollars in a private system.
loueh susan18765
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LayneTX susan18765
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As for your pains, have you heard of Bowen technique? I wonder if it would help Fibromyalgia people. Look it up. It's a gentle kind of get your energy in your central nervous system going type of manipulation. Really hard to explain. It's the most relaxed I've ever been in my entire life. Helped my back aches. I have Polymyalgia so not much helps those pains.
take care.
Tutu123 susan18765
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I'm hoping to come off meds completely (they think I was misdiagnosed), but if I can't I will definitely look into NDT as an alternative. I've heard so many people have improved symptoms by taking natural hormones instead of levothyroxine
shellyC19 susan18765
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My name is Shelly and I am a nurse in the USA. I have Hashimoto's thyroid disease since 1987.
Once your Vit D level is good, your muscles will feel better if it was from that. make sure your Magnesium level is good too. Vitamin D can be low in people with thyroid disease.
Sometimes our body does not absorb, the thyroxine well from a synthetic thyroid med. It may be due to the way it is made and fillers in it, or your thyroid gland and the damage to it.
Many of us can't take Levo, and I tried every medication ever made, but finally found the one that works on me. I am only on Liothyronine. There are Natural ones like Armour Thyroid, Thyroid S and Thyroid W, and other synthetic ones, like Liotrix, Liothyronine. The trick is being able to try them and having a doctor who can prescribe it.
If you are in the UK, it is hard to get Natural ones, because the med is not on patent. You can find it online and without a prescription. I heard that certain people can get other meds like liothyronine via NHS.
If in the USA, please ask your doctor for a different med. You need to see if a different one helps.
Fibromyalgia is a fancy word for muscle pain, and all they can do is treat the symptoms but I agree it may very well be your thyroid, and the LEVO is not working well enough on you.
Keep us posted on how you do,
Shelly
susan18765 shellyC19
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Tutu123 susan18765
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susan18765 Tutu123
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shellyC19 susan18765
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This is very sad that UK does not support NDT. It is a fine medication and around way before Levo ever was.
You can buy it off the internet and many people do (i know a few ladies who are doing that), and I hear without a prescription. Since certain meds are considered "Biologicals" like insulin is for a Diabetic, they have to make it available without a prescription. In the USA you can go into a Walmart and buy insulin without a prescription.
So get it off the internet and see. If you wish you may want to see about a GP with a better bedside manner/attitude. Your GP is basing his decision on what NHS wants and that is LEVO. However your body may not agree.
Your health is important and you need to do what you have to. It is a good idea to get the blood and then you will know for sure.
Keep us posted on how you do,
Shelly
susan18765 shellyC19
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