i feel alone trying to live day by day with ms

Ms is such a difficult disease, the symptoms are so weird sometimes you feel like people cannot possibly understand. I am sorry you feel like this, try find a group near you or online chat. My mum had MS too but was only diagnosed after I developed it and pushed. It meant I could say mum do you get ........or I could say mum that's your ms. Unfortunately she died on Saturday after an operation. Look me up on fb if you'd like an online friend with ms and ask your Dr about support. Sending you love my fb is Lorraine Scarlet Heeney

Hi, I feel exactly the same, I was diagnosed a few months ago although I knew in February after being hospitalised, it was a shock to us all but my partner took 4 months of me nagging him to go online and look up MS, he did but doesn't like to talk about it, my parents are still in denial and although ask me how I am I feel I can't talk to them about it as not to scare them to death! They look at me with fear that I'm going to drop dead any moment 😁 I have an 18 year old daughter who as 18 year olds are lives in her bubble of her world and like my 10 year old son I don't want to burden them or scare them, that's it, so I sympathise looluv, what is your story 😀💐

It can be lonely even when you're surrounded by people. Sometimes, like today I hurt so bad but I keep going so I don't bother anyone. In my head though I feel as if I can't deal with this some days...why me? i won't give you the be strong speech because I don't want to hear it myself. Just be and look forward to the good days.

  I am sorfry you feel lonely.. its fairly common with MS.  There are various sites like this one where you can get support if  you don't live near an active MS group.  The MS Society has aver active group of internet forums you cZn explore,and get questions answered.

Remember that every care of MS is different, and you probably won't find someone with exactly the same symptoms as you.

Have you looked into joining a group? Sometimes you need to see people face to face. Online groups are great but we need to connect with folks that know what our problems are. A mental hug is good but sometimes we need that real shoulder to cry on. I cry in private so my family doesn't know how bad this is for me but I know it's time for me to join a group too.

Hi I have just recently been diagnosed, I am a 48 year old woman. I was hospitalised in February and only got a definite diagnoses in September. I have numbness in my legs and left hand, and cannot walk far, it is there all the time. But my only advice is to rest when you need, even if only for 10-15 mins. Don't allow yourself to be negative about this horrible illness, I thought my life as I know it had ended and that I would have no quality of life, all natural emotions to have.  I talk to myself lol and just give myself a pep talk when I feeling down as there is always someone worse off than me! Be positive and find ways to make things better, it is known that feeling down and depressed can make it worse. I  have just ordered 2 books Overcoming Multiple Sclerosis by Proffessor George Jelinek and Managing Multiplescerosis Naturally by Judy Graham. I have started watching everything that I eat and have found a small improvement I'm no longer as tired, my balance has got better it's now just the numb cold feeling in my legs I need to work on. My doctor gave me vitamin B compound for 6 months to try, I feel it has helped. I take the following: 

night and morning vitamin b compound, sunflower oil (1000mg) an iron tablet.  About 2pm I take an omega 3 capsule and a  glucosamine sulphate. I have a 13 year old daughter who is caught up in herself, but she does help when I ask. My partner is just a sweetheart he lets me rant on about all the things I find on the internet. Just try not to push people and loved ones away, it is difficult but you are not alone. Ok we may all not have the same symptoms but we can have the same emotions and can relate to each other. Please investigate MS, you can contact me if you need to talk. X .