I have been diagnoised with Endometriosis in the lung. ...
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I have been diagnoised with Endometriosis in the lung. I was wondering if any one else out their had this condition??? It's such a rare condition doctors dont know what to do...
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This is so rare that many doctors are not aware of it. When I talk to people especially women they have never heard of it. Some do not know what endometrosis is. I am living with this four years now. I am not cured. I still feel small amout of pain in my lungs and not sure if that is from the surgery. When I get am pregnant it may help the endometrosis fo the uterus but my lungs will still affect me. Having a period is not a plan for me at this time. To cope with it I pray alot and I do get support from friends and family and now ai have a husdand to help.
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Lanilove Guest
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Choco23 Guest
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Bless your heart, I read this with tears in my eyes. I'm sitting here in agony, but reading your story is making me tell myself "get a grip!"
i would like like to know how you've been, I see this was posted a year ago, can we get an update?
jabawaki7 Guest
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c18114 jabawaki7
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Hi. I just came across this site as I was researching endo. I have had 2 laparoscopic surgeries with Dr. Tamer Seckin in NYC. If your daughter still lives there, I would HIGHLY recommend she make an appointment with him. He is the founder of The Endometriosis Foundation of America and is one of the top researchers/surgeons in this field. I can't say enough wonderful things about Dr. Seckin -- he is simply phenomenal. I have a very long history with endo and infertility and Dr. Seckin changed everything for me. I got pregnant naturally twice (following laparoscopic surgeries) in my 40's (!!!) and now have 2 beautiful sons. Dr. Seckin is truly the best and anyone with endo who is seeking treatment and can get to NYC should meet with him. I wish your daughter the best of luck.
shiana89634 Guest
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Hi. I have endometriosis too. I have had a collapsed lung twice and maybe now again. I went to check up with my doctor and did a X-ray and I have mild fluid in one of my lungs. Doctor say mild pleural eddima in my lungs. I am scared again. He gave me medicine for two weeks and told me to also blow on a balloon. I am tired of all this. I am on three months injection so my period don't come. I thought I was good with the injection. Cause I also took a ultrasound to see if any endometriosis and none. So now what. I am totally tired of being poked with that chest tube. Cause it hurts when they put that in. I am so traumatized by that.
apple79612 shiana89634
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Yeah the injections didn't work for me either. Have you tried the endo diet? If not look into that. And if you really can't take it anymore speak to your doctor about getting pleurodesis surgery. It was a hard painful recovery but it worked for me, it stopped the fluid from getting in my lung.
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jojo1956 Guest
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carla75 jojo1956
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How are you ? I'm 40 and just had Full hysterectomy, all the tools went out ! I had/ have endo stage IV ,and it was all over my pelvic area including rib cage which they were not expecting. Just one question if you don't mind, how do you feel after your hysterectomy after all these years? Did endo come back? Hope not. Do you have any other symptoms?
Thank you
Carla
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steffanie55610 Guest
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