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I have had muscle pain and stiffness in my hips,groin, shoulders and knees

Posted , 4 users are following.

Gb98
Gb98

For the last three months I have had pain and stiffness in my joints/muscles reading some posts it has occurred to me it may be due to my under active thyroid for which I am on 150g of levothyroxine. 

2 likes, 18 replies

18 Replies

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  • barbara98940
    barbara98940 Gb98

    Posted

    Yes it could be. Mine was. I swapped to an NDT and it went away. The reason the NDT worked is because my body wasn't changing T4 to T3, so I was still getting underactive symptoms despite the blood tests showing I was in range or over-medicated with thyroxine.
    • barbara98940
      barbara98940

      Posted

      For info Natural Desiccated Thyroid contains T4, T3, T2, T1 and calcitonin. The reason it worked for me is that it contains T3 already.
    • barbara98940
      barbara98940 jean34329

      Posted

      T1& T2 are two more hormones produced by one's thyroid - though I have yet to find anyone who knows what they do!
    • LAHs
      LAHs jean34329

      Posted

      I have found one reference so far and it starts off:

      When T1 & T2 are out of balance…

      What are T cells and who cares if they are out of balance?[Wikipedia: Immune System]

      Wikipedia: Immune System  Well, T1 and T2 cells are part of the immune system.  Simply put, T1 cells are pro-inflammatory and T2 are anti-inflammatory.  When faced with a pathogenic attack, the body responds with a T1 response, which involves pro-inflammatory cytokines (communicators or signalling molecules), whose effects, along with other immune cells, allow the body to kill invading organisms.

      .......This is a reference from a Dr. Holly, you may want to Google it, I cannot send you the link, got told off!

      If I find more I will send it to you.It seems that it has something to do with the immune system.

    • barbara98940
      barbara98940 LAHs

      Posted

      So, my hypothesis that 'my thyroid disease has caused all my allergies and intolerances' has a sound basis and is no longer just me making a correlation between symptoms, blood results and allergic/intolerant reactions. Interesting. Thank you LARs!
    • LAHs
      LAHs barbara98940

      Posted

      Good point. Come to think of it when I was on T4 only (for 2 years) I had every cold and flu that came my way. I rarely got colds and flu. I put it down to my moving to a different area (of California!) but I have moved between England, Canada, New York and California and I never had such a continuous reaction to the local bugs. Yes, T1 and T2 linked to immune system sounds correct.
  • jean34329
    jean34329 Gb98

    Posted

    Possibly but I do not know. A lot of medication causes joint and muscle pain so have to be very careful when taking them if taking them is necessary that is!

    Big Pharma has a lot to answer for.

    Jean

  • LAHs
    LAHs Gb98

    Posted

    Like Barbara my joint/muscle pains were due to Levo but at 150 mcg you should be making enough T3 to cover this problem even if you are just a "feeble" converter - as I am. If you cannot convert Levo's T4 at all you will have this problem. Get your T3's measured and I would switch to an NDT ASAP and see what changes.
    • jean34329
      jean34329 LAHs

      Posted

      What helps with muscle and joint pains in Graves disease or fluctuating thyroiditis?

      What hope is there for me?

      Jean

    • barbara98940
      barbara98940 jean34329

      Posted

      Jean as your thyroid is fluctuating between under and over active, you may find Iit helpful to join the hyperthyroidism discussion as well.
    • Gb98
      Gb98 LAHs

      Posted

      Thank you, I am going to make an appointment today and ask for TSH, T3, T4, B12,, vit D, ferritin and folate blood tests as advised by members. Thank you to everyone who has replied
    • barbara98940
      barbara98940 LAHs

      Posted

      It may be that you are not only a poor converter of T4 to T3 but also have thyroid resistance. Look up reverse T3.
    • jean34329
      jean34329 barbara98940

      Posted

      Barbara

      I know I have asked about the reverse T3 before but please can you explain it's signifigance and why it is not routinely ordered by GP's, Endocrinologists etc. Can not doing all the relevant thyroid tests be responsible for drs missing the diagnosis. All this really scares me.

      Thanks in anticipation of your help.

      Kind regards

      Jean

  • jean34329
    jean34329 Gb98

    Posted

    Have you researched LCanitine?

    I understand this helps but obviously cannot asvise anyone to take it aa I am not a dr and also I do not have any personal experience of taking it.

    Jean

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