I have just had my fourth operation (FESS) removing nasa...
Posted , 5 users are following.
I have just had my fourth operation (FESS) removing nasal polyps. I first got them about 4 years ago, i was 20 years old, looking back it may have been caused by heavy smoking, also i was diagnosed with asthma after moving to london and also became allergic to cats and pollen, they all seemed to happen at the same time. Anyhow, my first polyps were bad, i could see them if i looked up my nose and every time they have recurred they get worse. Before my last op (2 days ago) i could see them in both nostrils, for a few years now i have suffered loss of smell(which to be honest i could live with if that was the only effect!) constantly blocked nose (like concrete!)headaches, sinus pain and spent a hell of a lot of money on tissues, sore throat and gums from mouth breathing. It is also extremely embarrassing, i feel depressed a lot of the time purely because it effects every part of your life, in fact it dominates it. i have tried Sinus wars which didn't help much, none of the sprays the doctors prescribed have worked, and so i am still researching. I am about to start a salicylate (aspirin) free diet to see if that slows the growth but we'll see. It is quite nice(in a horrible way!) to hear other peoples stories because it does seem like you are they only one suffering sometimes.
Oh well, we live in hope of a cure, good luck to you all
:roll:
[i:92ef876435]This message was automatically imported from the original Patient Experience[/i:92ef876435]
1 like, 10 replies
Guest
Posted
[i:09b5786f37]This message was automatically imported from the original Patient Experience[/i:09b5786f37]
sandra
Posted
Guest
Posted
In just four years 4 operations. That seems to be very much.
Try natural techniques. Leave smoking if you have not. Change your lifesytle if is required. What I mean to say is don't allow your body to go through this the next time.
Some of the natural remedies are Yoga(Breathing exercises), sinus rinse and Salicylate free diet.
I had sinus problems since 10 years. In 2004 I was diagnosed Nasal Polyps. I had surgery. Since then I am surviving with my will power.
Since I started doing those natural techniques some what seriously, it is helping a bit. I will try these for another six months.
After a month I contact my doctor, he said you are doing the right thing. My nasal polyps also have shrinken a bit.
Hope this information helps.
Thanks,
Srinivas
Guest
Posted
Best of luck. Don't wait for a cure. I tried everything to get rid of this polyp problem. Chiropractic, actupuncture, homeopatic, natural and modern medical. Keep trying.
AA
Guest
Posted
I am in US. Thanks for your reply. Good that I can Fungal Defense on-line.
As far as my polyps are concerned they are in control. The conditions of my polyps are not that bad. But my main concern is sense of smell and taste. I want to smell and taste like any other normal human being and at the same time I want to avoid my second surgery.
I am doing Salicylate Sensitivity(Aspirin free) diet. Looks like it is working a bit.
I will also start this Fungal Defense after talking to Doctor.
Do you know anything to overcome this burining issue of smell and taste?
Thanks for your reply. I would appreciate your quick response.
Srinvias
Guest
Posted
Although the pollyps have grown back and i have NO sense of smell at all. I havent had smell for a few years now. Sad sometimes, but at least i can see and hear. I have had one other polyp clearing by a different specialist which didnt work as well as the first.
I am also seeing an allergy specialist and i have just finished an asprin desensitisation and i had 2 asprin in water on the weekend!! I cant believe it. Previously taking asprin or naprogesic i would have been in a Hospital bed on a respirator. I havent felt much change in my athsma though. I thought i could smell something on saturday, maybe it was my imagination.
Im so amazed to see so many people here with the same problem.
As a little tip, i have found that excersise is really good for clearing everything out, also swimming in salt water works too. Although i am not that fit, it does work.
Best of luck finding a good specialist and getting those operations to get your polyps under control.
Guest
Posted
I'm sorry i didnt realise you had 4 operations! I must have skimmed your post. Sorry about that. After your ops, what are your meds like? Are you having prednislone (steroids), antibiotics and nasal sprays to keep the polyps at bay?
At this time, i can breath air into my lungs through my nose, and something smells like paint stripper, im savouring it, i can smell something!!
I am 25 and was also diagnosed at 20. I also smoked and was diagnosed with late onset athsma. Even though my mother told me i had athsma when i was younger only recently. I always wondered by my lungs were shot at the athletics carnival.
After my first operation i accidently fell pregnant while on the pill and antibiotcs - so please as warning! Be careful!
I get a bit sad about my smell sometimes. Its really sad when i cant smell something special like a rose or someones perfume. But then on the positive, at least i cant smell my husband!
Wishing you luck this time!
Hannah x
Mike_in_Sydney,_Aust
Posted
Although the pollyps have grown back and i have NO sense of smell at all. I havent had smell for a few years now. Sad sometimes, but at least i can see and hear. I have had one other polyp clearing by a different specialist which didnt work as well as the first.
I am also seeing an allergy specialist and i have just finished an asprin desensitisation and i had 2 asprin in water on the weekend!! I cant believe it. Previously taking asprin or naprogesic i would have been in a Hospital bed on a respirator. I havent felt much change in my athsma though. I thought i could smell something on saturday, maybe it was my imagination.
Im so amazed to see so many people here with the same problem.
As a little tip, i have found that excersise is really good for clearing everything out, also swimming in salt water works too. Although i am not that fit, it does work.
Best of luck finding a good specialist and getting those operations to get your polyps under control.[/quote:a5716ffdcf]
Mike_in_Sydney,_Aust
Posted
My experiences have been similar to yours-
multiple polypectomies, nasal preventer sprays (Nasonex), lots of nasal rinses, Aspirin allergy. Prednisone tablets provide temporary relief but cause me side effects and should not be used long term.
This week my specialist proposed Aspirin Desensitisation. He did an Aspirin challenge -under controlled conditions gave me Aspirin until I had a reaction and is now asking me to take a small amount daily with a view to increase it in a controlled manner over time and then have a maintenance dose daily.
On this site I have read of Aspirin avoidance and Aspirin desensitisation.
Can you share your experiences with Aspirin desensitisation?
Mike
FFord05 Guest
Posted
Is your condition worse after wine. (!) Wine is very high in salicylates - many sufferers from repeated nasal polyps are salicylate sensitive. Try eliminating them from your diet. Are you sensitive to aspirin? That is the best indicator of salicylate sensitivity.