I'm confused about what's happening next!!
Posted , 10 users are following.
Please can someone help - 2 yrs ago I had a scan which showed a 7cm fibroid. About 3 months ago I had another scan and it had grown to 12cm. I felt pretty confident it is a fibroid as my dr said it's normal for them to grow. I was referred to a gynecologist and she has scared the life out of me. I found her quite aggressive and hard to understand. she said there is a chance it's malignant as it's grown so quickly. I have to wait now for an MIR scan and biopsy. I'm absolutely petrified. After all this time to now be told this seems completely crazy.
0 likes, 14 replies
SKIM ali86305
Posted
I know it's hard but firstly take a few deep breaths and force yourself not to panic and to become calm and peaceful. Fribods love to feed of negative food and energy!
Then I will pick up the phone to the Gyno centre and ask to speak to someone in charge and make a complaint against then Gyno specialist who saw you. Why? Because it's seems like she has shown you zero duty of care as a patient for what is an extremely sensative issue. Ask to be seen by another Gyno - it's your right as a patient.
I did this last year it took me literally crying on the phone ton the director of the surgery who I demanded to speak to before my experiences started to change for the better.
I would do the above as soon as you can. It's your right to bother feel like and to be treated care.
Hope this helps.
ali86305 SKIM
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Ginagirl ali86305
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dominique1231 ali86305
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ali86305 dominique1231
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dominique1231 ali86305
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helen21211 ali86305
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Anyway this is pretty normal for fibroids to grow fast. Mine grew from 1.5cm to 5cm in just 6 months but in between those 6 months i had one ultrasound to monitor it. It was growing and dr advised to have it removed via laparoscopy (recovery time 1wk-6wks) before it got too big and I would need open abdominal surgery which takes months of recovery. During surgery they found more fibroids the ultrasound did not pick up and removed those as well.
I suggest to anyone that if they have a fibroid to get it checked every 6 months dont leave it till its too big as it can cause big complications if left untreated.
ali86305 helen21211
Posted
I was not so worried about it initially as it caused no symptoms. I was advised that unless I had symptoms I shouldn't worry. I was not advised to have regular check ups either. I don't know why that is - but the situation is what it is now. I need to think forward - not question why I did or didn't do something. Thank you for your reply though.
Ali x
Ginagirl ali86305
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hev36200 ali86305
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ali86305 hev36200
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alison82806 ali86305
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hanna2490 ali86305
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ssk1 ali86305
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I can totally relate to your story. I was diagnosed with 3 fibroids back in 2008 in Glasgow. They were checked initially every 6 months but as my symptoms improved and they didn't grow in was told every 12 months was OK. In 2011 I moved and shortly after I began to have symptoms. I went to the local gp who insisted on me and just new partner (2 months into the relationship) being tested for STIs which we did. All negative so she prescribed me the mini pill. After 3 months of bleeding every week I finally got referred to gynaecologist who didn't think it was fibroids and took me off the pill and told me to continue to take naproxen for the pain. At this stage my medical records had still not arrived from Scotland and in fact never have. Ibut the meantime I switched to another gp surgery and he was not happy with the plan so he refered me back. Still nothing done. In 2014 i suffered a misscarriage and as it was my 3rd I was referred back again. This time they did some tests but we're adamant I had endometriosis. The scan did reveal a fibroid but as it was on a stalk outside the uterus it couldn't be the cause of my pain and I was scheduled for a laprascopy. Due to further issues I changed hospital and consultant to have this done but the report she was sent made no mention of the fibroid so when I went for the follow up she told me I had a fibroid! Anyway after a lot of further delays in finally had it removed on Wednesday but even when we were in the hospital waiting for the op the surgeon (yet another different doctor ) was saying she didn't really think it was worth having removed cause it was small (only 4 cm) and probably wouldn't cause any problems! During surgery which I had done without full anaesthetic but with spinal anaesthetic and sedation they brought me fully conscious to say that she found another large fibroid and wanted permission to remove as this would be trickier and could cause damage but she felt it had to come out as it was pressing on other organs and explained all my symptoms. I have seen the fibroid and it weighed a kilo. If it would have been left up to the consultant I would not have had the surgery on Wednesday and it would have never been found. I am lucky I have a great GP who listens and he was just as persistent as we were to get this looked at properly. My husband dropped my discharge paperwork in on our way home yesterday and he has already phoned to say he will be asking the hospital to look into the treatment is received. Sorry this is such a long story but please do make sure you get another consultant as I feel I would have never got here without changing. I am lucky that my husband was very persistent as well and understanding as it has been part of our relationship from the beginning. It is to early to say whether having the fibroid has worked as I'm still in a lot of postoperative pain but there was a sense of satisfaction when the surgeon admitted she was wrong. Good luck and I hope it works out well for you ☺