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I'm so tired of being in pain...

Posted , 3 users are following.

marlee21
marlee21

I feel like I'm constantly waiting for the pain to come back. I've been in remission for almost 2 months and every day I wake up and I'm scared to death it will start again. I wish someone could understand what I'm going through. My hubby doesn't understand when I sit there and cry because of the pain. Even when the pain isn't full force, I still hate those little shocks in my teeth. It's so painful... sometimes I just want my life to end because I know this will never get better... I live in fear every day. sad 

3 likes, 6 replies

6 Replies

  • Valkyrie
    Valkyrie marlee21

    Posted

    I know what you mean about the little shocks in your teeth. That's what I have now and for the last week or so. Just every now and then I get a slightly bigger one, just to remind me that it could be worse. I am almost afraid to drive in case I get a major attack which i'm on the highway doing 100 kph. I have memorised where the emergency flashers in my car are and I have a preset message on my phone I can hit to tell my husband and kids where I am (because i would have to try to pull over to the verge) and to come get me.
    • marlee21
      marlee21 Valkyrie

      Posted

      I'm so sorry that you have to do that... I hope and pray to God they find a cure for this awful disease... We shouldn't have to live this way. I live in constant fear every day. sad
  • christian95748
    christian95748 marlee21

    Posted

    I have atypical facial pain. My life has become my worst nightmare. I am 21 years old and I barely have relief, my pain is constant. Lyrica does not seem to work ease the pain in my teeth. It is the worst pain I have ever had. Cant do sh*t. Cant go to work and I think I am losing my friends... God help me out
    • Valkyrie
      Valkyrie christian95748

      Posted

      Is it safe to assume that you have tried Tegretol as your starter medication?

       

    • christian95748
      christian95748 Valkyrie

      Posted

      Dear Valkyrie,

      actually no, I started with Amitriptylin two weeks ago (10 mg at night) and with Lyrica (Pregabalin) about 9 days ago. I am now at 250 mgs. So far nothing seems to work with the pain in my lower teeth. It is really a horrible feeling and I would not wish it on my worst enemy. I just hate what my life has become. If I could turn back time 6 months ago, that would be heaven.

      Do you have any ideas on what to try next? Or should I give the Lyrica more time? I do NOT take painkillers as they do nothing with my pain. Do you think acupunctur would make sense? Or maybe see a bonesetter?

      Take care

      Chris from Vienna, Austria, Europe

    • Valkyrie
      Valkyrie christian95748

      Posted

      While no drug seems to work for everyone, Tegretol seems to be the drug indicated when Trigeminal Neuralgia is suspected. To quote Medscape" Patients may find immediate and satisfying relief with one medication, typically carbamazepine." After a time many people find a need to add other medications or find that Tegretol side-effects make other medications preferable. Are you under the care of a Neurologist?
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