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Hi, I've been posting on the IBD board for months as that's what I was told I had. Now the consultant seems unsure. Basically, after months of tests I have:-
Inflammation in my stool sample
lactose intolerant
glucose and fructose intolerant
small intestinal bacterial overgrowth
random bouts of vomiting
chronic pain in the right lower quadrant
normal BM's x 5 per day or diarrhea up to 15x per day
weight now stable at 8st, lowest weight 6.12
I've has a colonoscopy which was clear, a barium meal, clear and white cell scan also clear.
I have a VERY restricted diet. No fruit, limited vegetables and usually eat gluten free pasta/rice or plain sandwiches. I'm missing out whole food groups to control my symptoms. For the last 6 days I've had really bad nausea when eating and severe pain in my right side. The pain isn't relieved by a BM, if anything it increases the pain.
Anyone have IBS like this?
Thanks
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susand1408 jo19531
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jo19531 susand1408
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susand1408 jo19531
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Saying that I haven't had a bad attack even after I stopped taking symprove. I now only take it if I've been given antibiotics.
jo19531 susand1408
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susand1408 jo19531
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jo19531 susand1408
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bronwyn97278 susand1408
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susand1408 bronwyn97278
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Thanks. I have had Cfs with ibs for over 10 yrs and then developed fibro 2 yrs ago. The cfs pain and fibro pain are different. The fibro pain is more unbearable. Sometimes even my son hugging me hurts. I was diagnosed with the ibs first and then it took another 3 yrs to get cfs diagnosed . The Dr who diagnosed ibs didn't really know anything about cfs. Each specialist tends to look at their thing and nothing else. They need to start looking at the body as a whole .
bronwyn97278 susand1408
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susand1408 bronwyn97278
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bronwyn97278 susand1408
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It's interesting re your low blood pressure and it's affect on your kidneys/renal glands and how you feel that is affecting your energy levels....no-one else has mentioned that, but I can see how it would....and as for the Depo injection, that is probably a Very good idea, as many info sites have mentioned how some are affected by Hormone Levels...when you mentioned "toxins", this is taking me back to my Continual question of "why is this Fibro/CFS so prevalent in today's world....is it to do with what we are eating/doing....my parents and theirs before them, had lots of extra stressor/or same as ours....but don't remember them having Fibro.....as it's only something new on the medical field, there has to be something that is causing the major widespread of this, in all countries...if we could find the causative factor, we maybe able to help ourselves by ridding ourselves of it/at least stop more from succumbing??? This is where I am looking with reading all the info/inputs, as to what we used to do/work/diets/stressors....when I read re the Herpes Virus being a causative factor, it made sense to me as had a very bad dose in my teens (of chickenpox), and have been exposed to it many times within my Paediatric/ED nursing years, and then of my children....even to the youngest who was able to be vaccinated, but still got a bad dose and then 2 other minor doses....this all made sense for the ME, but as to the Fibro....havn't found a connective issue for that.....have you got any ideas? rambling now..so will close.........Bron
susand1408 bronwyn97278
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bronwyn97278 susand1408
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deborah14869 jo19531
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Debs
jo19531 deborah14869
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