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Is it and Adrenal issue?

Posted , 3 users are following.

TeresaJS
TeresaJS

I've been diagnosed with fibromyalgia following workplace harassment trauma. 

The diagnosis came out 2 years ago. Since then I became more and more ill. My GP basically always addressed the issues as a "it's all in your head" kind of thing.

I also gained 23 pounds in 6 months and in the begining of this year I started having appointments with an internal medicine consultant. She started requesting extensive blood work and paradoxical results came out:

Very high (over 150!) PTH - Parathyroid Hormone but normal calcium

Normal Thyroid but I have all the symptoms of hypothyroid including heavy and extended bleeding. I have some thyroid nodules too. 

Very cortisol in January and March and May very, very low (serum was 0,5).

Vitamin D was also deficient.

I have many other symptoms... a few weeks ago following a very long period I lost my gait walking - literally I couldn't neither walk straight nor on a straight line.

I'm always exhausted and my sleep isn't restful. If I climb a flight of stairs I start to hyperventilate in exhaustion and can't walk straight. I also have periods during the day when I feel faint and I kno it's low blood pressure. It goes up and down during the day.

I've now started been followed in endocrinology at a central hospital. The young consultant ordered more tests but she didn't go without saying that "your weight gain  doesn't make sense".

Any views?

Thanks!

0 likes, 11 replies

11 Replies

  • TeresaJS
    TeresaJS

    Posted

    I now hev ADHD too!

    Sorry for the mistypings: 

    I meant that in January serum cortisol was very high (I believe 266) and in the last months very low (less than 1). I also took urinary cortisol that was also low although not as low as serum's.

  • barbara98940
    barbara98940 TeresaJS

    Posted

    Hi Teresa, I've read that fibromyalgia can be caused/ worsened (sorry? I can't remember which) by being under-treated for hypothyroidism. So this might be a useful area to investigate.
  • barbara98940
    barbara98940 TeresaJS

    Posted

    My view is that at this stage, whether you have hypothyroidism can wait. This is because

    before treating hypothyroidism, one has to get one's adrenal glands sorted first. Also get the vitamin and mineral deficiencies corrected. Then any thyroid problems may show up. I really hope you feel better soon. Have you seen the website madness thyroid the stop (words are in reverse order as I'm on my mobile and can't send you a private message).

    • barbara98940
      barbara98940 TeresaJS

      Posted

      Also, poor functioning adrenal glands means that your body won't be able to get the best out of your thyroid even if it's working. So you need to get your adrenal glands sorted first. 

      Just another thought: does your doctor ever do a T3 blood test? It may be that your TSH and T4 are working correctly, but your body isn't converting T4 into T3 correctly. In which case you would have hypothyroid symptoms but not show up on the usual T4 & TSH blood tests.

    • TeresaJS
      TeresaJS barbara98940

      Posted

      Yes I've had the T3 checked, not "reverse T3" but standard T3. 

      However after reading (and listening to ) Dr. John C. Lowe I'm convinced I may have a form of "thyroid hormone resistance". But I agree that the adrenals are more worrisome at the moment. I can't wait for the next results. I hope I don't have Addison's  sad! 

      Many thanks for your concerns Barbara. 

  • TeresaJS
    TeresaJS

    Posted

    Julie, can you PM your message? It went for moderation (I'm so lucky) rolleyes
  • TeresaJS
    TeresaJS

    Posted

    I did't have my Endocrinologist appoitment yet but I was told that all my cortisol levels are normal. 

    Previously and since last January I've had very high cortisol (significanmtly over the top limit of the nrma range) and them in March very low (below normal range) and in June extremely low. I felt very sick and did these last test that are now "normal". I don't understant any of this... I also have fibromyalgia and thyroid nodule... 

    What are you views?

    Thanks!

    • TeresaJS
      TeresaJS

      Posted

      I've pressed enter before revising- apologies!
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