Itching skin and Lyme

Thanks for the response. I'm sorry to hear that you've had this too. I'll definitely think about getting those tests done.

your welcome, i seem to have every symptom but 9 months after a possitive lymes co infection have only just seen a good ID specialist as my lymes test was negative no one has taken the co infection result seriously and i havnt had treatment. im hoping this new specialist will help as my ill health has progressed and affected every part of my body now. i hope you have a good GP and are getting the help we all need but very few get

The same thing happened to me! I have yet to find a doctor who will treat me close to a year after I tested posotive. = (

hi, have you had any treatment at all ? were in the country are you ? if you are in the north west of england i could recommend an NHS doctor

Thanks, I'm nowhere near there. = ) thankfully, 5he inching has gone, so that's one less thing to worry about.

Hi Vicki

I'm in the North West and I'm really struggling with my GP. Any help you can give is of great help.

Thanks

Jo

hi joanne, if i can be of any help i will give you any info you need. if you let me know if you need info on testing, advice on how to get help from your GP or a good specialist in liverpool. just reply with details of were you are upto so far. i dont mind if it is a lenthy story or long list of symptoms. i have 4 years of going from GP to every specialist known before i was listened to. ive had blood test sent to wrong lab then lost its been an absolute maze but finaly im at the right place so if i can help anyone having to deal with all that and get quicker direct help im happy to do that

Hi Vicky

Well at the moment after 3 months of feeling completely drained, having brain fog, struggling with minor sentences and memory loss, eyesore blur, terrible headaches, feeling confused and anxious about everything and having a rash that itches and appears in different places in different forms, my GP has finally decided to test for Lyme. I have seen a dermatologist, been on extremely high doses of antihistamines whilst waiting for dermatology app, along with having numerous blood tests for basic allergy and blood count. These have comeback fine apart from showing higher than normal antibodies hence why he has now agreed to test for Lyme. The first time it got sent off as an allergy test then the second time I found out that my bloods had been sat in the lab for 2 weeks because the relevant paperwork hadn't been filled in correctly. I've now been waiting over 5 weeks and still haven't had results back. I saw a locum Dr who was far more open to the idea of it being Lyme, who rang the infectious diseases dept at my local hospital and explained I was waiting on results and my GP had given me 2 weeks of Doxycycline to which they told him to urgently give me the 3rd week as 2 weeks isn't enough. They agreed that my symptoms pointed to Lyme and he seemed to be doing something only for my own Gp to then interfere and ring me telling me that if after the extra week of antibiotics I was still feeling unwell I was to go to A&E as there was nothing more he could do. I feel like he doesn't understand my condition or what I am going through. He is only interested in what he can visibly see which is the rash even though the dermatologist has said the rash could be present due to my body fighting an illness. I don't feel like I am in the best hands. I had a terrible time on the antibiotics. Severe stomach pain along with terrible pain in my right hip and knee, to the point of near collapse. Any help would be appreciated as I feel I am chasing my tail. Sorry about the length haha. It's great you are finally getting somewhere. I've been off work for 3 months as I work in a school. They have been very understanding but I just need to get back to some normality.

Thanks again

Jo

Hi Vicky, I am in the north west and struggling too, could you message me the details of the doctor in Liverpool? Many thanks X

Hi Joanne

Where in the north are you?

Jo

hi the same happened to me with the lymes blood test if it hasnt been sent directly to porton down with the public health england form (GP can print this off and must write " forward to porton down and also test for co infections" the bloods just go to locallabs who have no idea what to do with it. its good you got 3 weeks of doxycycline but i bet your doctor only gave you the dose of 2 first day then 1 x 100g after that it needs to be a higher dose NICE guidelines say 4 weeks at a higher dose your GP cant argue with that its the doctors NHS guide to prescribing my doctor finaly looked at this after 10 mths of saying i had doxycycline treatment ! ( yes but not enough) if you private message me on here i can give you the name of the specialist i see and a good website ( im not sure how to private message you but can reply) if all fails in getting your GP to take this seriously ask to speak to your practice manager and say you will be talking to your local MPs office (this is actualy a good idea its how i finaly got help after my local MP wrote letters to my GP, local NHS trust and infectious diseases asking why i wasnt being treated for lymes)

hi as doctors details get deleted on here if you private message me i will reply wih his name. were in the north west are you ? it looks like 3 of us on here are in the northwest and have the same problem getting help with lymes