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jaw ache

Posted , 4 users are following.

katie47127
katie47127

Since I was having my second episode of attacks last week they have since stopped this week and i now can't get my jaw open more than half way without being in pain it's very hard to eat also. I have a tender and swollen neck and under my jaw it hurts if I push up into my jaw. I sometimes get a sharp pain when I bite down too. I wake up in a lot of pain the early hours of the morning when my painkillers have worn off and for some reason I'm now dribbling at night! Has anyone else had this after attacks?is it part of TN? And does it go on its own? X

1 like, 19 replies

19 Replies

  • Proxy
    Proxy katie47127

    Posted

    These are actually symptoms of a peritonsillar abscess, you have a raspy voice at the moment too?
    • katie47127
      katie47127

      Posted

      Last time I went to the docs my ears temp and throat were fine. She just said was part of the TN and that was it rolleyes
    • Proxy
      Proxy katie47127

      Posted

      Part of the TN? Possibly, but it's that you mention the saliva specifically and the tenderness in the neck (lymph glands.. which get tender almost solely in the presence of infection). This exact thing happened with my girlfriend, she had no temperature as well, and it wasn't due to tonsilitis. The main thing for her was constantly waking up choking on saliva
    • katie47127
      katie47127 Proxy

      Posted

      This is very odd at the start it hurt a lot to swallow I was waking up in pain but once the pain killers kicked in I was OK. I'm not one to dribble lol. But even if I nap for half an hour I wake up with dribble. How did she find out what it was ? What treatment did she have? Did it affect her jaw? X
    • Proxy
      Proxy

      Posted

      And then she started getting a pocket of fluid filling up in the course of a day. So they did a bunch of tests which did not find infection.. baffling them since it is clearly only due to infection. She has ATN, but I believe that is the symptom and that dental work from several years ago has created a deep tissue infection that has spread into the jawbone. Modern bacterial infections are more complicated due to antibiotic resistance and horizontal gene transfer. It's clearly a biofilm disease but the doctors are out of date and out of their depth.

      Emis Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

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  • eddie13
    eddie13 katie47127

    Posted

    Hi Katie47127,

    I've had TN for 9 years but am not familiar with the swelling you describe. I am very familiar with pains in the jaw hing area. Is that the area you describe? TN moves all over the face and jaw over days, weeks, and months - usually on 1 side left or right. Intensity of pain levels also fluctuate from nuisance to debilitating electric shock.

    Has a GP or nuerologist taken a look at the swelling ?

    eddie13

    • katie47127
      katie47127 eddie13

      Posted

      Hello smile

      Last week I had full on attacks before they started I had a dull ache in my ear which is how it started the first time. I had attacks all week some continuous some with breaks in between. Mine is all based around the jaw teeth and ear area. And I spent most of the week crying my body in a red rash from the intense pain and I often bite down hard on a piece of clothing as I hate the feeling through my teeth etc. I'm not sure if that's now caused the jaw issue. Since the weekend I've not had any attacks I've been able to drink hot and cold drinks bathe etc but haven't been out the house much other than for doc appointments. This week the pain is different and is controlled by the codeine and morphine. With the attacks it is not but it's all I can have as I'm trying to conceive. This week I've not been able to open my jaw much more than half way without it feeling stuck and hurting it's hard to bite foods because of not being able to open my mouth wide enough. Its the same side as my tn attacks. The right side. My gland is up due to my jaw I imagine but under y jaw it is very tender to touch . At one point it hurt to put pressure on my wisdom tooth. That has now gone there is no swelling or redness around that tooth. Buying down too hard and putting that pressure on my teeth does hurt at times I'm guessing due to the nerve still not having fully calmed down underneath? When I went to the doctors she said it will still be a part of the TN episode but it's not improving. I really need to get back to work sad x

    • Proxy
      Proxy katie47127

      Posted

      sorry my last reply is under moderation as I mentioned a website. Yeah, you'll be interested that I'm talking about teeth
    • katie47127
      katie47127 Proxy

      Posted

      Ah OK I will wait for that then. Are you on fb? Could take the website that way or by email?
    • Proxy
      Proxy

      Posted

      Your description is so very similar to my girlfriend. Right down to the comments by the doctor. I'll come back to you, I must finish work too. Your extended reading will need to include the term 'Biofilm'. She has 3 types of pain; electricity, burning and burrowing. 
  • eddie13
    eddie13 katie47127

    Posted

    Hi again,

    Thought I'd share that Tegretol generic Carbamazepine is very effective for me. I still get nuisance stuff that may last a day or a week or more. I only get something debilitating about once  a year now, and that is usually triggered by eating hitting the dormant as far as I knew fang tooth or molar area. My dose has increased over the years. My neurologist has worked with me to keep it dialed in. Now 4 x 200 mg daily - evenly - 1 pill every 6 hours. I use phone alarms to keep to the schedule.

    eddie13

    • katie47127
      katie47127 eddie13

      Posted

      Unfortunately I can't use anything like this because of trying to conceive. Just confused to what the jaw ache is and why I can't really open it fully and then the tenderness under my jaw. I guess I will no more after the Mri in April
    • susan33651
      susan33651 katie47127

      Posted

      Hi,

      I have a lot of years experience as an ENT nurse and it is entirely possible that the pain and difficulty swallowing could be related to a problem with one or more of the salivary glands. It could be an infection or more likely a small stone irritating the gland and duct which empties out into your mouth, the gland would produce more saliva in an effort to get rid of the irritant/stone and would account for your symptoms, including the pain when biting. Ask your GP to refer you to an ENT specialist.

      Good luck.

    • katie47127
      katie47127 susan33651

      Posted

      Hiya, thank you.

      Does it cause problems with the jaw though? It's been nearly a week now and my gland seems to have gone down a bit now and I'm taking less painkillers. Its still very tender the whole way across under my jaw when I touch with finger tho. X

    • susan33651
      susan33651 katie47127

      Posted

      Yes, it can cause pain under the jaw, especially when pressure is applied. It does depend on which gland(s) is(are) affected though! Have you had your jaw or face X-rayed? Salivary gland stones can show up on an X-ray.

      It could also be that you may have a dental problem that is affecting the jaw, an abscess perhaps?

      I presume you have had some blood tests done to rule out anything sinister? 

      X

    • katie47127
      katie47127 susan33651

      Posted

      I have a blood test next Monday. Day by day it seems to be easing. Still tender under the jaw but jaw movement is slowly becoming less painful. X
    • susan33651
      susan33651 katie47127

      Posted

      Fingers crossed the problem is identified and treated properly, sooner rather than later!

      X

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