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Just a question

Posted , 6 users are following.

cheryl02260
cheryl02260

Not sure if I am expecting an answer or just venting but I have had all different dizziness for over 30 years.. I have had it with my MS, I have had dizziness after a cruise, I have had BPPV and also whatever I have now and with each kind experience brain fog.. As if it isn't enough to be dizzy.

Just wondering why this seems to go along with it aa I have read that so many others have had it too.

Sometimes I just can't take this anymore and I want it to end NOW!

1 like, 17 replies

17 Replies

  • lily08036
    lily08036 cheryl02260

    Posted

    I completely understand how you're feeling. Been feeling like that for over 3 years now. Drs told me it was severe depression/stress. I refused to believe them. Just last year I had really bad palpitations and I said to myself...ok next Dr that suggests that I need meds I'm going to take them. So I went to my Dr and she sent me to a psychiatrist , I must have said something along the lines; I sometimes feel like hurting myself because I just can't take this any more.... RED FLAG !! So I went to see psychiatrist and he gave me Cymbalta...which I've heard of before ( worked in pharmacy) I can say , it helped...a lot but I gained weight!!!! SoI stopped taking it and now I'm taking Wellbutrin which has done nothing for me. I'm feeling like I did before. Headache everyday all day. Floating feeling, sometimes I think there's a small rolling earthquake but it's just my body. Swaying motion ...subtle but enough to make me nervous. I'm always tired...feels as if I haven't slept in daysIt's horrible. So now I got this extra weight on me and I need to work on it but I'm feeling like crap. We need to stay strong. I really need to work off some pounds, I just found out I have a leaky heart valve. All I can do is pray. I've had EKG , MRIs, ct scans , blood work after blood wrk , stress test, ENTs, hormones checked. They found nothing. So what does that tell me. That's my answer.
    • cheryl02260
      cheryl02260

      Posted

      Just because a dr can't figure out what is wrong they think they can just chalk it up to depression or anxiety.. Shows how much they don't know or care or have never been dizzy.

      And because we say we want this over doesn't mean we are talking about life but the DIZZINESS shouldn't cause a red flag. It should tell them how horrible daily dizziness is and we need an answer. It's the dizziness that causes anxiety, not anxiety causing dizziness.

      I too, am praying and waiting on God because it sure isn't a dr that will bring healing.

    • pauline59158
      pauline59158 cheryl02260

      Posted

      I don't think it's just a coincidence, but a lot of people suffering from Dizziness/Vertigo have been diagnosed with other serious conditions. Those conditions bring on severe anxiety and dizziness/vertigo. The anxiety triggers other responses like palpitations, stress and hormonal inbalances.

      Each condition/response are mutually associated. Having one can cause the other. One is stressed because they are  anxious; anxiety can cause vertigo, which in turn causes dizziness, Its a vicious circle. 

      Maybe talking to a counsellor would help, it did me. 

      Please let us know what you decide. Don't give up!!

      Best wishes 

      Pauline

  • gill70346
    gill70346 cheryl02260

    Posted

    I suffered dizziness and vertigo for over 20 years initially diagnosed in 1973 as Menieres Disease but later told it was not Menieres but could not explain what it actually was. Had a really bad episode whilst in labour and could not hold my son for 8 hours after he was born and it was suggested Imhad postnatal depression. Life was really difficult in the early days of hs life because of a combination of dizziness and major mobility problems caused by polio. However, I can say that For no obvious reason the dizziness stopped in about 1994 and then did not have problems till 2010. Doctors still cannot explain the dizziness, but I do know for certain that for me episodes of dizziness are brought on by extreme tiredness and emotional stress both good and bad. Because I know that, I no longer worry about having a "correct" diagnosis because I know that the dizziness will come to pass and for me that is what matters, not having a diagnosis but knowing it will eventually sort itself out.
    • cheryl02260
      cheryl02260 gill70346

      Posted

      That must be both great that your dizziness went away that many years and disappointing that it came back but I can see where that gives you hope that it will go away again.

      I go back and forth about the diagnosis thing.. Sometimes it drives me crazy not knowing what it is and maybe there wouldbe something I could do to prevent it or help it heal and then I think the most important thing is that is just goes away and even if I had a diagnosis for this particular dizziness the drs wouldn't know what to do anyway.

  • gill70346
    gill70346 cheryl02260

    Posted

    The one thing I have found recently which helps the number of dizzy spells I have is leRning relaxation, meditation and mindfulness to keep me less anxious and more calm. I would be happy if they went altogether. I had not had a dizzy spell for a year  but the last week I have had four each of which put me to bed for several hours as I felt so nauseous, and I had such poor balance I was in danger of falls. As I have osteoporosis this can be dangerous.
  • lynniebimbom12
    lynniebimbom12 cheryl02260

    Posted

    Hi Cheryl. Sorry to hear about all of your problems but I can identify with how you feel.

    I first had vertigo over 12 years ago following a car accident in which I suffered whiplash.

    My life was one long round of Gp's, neurologists and absolute misery over a year with no real solution. I felt like I was going mad.

    Eventually the symptoms resolved and I was able to resume my normal life.

    I was then in another two car crashes ( believe it or not NONE of them were my fault!!!) and again suffered whiplash injuries, since when I have had occasional attacks of dizziness and horrendous brain fog.

    Last October I had a suspected stroke and was given an MRI scan only to be told that I hadn't had a stroke and it was probably a weird type of migraine. However , they did discover that I have a small meningioma ( brain tumour) but do not attribute any of my symptoms to it.

    I am currently suffering from suspected labrynthitis although Menieres disease has not been ruled out and I am waiting to see an ENT specialist. Some days I've felt like ending it all but know that it will eventually pass . Please hang on in there-you can beat it.

  • lily08036
    lily08036 cheryl02260

    Posted

    Hi Chery

    I agree about the red flag comment. I just want this to stop. It's even hard for me to just be in bed or sleep, I constantly feel that swaying motion. It's frustrating. I wake up with headache, lasts all day all night until next day and so on. Im tired of this. Praying for us all who are dealing with this

    • cheryl02260
      cheryl02260 lily08036

      Posted

      I too, sway and am just so sick of it and need a break from not moving when I'm not..my bed feels like a waterbed at times.

      When I read all of the posts for advice and support I also pray for others who suffer so much and at times for all.

      What a terrible disease!

    • lily08036
      lily08036 cheryl02260

      Posted

      I feel that way too. The other day I was sitting on the floor and I leaned over resting on one hand and I felt ( what was to me) an earthquake. Swaying earthquake. I asked my daughter if she felt that and she said; what ? The earthquake. No mom there was no earthquake. My heart was beating fast and hard. I felt lightheaded thinking it was an earthquake. It felt like a small rolling one. But it was just me!!?? That scared me even more. I don't want to take Wellbutrin anymore. I've been cutting back. My psych bumped up the mg from 150 to 300. I haven't even finished the 150. Everyday the samething. Headache. Foggy brain. Tired. I walk and I feel as if someone tugs me. Feels like I miss a step. Restaurants , stores, Omygoodness. Since I started taking Wellbutrin I started feeling all of these things again. This med is not doing it for me. Plus I have a leaky heart valve. Minor according to cardiologist. He said to go live my life. Do things , everything is good. I thank God for that. Now I just need to drop some pounds , it's not good to be over weight either with my leaky valve. I'm praying for us Chery. We have to stay hopeful , faithful.
    • cheryl02260
      cheryl02260 lily08036

      Posted

      I don't like to go out much anymore because it just seems like a struggle..i am praying and hoping I don't get real dizzy and trying not to have a panic attack because of how I feel and not really "in" the conversation and I look at others sitting there normally and enjoying themselves being normal.

      I don't like medicine because I have alot of reactions. Do you think you can come off the Wellbutrin? Are the benefits outweighing the side effects?

    • lily08036
      lily08036 cheryl02260

      Posted

      I had stopped going out for a long time. I was always afraid of something happening to me. I would get claustrophobic in restaurants , markets , malls. I still do once on a while. It's horrible. Feels like I'm going to pass out. I try to do things simply because I still want to. I dislike being afraid all the time. I don't want to be at home all the time. My brain feels tired, no energy all the time. I was taking Cymbalta at first and that's when I noticed the weight gain. It helped me though for a few months. Then dr switched it to Wellbutrin been taking that for 5 weeks I believe. It has done nothing for me. I'm starting to have all those symptoms again. 2 weeks ago I started taking Wellbutrin every other day. I want to get off of it. I went to see my psych and he upped the dose to 300. In my mind I thought. Do I really want to keep taking this... Is this also making me gain weight. Mind you ; I've gained 3 more pounds since I started this Wellbutrin. I'm so down about it. For the dr to up the dose ,... Omygoodness I just can't. So ... I'm going to go against my dr and stop taking Wellbutrin. He won't like it. I'll let him know sometime soon. We can't let this take over our mind, heart, life. Yes it's horrible. I know. I deal with it everyday day through out the day. Its miserable. I get scared. I cry. I ask God ...please Lord please. I just have to trust Him. I'm thinking about natural supplements. I don't know. This is some strange thing though.
    • cheryl02260
      cheryl02260 lily08036

      Posted

      I stopped going out too and am fighting becoming agoraphobic so I do force myself but not as many places as I wish I could.

      I would go off the Wellbutrin too if it wasn't doung anything but like I said I hate meds and react to most of them.

      I have learned and still not real brave to stand up to these drs. They expect us to take things that don't agree with us just to get their job done. I wonder if they felt bad on these things if they would do it or be so demanding and get mad.

      I research natural stuff all the time and even those can scare me with side effects. Like I read Gingko is good for dizziness but should not be taken longer than a few months. Why bother then?

    • lily08036
      lily08036 cheryl02260

      Posted

      You have to stand up for yourself ...you let the Drs know if you have doubts about anything. I changed Drs like you wouldn't believe. In my mind they were all wrong. I kept getting the same answer. You're depressed. Stress. Vertigo /migraine Anxiety/ depression / stressed. Others, don't know. I even had them check me for MS. Yes I did. Even lupus , I was every where in my thoughts. If I heard it I had it. I guess you can say I'm a hypochondriac. I had my hormone levels checked MRIs. CT scans ..ENTs. Everything normal Then why don't I feel normal.
    • cheryl02260
      cheryl02260 lily08036

      Posted

      I leave drs alot too.. I either know more than they do or they want to do something that doesn't agree with my body and they get pushy about it. Going to several also I found out I can get several different diagnosis' so how am I supposed to know who's right?

      So as of now I am done with them.

    • lily08036
      lily08036 cheryl02260

      Posted

      It's frustrating. On top of what we are going thru I'm not going to take Wellbutrin anymore. I'm just putting stuff in my body that is probably doing more harm. I only take atenolol for high blood pressure. That's another story I started going to the gym with my daughter again. I was going before but when I saw that I was putting on weight because of the cymbalta ...first med my psych gave me ...it brought me down. I was crying. Thinking I'm going to the gym eating fairly well and I'm gaining weight because of this med!!! I told the psych ...ever since I started coming here I've been gaining weight. That's when he switched it to Wellbutrin. I'm tired of it too Plus for the past year I've been vitamin d deficient ... What's up with that I have to take prescription for that I'm not much in the sun but I guess I'm going to have to be now
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