just been diagnosed this week

Good advice Janet. I would also try to get an overall assessment since, it seems that you'veen long term suffering from this it may have a viral or infectious origin.

Take care. T.

i have done all the tests but nothing the rheumatologist hasnt rulled out rheumatoid arthritis but hasnt yet been able to confirm it is or isnt but he said fibromyalgia is a certanty and diagnosed me with that i have gone for pip but esa is a pain here but will get the cab to help me and all i want to do is go back to work but i cant as im bed bound all day every day in constant pain and mobility well thats a no no as when i get up just getting out of bed is to exhausting and painful but the dwp just dont care they never do si i will get the cab to help me out on that cause i cant do it alone yet alone cope with the forms as i would have to remmeber the person i once was and its to depressing to do it alone thanks for the advice and for being understanding and you take care to my friend and stay in touch as i have found it usfull talking to others and it seems like the only people who understand truly is us (people actually going throuh it) so thanks again my friend  

thanks i havent tried esa yet as i was on that before my diagnosis and they took me off that i appealed but they dont seem to care but now i know its fibromyalgia and ibs plus me they cant disallow it as i have researched and it turns out it would be illegal for the dwp to not allow it and  to put you in the support group the thing i got told was its reversable and can be cured but the problem with that is no one knows the cause of it so how can you fix what you dont know for me i know its a life long thing but im ok with it and im bed bound every day in constant pain the pain puts me to sleep but at the same time it wakes me up i only get about 4 hours sleep as im in constant pain i feel so low cause i cant even play with my near 3 year old even getting up to go to the loo is exhuasting and sometimes i cant even make it there my doctor is a nice guy he understands but the dwp dont i have put a claim in for pip and have seen atos they where quite understanding and i know 100% if the dwp say atos recommends that they dont award me pip then i know the dwp have lied cause thats all they do when i had esa and had my assessment i was awarded 0 points by the dwp and they also said i got 0 points from atos as well but when i contacteed atos they sent me there exact report and on it i scored maximum points the dwp are just inconsiderate liers so i will be seeing the cab to contact pip to inform them i will be getting my diagnosis letter to them plus a letter from my doctor to support me and to hold off on there dicission until then and i will be goping to my local job centre to fax the letters over so they will have them there and then but its not fair that i have to put myself in even more pain just to go doown there to prove that im not making it up when its the dwps job to do that

Hi derek when I last saw my gp she said to me you do know their is no cure for fibromyalgia dont you. Their is no cure the only thing we can take is medication to help with the pain, some people try accupuncture massage hydrotherapy, I use hot water bottles wheat bags. Its very much trial error to find what suits you. where DWP are concerned the more you can send into them gp letter supporting you rheumatologist any hospital appointment letters as much as you can to support you and also your local CAB will help with form filling and advice. It wasnt ATOS i saw but a different company, I have heard bad reports about atos and how they treat people and lie. Sleep and lack of it is a big problem with having fibro, I dont know what its like to sleep and the conatand pain does ware you out. My gp tlod me I had ME, ME can run along side of fibro the best person to talk to about any worrys concern is your gp.I would get CAB  to help with your claim for ESA again.take care 

thank you for your support and advice it means a lot to me and even though i have this for life at the end of the day i feel like at least its given me good friends like yourself and that means a lot to me and you have helped me to accept it so again thank you so much for that as im no longer in denial which is a good start now its a case of getting the right treatment and help for it i will see my doctor tommorow to see about getting some kind of support like a carer just to help take the weight of my wife as she does everything for me and i feel like such a burden to her but shes amazing and i love her so much but it would be nicwe for her to have a break like i said before in this message thanks again and keep in touch my friend and let me know how you are once in a while take care to my friend

Hi Derek we are all in this togeather, we help support each other through, dont ever think your alone we are here for each other take care gentle hug

your not alone to as im always here for you to and will always be a caring friend to you and thanks for helping me accept all that i have accepted today cause without your support i would still be in denial so thank you from the bottom of my heart lots of love to you and your husband from your new friend forever derek xx

Your welcome Derek Im here for you, so pleased I was able ro help you. you take good care of yourself rest plenty onwards upwards gentle hugs. love to you and your wife from your new friends karen dave xxxxx 

thanks to yoiu both lots of love and hugs from derek and sharon xx

Hi Kaz. How are you today. It has cooled down a bit here. But its still very muggy. I'm still very sore, but need to get knitting as I am trying to make lots of matinee clothes as my daughter is due to have our first grandchild in November. Need to be better for tomorrow as I am taking them for her next scan. It's 3 buses for them to get to the appointment.

Think I may need to try and have a lie down this afternoon, I didn't sleep very well last night, had about 2 hours in short bursts.

Gentle hugs. Take care x

Hi Janet bless you for asking how I am. My earache has eased thankgoodness. it started in my right ear on sat so had it in both ears along with a funny throat. Then yesterday I started with pressure in my head and a headache. I got about an hours sleep last night. Im lucky to of got that?. The earache has gone along with the pressure in the head thankgoodness. I am in pain with back legs hands fingers, but ploding on the best I can.How are you? hope your not in too much pain. I agree with you I would have a rest this afternoon as you didnt sleep well last night. How lovely your 1st grand child I bet your excited I know I was when my eldest child had his daughter. My mum knitted matinnee coats for my children and her grandchildren.I wouldnt like to do the 3 bus journeys, tomorrow is going to be a tireing day for you. so I would rest plenty today. take care gentle hugs x

Hi Kaz. How are you today? I am sore, back, wrist and ankle. Had a huge spasm in my back while driving back from my daughters. The scan was fine, its a boy. They need to go back in a couple of weeks for another scan as they couldn't have a good look at his lips and heart. He's going to be a horror, he doesn't like them looking at him, he keeps turning one way and then the other. Hope you and your husband are well. Take care. Gentle hugs

Hi Janet Im in pain with my back legs earache has eased thank goodness.I know all about back spasams left me rooted to the spot the other week in my bathroom, so do feel you,and also with feeling sore in wrist ankle. wouldnt it be nice to wake up 1 morning and not have anything?. Ahh a little boy how lovely he certainly make it easy for the person doing the scan bless him pleased to hear the scan went well. My husband is flat out at work they are short staffed he came home yesterday tired out. Im taking my dog to the vet hes not well hes worrying me soft. He never leaves m side bless him. Im glad its gone cooler its sunny at the moment its rained on off today. Im just ploughing through washing. Then going to see if I feel up to hoovering. take care gentle hug