Just diagnosed with trigeminal neuralgia...helpppp

I would start slower with tegeraol it's really strong made me feel really drunk after 3 days

First of all, I was told I had trigeminal Neuralgia.  Then, I was told that it was either that or cluster headaches.  According to my neurologist, the attacks I was having were lasting way too long to be TN.   He also told me that TN didn't usually happen while you were asleep, and a lot of my attacks did.  It seems that cluster headaches are caused by the Trigeminal Nerve, just like TN, and the surgery for the cure is the same.  After suffering with these attacks for 2 months I was put on Gabapentin that helped so, so much!  I still had some strong attacks, but nothing like the ones that sent me to the ER 4 times, to the ENT doctor, to the dentist, and finally to the neurologist.  After I was told it could be cluster headaches, I looked it up on the internet, and I began to think that was exactly what I was having.  My doctor had said if it was cluster headaches, 100% oxygen would stop an attack within 15 minutes of breathing it.  He wanted me to go to the ER during an attack and get them to administer oxygen to see what happened,  Instead, I found a tank of oxygen on Craigslist, and I bought it.  OMG!  My next attack only lasted 10 minutes with this therapy.  I figured it was a fluke, but I grabbed the oxygen as soon as the next attack started, and it was gone in 7 minutes.  This worked every time I had an attack!  I nearly cried, I was so happy.  Wouldn't you know it...as soon as I got a prescription for oxygen, my attacks stopped.  Cluster headaches last from 4 to 12 weeks in a cycle.  I was right on the 12th week.  The pain I experienced with CH had me ready to end it all.  I had already decided how to takemy life, because I could not keep going through this hell.  To think something as simple as oxygen stops these attacks is almost unbelievable.  And....I argued with my doctor when he told me he thought my attacks were cluster headaches.  I thought those headaches were just pains that were in clusters....and I was dying, for pete's sake!  After I googled the symptoms, that's when I was more open to that diagnosis. I've only been pain-free for 2 weeks, and I'm already reducing my gabapentin so I can stop taking it.  I wish you would try the oxygen therapy to see if this works for you.  It can't hurt, and it could be just what you need.  I was thinking since you have attacks at night, cluster headaches could be your problem, too.         

I know how painful shingles is and with a rash it would have been easy

to misdiagnose TN. Have you had an MRI yet? Is it your GP that has diagnosed

you with TN? It may be worth asking if they can refer you to a neurologist

that deals with TN because that maybe a different specialist to the one you

see for your cluster headaches.

I do know from my own personal experience that youcan get lots of odd things

happening with Carbamazepine. You are on quite a high dose to start off on.

I still get woken up at night with pain, especially if I turn over onto my right

hand side. I prefer to sleep sitting up, which stops it happening. I've spent

many long nights walking the floor thinking that I just couldn't cope with

the pain and even thinking about ending it all. There is no quick and easy

cure. Some people find different combinations of drugs work better than

others. The metallic/blood taste I would think is down to the Carbamazepine

I can't drink tea because of the taste it left in my mouth and I went off some

things completely. Stick with it if you can or if the side effects become unbearable

go back to your GP and maybe try other drugs that you may be better suited

to.