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Hey im Bonnie, im 25. I've had a problem for 10 years that doctors are just now saying is unclassic TN. My pain is literally debilitating and breathtaking and absolutely nothing helps. Everything i do causes short lasting spasms of sharp, stabbing and twisting, crippling pain that shoots out of my left ear. It used to be both ears until i was 3 months pregnant with my daughter, the pain completely went away, then came back about 3 months after she was born, worse than ever and only on the left side. The chronic pain lasts about 20 seconds straight then fades to a more dull but still debilitating pain that lasts 3-4 minutes. After the pain stops, it takes a couple minutes to be able to think clearly and see straight again only for all of it to happen all over again... this happens at least 10 times every hour of everyday. I am exhausted because i cant sleep and I'm always grumpy because i cant ever even sit long enough to relax. The past 3 months have been challenging, its gettimg worse. I can feel myself getting slower, my words are slurring my reaction time is a fraction of what it should be. i cant drive, i cant work, and i cant play with my 2 year old daughter. I dont know what to do with myself anymore, i dont like to go out in public because i look crazy when i have to stop right where i am and put my head down to hold my ear. Im truely ready to give up if i cant find relief. i hope that someone out there can relate and help because im out of options and im tired of suffering
1 like, 11 replies
wanganui bonnie_27099
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wanganui bonnie_27099
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bonnie_27099 wanganui
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bonnie_27099
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wanganui bonnie_27099
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Glor888 bonnie_27099
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Im so sorry you're suffering. I agree with Wanganui that you must seek help. Ask your doctor to refer you for an MRI scan, see an ENT specialist etc. You don't say if your on any medication now, or if you've had medication but it didn't help. If so which medication have you tried?
I really do hope you get some relief asap. And yes stay in touch we are all hear for you.
kind regards
Gloriana
bonnie_27099 Glor888
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bonnie_27099
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wanganui bonnie_27099
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eddie13 bonnie_27099
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Not fair that you're so young. Have you seen a neurologist? If so, what is your plan of attack? If not, you need an appointment asap.
As outrageous as it is, try to remember it will not be all the time; and when it subsides, you will feel like nothing ever happened. No permanent damage. The condition can be controlled to the point where outrageous out breaks are very rare.
eddie13
bonnie_27099
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