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Posted 8 years ago, 3 users are following.

scott6672

I have same symptoms as many of you who have posted in Neurology:

Muscle pain

Muscle weakness

fasciculations

and the list goes on.

Often times a simple "Neurologist" won't have the expertise to make a diagnosis or a diagnosis can only be arrived at after eliminating everything else.

https://patient.info/symptom-checker

I entered just about all my symptoms and came up with the following possibilities:

Polyneuropathy Disorders

INclusion Bosy Myositis

X-Linked Bulbospinal Neuropathy

Glycogen Storage Diseases

Dermatomyositis

Mitochondrieal Encephalomyaptahies

Motor Neuron Disease

Rhabdomyolysis

Serotonin Syndrome

Toxic Myopathy

I can rule out several but the rest are still possibilities.

I would suggest that the average Neurologist doesn't make these diagnosis.

0 likes, 4 replies

4 Replies

jazzyanne scott6672

Posted 8 years ago

has your vit d b12 and copper been checked
- scott6672 jazzyanne
  
  Posted 8 years ago
  
  I have 5 pages of tests probably over 300 results. I don't see copper or if it is there it is not abnormal.
- jazzyanne scott6672
  
  Posted 8 years ago
  
  check and see if they did the copper text neuro tested my son for it because of muscle weakness it was normal
Heather2612 scott6672

Posted 8 years ago

Firstly look into vitamin deficiencies which are often overlooked. Vitamin b12, folate and vitamin d.
Look up the symptoms of these deficiencies to see if it's a possibility.
I was misdiagnosed as having Functional Neurological Disorder. Turned out to be b12 and vit d deficiencies.

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