Labyrinthitis..or anxiety?

Hi Simone ,

I suffered and i still suffer from Vestibular Neuronites . I got it when on the 22 of April 2004 a date that I will never forget . I had relapsis up to now . I had a bad Crisis las february and I'm still sick . The best person to contact are neurootologists . All the syntoms of Ear disabilities are the same that's why it is important to see a specialist . The best worldwide is Linda Luxon she is based in London . You can contact her and ask for a specialist

hope you will feel better and don't worry

Vincenza

(Sorry but Patient Admin have removed either a telephone number, an email address, and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.

If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.)

[my health challenges started in Nov 2005 when I was in the office one afternoon and out of the blues started to feel burning sensations on entire length of my right side, intense numbness and a general feeling of malaise. Never in the past had I been unwell save for the yearly flu bout and I'd always taken my excellent health for granted, never smoked or drank and lived a relatively healthy life etc. Anyway, my sudden symptoms scared me and they persisted till i was forced to see my GP who in turn referred me to a specialist (neurologist). I had several tets, scans, blood tests done and everyting showed up clear. Eventually had a nerve conduction study done which showed that I had suffered some sort of nerve dysfunction and was subsequently dianosed with peripheral neuropathy. Was told that this was mild and should resolve sooner rather than later. This was Feb. 2006 and to date I continue to feel worse as sympoms appear to be now chronic. Coupled with this I began to experience severe dizziness and nausea that affected me so badly that I found it hard to go through each day. I continued to despair as I was having all these tests and scans that could not provide any indication as to why I was so unwell and the symptoms felt like they were progressing. Being a christian, I also prayed a lot and asked God for strength and grace and I believe that he has done exactly that. I was diagnosed with Labrinthytis, in addition to the peripheral neuropathy symptoms that I had been experiencing on an increasingly wide-ranging scale. I was put on Pregabalin medication for the neuropathy and Serc16 for the labrinthytis symptoms. I continue to take these medications and have been on them for about a year. The Serc works a lot of the time but not completely in the sense that on many days I would have outright attacks of dizziness/nausea which worsened around the approach to a period; as did the neuropathy symptoms. I can tell you that life had become very close to hell, with me being a self-suppporting single mum, no family and few friends. I have been perseering and holding on inspite of these challenges and I believe that God has really been with me in many ways evn though I could not always, see, sense or appreciate the fact. a few months ago, I heard about the Power plate exercise/toning machine which usees vibration technology to stimulate body muscles etc with reportedly amazing results. As the machine was available in my local Fitness First gym, I started to use it each time I visited the gym. One day I came across a home shopping channel which was promoting a home version of the Powerplate for £199.00. The presenter gave an indepth explanation of its reputed health benefits based on the positive effects deep stimulation etc. I decided to invest in it as I felt that I had nothing to lose at this point. I was desperate for anything that could give me some kind of relief from the multiple symptoms I had been experiencing for so long. I have been using the Power plate at home for over two months as well as when I go to the gym and I can honestly say that I have begun to experience very good results in the sense that my symptoms of nausea & dizziness in particular have significanly reduced and I am experiencing a sense of general wellness more often. I am still on the medications prescribed but whereas in the past I still felt unwell generally on many if not most days despite being on the medication; now I feel well most of the times and I definitley am not experiencing the nausea/dizziness which had for so long become the bane of my life. I believe that combined with the posiive effects of the power plate combined with the medication and very healthy juicing/vegetables lifestyle that I adopted as routine all combined synergistically to produce more beneficial results. By no means am I a medical expert but I can only testify to the very positive results I experienced since I started using the Power Plate and believe me I tried ev

Hi, i am currently recovering, very slowly from what the docs say was labrynthitis. Your experience sounds very similar to mine. I have had episodes of strange popping in my head followed by sudden dizziness and sometimes when driving i have had to pull over as felt strange in my head. 4 weeks ago id been in bed asleep about 2 hours when i woke up with clammy hands, tingling fingers and sweating and head spinning.I went to get out of bed and felt acute nausea, grabbed my mobile phone and struggled to get to the toilet as couldnt focus, my eyes were darting around as room was spinning unbearably. Eventually i managed to press my boyfriends number on phone and just said i felt faint and was scared and he said he'd be there in 10 minutes. My voice woke my eldest son up (i am a single parent of 2) and i managed to tell him to unlock the front door so my boyfriend could get in. I then collapsed, vomiting over the toilet and couldnt move, the spinning was unbearable and eased only slightly when i closed my eyes. My boyfriend got an ambulance for me, they had to chair out of the house, i was sick in the ambulance and again at the hospital.They gave me all four forms of sickness relief, the last one being a strong one they give people after chemotherapy. My boyfriend said my eyes were darting to the side constantly, trying to combat the spinning. For the next few days I couldnt move anywhere unaided.

Four weeks on i have driven a couple of times but am struggling, not fully alert and feel as though my vision isnt fully operational although i can see. I feel like im in a bubble in my head and am shaky despite making myself eat, although i have not appetite. I really want to be well and back at work, cant understand why im still so weak. Like yourself i am a single parent so the driving side of things has got me down. Last week i couldnt stop crying, i guess this is due to feeling so debilitated after all this time and having to ask for help. The doc told me this Tuesday to go back next week if still feeling like this for further investigation. Oh and my mouth is dry all the time too, is that one of your symptoms?

No idea if it is just a result of the labrynthitis but i sure have had enough of it now and just want to be well again, like yourself. I hope you are recovered now. Maybe let me know how long it took for you to recover and whether it was labyrinthitis? Best wishes,

Jackie

hi.

i to have that problem...and was bad with it for 3months..2weeks of that was in hospital..only then did it ease with medication..i sometimes felt i was not the same place when i did spin..that was weird..afte i came out of hospital..it took me a long time to feel strong again physicaly..my head felt it was to heavy and hard to hold up..legs week and arms....but it takes a while to calm....you think its gone but it hangs about and in time it settles.

hope this helps.

maria.

hi just been reading all of the post on here and could not believe i have the same thing and same fears and issues with it as you all have,,, i was told i had it last summer and was given stemitel tablets to controll the sickness and apparently it helps with the anxiety, it last a for about three weeks then settled but since then i have couts of feeling off balance and drunk, i have never been sick with it but this could be the tablets, i remember comming off the tablets one night and my legs started to feel warm and tingly and then my heart started racing and i called for help i i felt all ovwer the place and a doctor was called out and he told me that i had suffered an anxiety attack, and this just isnt me!!!!! i know worry about getting another one and having more spins, and the last few weeks i have been off balance again suffering from headaches and lots of head pressure, when i touch the back of my head feels like a rush of fluid to the front... my face hurts sometimes and i find it hard to concentrate... and like one of you explained its like being in a bubble, like a different world, i sometimes feel like i am looking through my own head to see or talk to people.... and sometimes every day movement of people and cars around me feel so loud and too much..... i had another major spin in the car and had to abandon it, since friday ive been bad again and like most of you i am a single parent with two children and the not driving is getting me down, even walking to school is worrying as i worry i am going to fall or pass out in the street with a pushchair....today even i have been to bad to walk my child to scholl felt of for first hour then had another spin at 8 this morning and lots of head pressure..... been back to the doctors yesterday who is now going to refer me, and that alone feels scary as already i can see people thikning \"oh my god she having a brain scan\" its not reasurring, but listening to your post has made me feel i am not alone, and like you have been crying to wishing to feel normal again.... please post your updated conditions take care x

Hi, this is so surreal! I googled my symptoms and found this site.

I too have exactly the same symptoms!

I have 'dizzy episodes' and its like being drunk and my head hurts, I end up on the floor and its so embarassing and frightening!

I feel very nauseous and have Tinnitus! I have had it for around a year and have suffered with anxiety, now I am even more anxious. I dont do half the things I used to take for granted as I am so aware that I could have a turn at any time!

I get tiinitus and pressure sometimes my head feels like polystyrene or like I am tiny inside my body (does that make sense) and the room spinds and my eyes hurt too. I feel so sick I dare not move! I have walked back from the shop once like a drunk woman!! with everyone looking at me, in the end I had to rest against a wall for 5mins+ although these episodes have started lasting a lot longer and I dont quite feel all there.

Doc is now testing my ears and ref me to ENT specialist but after a year of asking for help, all they have done so far is an hearing test and last year I saw a Triage nurse for anxiety who discharged me healthy after 5months, now the docs are listening as I am still unwell and its taking over my life!

the docs have told me its blood sugars! now its vertigo, I wish they would just send me for test and scans asap

I try to limit my time on the comp now as it seems to make it worse.

What on earth is this, its sounding so common!

Hugs to all xxxxx

Yes -

I have just been to the doctors and he said it is labyrinthitis - I also am getting the same symptoms that you all are - like the dizziness, feeling like i'm in a bubble, it is a really odd experience - I think there might be a bit of anxiety thrown in there for good measure. How wonderful.

I've got a prescription so we'll see what happens!

Love and hugs to all xxx

for the last 4 days i have been having similar feelings to this. it started out of the blue. i had the spinning altough not to the point i fell over. then for the past 3 days i have been lightheaded and feel like im walking on air. i have had a slight muffling in my ear. my doc has given me some prochlorpazine for the nausea feeling and to aliviate the lightheadedness. i have been suffering wit anxiety now for the past 10 months and continually fear the worst so u can imagine my fears once this kicked in! i continualy worry that it is not labyrinthitus and something more fatal! i am under a counsellor for my anxiety but i really hope this passes over soon as i am quite scared!

id love to talk to people who have similar fears and problems so email me on

mike_4_you at hot mail dot co dot u k

or add that address to your msn. talking definatly helps heal the mind!

best wishes

mike

I was diagnosed with Labyrinthitis and suffered some horrible, scary attacks. However I had some acupuncture and THAT evening the symptoms halved, after only 3 sessions the symptoms have almost gone. I seriously recommend giving it a go.

It is amazing how much better I feel knowing other people have been through all this. Which isn't the most charitable of thoughts is it?!

I think I've had a fairly mild case of labyrinthitis, which went like this:

- a few big dizzy spells where I totally lost my balance, though with no light headedness at all

- then a general feeling of unease, anxiety, panic and scarily, my vision went blurry (I've had laser eye surgery for short-sightedness and I thought it had spontaneously reversed itself!)

- a couple of days of constant dizziness, nausea and a feeling like I was losing my mind

I went to the doctor and thankfully the stemetil he diagnosed really did work for me, though I had to take it for a couple of weeks and was really foggy during that time.

This week, after about 6 weeks of ongoing issues, I have started feeling better. The overwhelming feeling is \"oh there I am! I'm back!\" My eyesight has improved, my anxiety has almost gone and very little dizziness at all. Still some odd feelings of disassociation and deja vu but miles better. I'm also discovering a whole lot of memory blanks from the past month!

I have a tiny nugget of worry that this is now something I will get a lot and that really terrifies me, but I guess the clarity I have today (not yesterday and maybe not tomorrow) is telling me I'm still in here and given time, I will be me again.

Just remember - you are not going mad!!!

Hi

Did you ever get over your dizzy spells?I also have labryithitis and the anxiety.Not great been off work 8 weeks now.

I am wondering if anybody would be able to give advice.

I have had this mystery ear issue for the past 6 months. I've been to four different doctors and have been repeatedly been given decongestants, ear sprays and anti biotics- none of which seem to be working. I then resorted to moving practice and have finally been referred to ENT. 1st- I felt a lot of pressure all over my genreal facial area and head. I just assumed it was my sinuses, Im prone to sinus headaches and infections however I then was going away for the weekend and I got off the plane and my ear just hasn't popped back. This is incredibly frustrating. I have constant pressure in my ear. I have tinnitus and vertigo. When I stand up I get loads of pressure on the top of my head.Also this evening I was cooking dinner and my ear started making this rumbling noise it actually felt like a drum in my ear and as though my ear drum was fluttering. In the mean time whilst I wait on my appt for ENT I have been given almond oil to reduce the wax in my ear as the doctor who referred me couldn't even see in my ear for it as my previous doctor told me to stop cleaning my ears. Could this be a contributing factor. Any help/advice is appreciated I am getting very anxious about this issue and really just need answers.