Laminectomy 3 Yrs Ago

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I had a laminectomy almost 3 yrs ago to remove a tumor from in front of my spine.   I suffer 24 hours a day with a burning sensation in the top and side of my right foot as well as numbness in my leg.  I risk falling easily without help.  I had an MRI 2 wks ago and have not heard results.  My family doctor simply increases my medication.  4 tylentol 3's per day, 3-4 Lyrica per day and Novotripoline.   I am frustrated that no one can help me.   I cry in pain daily and just want help.

0 likes, 10 replies

10 Replies

  • Posted

    If I have learned anything you have to be your own advocate and don't take no for an answer. Educate yourself, get second or third opinions, make sure you have copies of your medical and test results. Call if you haven't heard back, squeaky wheel gets the grease. Has your dr sent you for any nerve testing like and EMG or nerve conduction study? A family Dr is not a specialist in the spine, you need to be seen by a neuro or a neurosurgeon. What about the dr that performed the surgery 3 years ago, there must have been some follow up with him, maybe start by seeing that dr again since you have a relationship with him?

    best of luck. 

    • Posted

      Agree...in fact I left a message for the Dr that perfomed the EMG which showed abnormal in October....left voicemail this morning asking when I can expect my MRI results.   Between soaking my foot in warm and cool water and haning it off of the bed.  The suffering may not sound like much but it at times is unbearable.   I see the neurosurgeon in April for my followup appointment.   At this point I have to wait it out until I hear about the MRI.
    • Posted

      Find out the pals complaint s email address, it should be on the cover page for the hospital u attended . Send a email, I did this the first time round and had my results and another MRI with in a wk. Now am at a private hospital via nhs . As the previous hospital dosnt have a neurosurgeon?? But so far it's the best thing as the new consultant is right on the ball .

  • Posted

    I had spinal fusion and laminectomy almost two years ago, March 2015,

    T2 - T7.

    T5 was broken down due to non-Hodgkins lyphoma, 6 months of chemo and was cleared of cancer.

    Still suffer severe back pain sometimes, luckily it is not constant.

    My feet are probably the biggest problem, severe pins and needles in both feet, for some reason it is much worse at night. 

    Found the only relief was hot foot bath using Epsom Salts, usually at night after having a shower.

    It really does work for me, and it is a cheap remedy and a lot better for you than prescribed drugs.

    I have been taking Lyrica and Baclofen, all they do is keep the pain down to a certain level, have to use natural medication and remedies as well.

    Found wearing thick woolen socks gives me some relief as well, don't know why but it does.

    Also I rub Deep Heat on the soles of my feet when they get really sore, it seems to help as well.

    You have to try as many things as you can until you find one that works for you, don't be frightened to experiment.

    The Epsom Salts footbath is probably your best option.

    Good luck !

  • Posted

    Hopefully yr MRI will give u some answers. It's easy for doctor just to throw tablet s at people. Sometimes they are beneficial.

    • Posted

      Thank you for the reply.  Just waiting on MRI results.  Had EMG in October which showed abnormal.   Frustrating that no Dr seens to be helping.  I see the original neurosurgeon in April for followup.  The waiting is rediculous and suffering in the mean time is killing me sad

  • Posted

    Besides the pain....gaining weight like crazy from the meds.......frustrated.
    • Posted

      I am lucky my doctor sent me to private hospital via nhs . As I am not having to wait long for anything. Meds or a killer
  • Posted

    I guess I am a bit ignorant to your healthcare system vs ours. My husband and I pay quite a lot for our insurance privately but we have access to very skilled physicians and can get appointments rather quickly (imo). Especially if you are established with a dr who wants to refer you to another specialty your wait time is not very long. I would go out of my mind if I couldn't speak to my dr or staff to get test results,

    Inquire about my ongoing care or be seen in a relatively quick amount of time. I am grateful that I have options there are quite a few out there that don't.

    • Posted

      I couldn't get private health care, if you have an on going issue which I have since I was 15, insurance companies won't touch u. If they do they charge crazy prices.

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