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Lichen sclerosus new to condition I was told after a vaginal exam that I hadn't lichen sclerosus

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rockin_R
rockin_R

I was told after vaginal exam at 53 years old that I have Lichen Sclerosis.

They did 4 biopsies of my vaginal tissue and rectum. I don't know how I got this but I used to have herpes or I still do but you used to have a lot of breakouts. I'm not sure if the scarring from that is what happened. I was told it could lead to cancer and that it was very important that I wore the cream on my vulva every night. Are you kidding me no one wants to hear that crap. What to do

0 likes, 4 replies

4 Replies

  • Jessicat
    Jessicat rockin_R

    Posted

    Hi I'm 20 and have Lichen sclerosis I was diagnosed last year, doctors aren't sure what causes lichen sclerosus but that it may come from trauma or if you have other auto immune diseases, I have psoarisis so I think I may have got it due to this. Normally you will be told to reduce the amount you use the cream, I only use it about once a week now and I use coconut oil whenever I feel abit itchy
    • rockin_R
      rockin_R Jessicat

      Posted

      Trauma or autoimmune disease. Is it autoimmune disease HIV?
    • Jessicat
      Jessicat rockin_R

      Posted

      HIV is an immune depressing disease. auto immune is like psoarisis, thyroid problems and things like that 
  • suedm
    suedm rockin_R

    Posted

    Herpes is a viral infection. Once it affects a nerve path there is a high chance of reoccurance ( think of cold sores that frequently return )

    Lichen Sclerosis is an auto immune condition. The bodies immune system 'attacks' it's own tissues. The cause is unknown, however there could be a relationship with long term stress, allergies, hormone changes, recurrent infections. 

    as with all long term inflammation there is a risk the condition becomes malignant; in the case of LS, it is about 4%. However by using the potent steroid as directed it does reduce the chance considerably.

    Changes to the lifestyle will also reduce the likelihood. That is manage stress, reduce sugar intake, take action to reduce infections, inflammation, and too much friction.

    It is a good idea to watch the Dr Goldsteins webinar, details on the New to LS page on this site.

    The more you know about the condition you will know what suits your body - the less you will worry 

    There is a lot of very good advice on what you can do and what not to do, but everyone is different so it is a matter of trial and error

    No one wants this condition, and there is a lot of support and helpful advice on this site

    good luck

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