Looking for a Specialist in the UK
Posted , 3 users are following.
I'm at my doctors tonight and would like to ask him to send me to a specialist as i am not happy with the Neuro i saw.
can someone please give me a name of anyone in the UK who is good please.
many thanks
0 likes, 4 replies
Baudwalker fed-up
Posted
Met with a Neuro this week and they have (after all their specialist meetings) admitted they have NO IDEA what is causing the issue. Now they have opted for a PET SCAN where they inject a radio active whatever and then do the scan and this is supposed to look deeper into the head and indentify what the MRI cannot.
After this another MRI with a different injection to the last one for why I have no idea. I have a two hour drive for the PET scan and two hours home.
Basically they have run out of options and are clutching at straws as far as I am concerned. NO WAY any of them will get to get inside my head for ANY reason.
Whatever is the cause is the cause and I have it under control with medication so it will stay that way.
Good luck on your search but I couldn't recommend any I have seen and me thinks You will probably find the same. Lots are 'liked' by their clients but that does not equate to their clinical experience and expertise.
fed-up Baudwalker
Posted
well, my doc is referring me to someone in cambridge as i wasn't happy with the two i have seen, one watched me cry my eyes out for 40 minutes before saying 'you'll have to learn to live with it' and the second never gave me the time of day. i won't stop till i've got some answers, i mean with the second bloke i saw told me i have ATN because i have this on both sides, well no, mine was caused because i had dental work on both sides in one day.
you'll have to let me knowhow yours is going and if this doc is any good i'll let you know.
Baudwalker fed-up
Posted
Started with a slightly sensitive upper cheek area and progressed veru slowly. Went to optomertrist who noticed the left eye wasn't closing fully.
From there it went from bad to worse but most of my medication was driven by me with a very willing GP to let me try things.
Looks like we all continue searching for the ultimate superhero to fix it all!
Good Luck
angiegirl fed-up
Posted
my TN was re diagnosed and i SUNA. I see Mr Matharu in London.