Looking for some advice!

Hi, I noticed that with hyperthyroidism (I have Graves) the symptoms for me were progressive. But as soon as I started taking carbimazole and propranolol the symptoms really quickly improved.

I realised so much of how crap I was feeling was down to my thyroid- it had gradually crept up on me.

I hope you feel better soon

Hi yes its good to a diagnosis, i know how you feel as i have felt the same for a long time. Whilst taking the medication i feel a bit better. I have had RAI 7weeks ago and waiting for it to work now. Everything just seems to take a while to work. People around dont always understand the feelings that go with it. Hope you soon feel better

Dear Welshgirl

I fully endorse all your comments and am seeking the same answers myself.

kind regards

Jean x

I felt better from a hyper symptoms point of view when I started in Methimazole (same as Carbimazole in UK) 10 mg once a day.  However, my eyes remained irritated and though my FT3 and FT4 normalized immediately, my TSH remained at less than 0.001 for 2 years.  Then I added supplements and my TSH rose and eventually with a variety of supplements plus the Methimazole, I got to where I am today.  Only on 2.5 mg of Methimazole, antibodies are normal, all labs are normal and seeing Endo in November when he might suggest discontinuing it altogether.  If I had to take this dose for the rest of my life, it would not bother me.  My eyes are much improved too.  I belong to another Board where people want to keep their thyroid and they share their successes and what worked for them.  Also, if you are menopausal, you might want to do research on bioidentical hormones as well.  I did a lot of research on it and have been on them for almost a decade now.

Hi Welshgirl, Elise, Linda

I think that you are right in not going down the road of RAI

the thought of it is petrifying me and I wondered why an endo physician felt that that was the first line of treatment .

I am also scared of these nodules -some twenty- in number on my thyroid.

I would welcome any advice etc.

What does fluctuating thyroiditis mean?

I have not started any treatment yet.

Jean

I

Hi thanks for all your replies what is RAl is it radioactive treatment? Don't know until tomorrow what my treatment will be, but dont fancy having radioactive treatment as my doctor said once done it is irriversable and you could end up with underactive thyroid! If she suggests this i will refuse it, especially as a lot of you on here dont agree with it!

This is so helpful, thank you for sharing. What types of supplements did you find had the post positive results? Did your doctor state any down side to the long term use of the Methimazole. Thank you again! My doctor wants us to move in the direction of removing the thyroid which I would liike to avoid.

Hi again, doctor phoned me and because i am borderline decided not to treat thyroid at this time, and repeat bloods at end of month!

 I was disappointed as i hoping that thyroid was problem, and if treated i would start to feel better!!!

 I have made an appointment to see a herbalist tomorrow! I am also feeling very depressed and cant get out of bed, just feel like sleeping all the time!

 I'd be interested if any of you have tried a herbalist and what sort of results did you have?

 

Hi, My friends daughter had hypothyroid for many years.  She went to see a 

My friends daughter has hypothyroidsm, she has been seeing a doctor who specializes in hypothyroidsm who has prescribed vitamin D3 50K mg once a week because she was very low on Vit D, a healthy diet + exercise .  She feels much better. Find a specialist in hyperthyroidism rather than going to GP.  He/she will provide the right treatment.

I hope you feel better.