Posted , 6 users are following.
Tete has got to be a better medicine for the pain of this disease. I don't know who maybe having trouble with awful coughing and congestion and burning mouth and throat but this is awful plus the pain. On 4 mgs. Tried tapering lower now I'm almost back to square one. I try my best to be positive but I can't sleep or be awake pain, coughing , shaking and weakness. All day long everyday. I hope non of you have this experience. I need your replies desperately. I don't care what it is . This stuff is destroying me. U hope you don't think I whine as I'm tough but this has,about shot me to heck.
1 like, 11 replies
phyllis10549
Posted
EileenH phyllis10549
Posted
LPR is acid reflux as far as I know and while it can be a side effect of prednisolone your doctor should have given you gastric protection medication if it is a problem. You can take a PPI such as omeprazole or ranitidine, the substance in Zantac. You can buy them OTC. Many of us have found that yoghurt helps avoid such problems - but yours sounds more serious.
If you have polymyalgia rheumatica then no, at present there is no other medication that manages the symptoms. Some people are put onto other rheumatoid arthritis drugs to try to reduce the pred but it rarely is fully successful.
However, it is your doctor you should asking for help if it really is as bad as you say.
phyllis10549 EileenH
Posted
EileenH phyllis10549
Posted
You really should have discussed this with your GP long ago. Most doctors tend to hand out omeprazole as standard along with the prescription for pred. Many of us won't use it because of side effects and either have no problems anyway or can manage them in other ways - like the yoghurt. But some people need them.
There are also enteric coated pred pills - they were supposedly stopped for general use because it was claimed they were much more expensive. In the meantime the pharmaceutical companies increased the price of plain white pred tablets so there isn't much difference in price any more. A month of 5mg white tablets is about £1.31, of enteric coated is £1,86. The enteric coated sort have an acid resistant outside so they pass through the stomach before breaking down and so avoid the gastric problem. Your doctor can prescribe them if you need them - and it sounds as if you do.
Make an appointment with the GP and fess up! You may need some other tests to be sure your gullet hasn't been damaged by the acid reflux.
phyllis10549 EileenH
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EileenH phyllis10549
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Have you been advised about lifestyle changes? Other than the pred is there any food that makes it worse? Many people find that restricting processed carbs helps a lot - white flour and sugar is the simple way of looking at it. But there may be things in articular that you don't tolerate well. Several small meals rather than a big dinner doesn't overload the stomach and not eating soon before bed or doing things might help. Raising the head of the bed or a wedge under the mattress helps some people - not lots of pillows though.
noninoni phyllis10549
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The shaking: my dog was shaking 2 days ago and not eating and I took him to the vet. The vet said he had a very bad back and put him on prednisone!. That quickly solved the shaking and lack of appetite. Then the vet called me the next day and said his white blood cell count was really high and also put him on anti-biotics. My dog is much better now.
I have Raynaud's and I have also been nearly shaking at times this winter. I keep turning up the heat and adding clothes.
What is LPR?
Anhaga phyllis10549
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Mrs_CJ phyllis10549
Posted
I have silent acid reflux which is like yours except I'm missing a couple of symptoms. Here is a link to a topic last month where helpful things were discussed. There is a link within this topic where the most responses were made.
https://patient.info/forums/discuss/silent-acid-reflux-is-a-possible-side-effect-of-taking-prednisone-493296
I have adjusted my diet after researching online for foods to avoid, I'm putting my white prednisone pills into a gel cap (I can't get enteric coated pills in Canada), I sleep on my left side and I've raised the head of my bed. These have helped a little but not as much as I hoped. I didn't see my doctor yet because he will be quick to put me on a drug and I wanted to try the other suggestions first.
I was on 4 mg when I started trying the gel caps and the past few days I've had to go to 5 mgs (from overdoing while beginning to reduce to 3 1/2 mgs.....sigh) and I've noticed my throat/cough symptoms are worse from that increased dose.
I see from the comments that Eileen suggested yogurt. I haven't tried yogurt because I can't tolerate dairy, but I've been wondering if soy or coconut milk yogurt would have the same effect....or if it has to be cow/goat yogurt.
I hope you find something that works for you as I know how aggravating these symptoms can be day after day after day.
EileenH Mrs_CJ
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Mrs_CJ EileenH
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thank you for your advice about this.
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