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Lumbar Puncture tomorrow.. what's it like?

Posted , 3 users are following.

caitlinemma495
caitlinemma495

Hi everyone,

I'm new here. I have a suspected diagnosed of IIH and I'm having a lumbar puncture tomorrow so they can measure the pressure and confirm the diagnosis.

Has anyone on here had a LP before? What can I expect? I'm pretty nervous sad

Also, does it help with the headaches and eye pain?

Thanks in advance!

1 like, 7 replies

7 Replies

  • Diane241271
    Diane241271 caitlinemma495

    Posted

    Hi there

    I had a CT guided lumbar puncture which was fine. I've heard some 'non-guided' can be a little less fine. Hope it all goes smooth for you today.

  • caitlinemma495
    caitlinemma495

    Posted

    Thanks guys, the procedure itself when fine but the recovery afterwards has been a nightmare. I had it last Tuesday and I'm still stuck in bed now with awful headaches and back pain. I will never have another one again because of the recovery process

  • Buggylilsis9
    Buggylilsis9 caitlinemma495

    Posted

    OMG!! I am so sorry when I had my first one, it was done by a stupid resident. When I say stupid I don't mean it lightly. He had to stick me three times to actually get the fluid then it took almost an hour for them to get what they needed. Now I have them every month due to my health conditions. As a matter of fact I have one this Tuesday. But mine is called a high volume LP. They take a whole lot.

    • caitlinemma495
      caitlinemma495 Buggylilsis9

      Posted

      I hope I never need another one! I feel sorry for you!

      The dr that some mine got it first time but she had to do it with me sitting up as she said she couldn't find the place when I was lying down and she said that made it worse.

      My pressure was 31.5 and she removed 8ml. I'm just getting back to normal now.

      I had an app with my neuro today and they said the swelling on my optic nerves has gone down. Do you think it will just build back up?

    • Buggylilsis9
      Buggylilsis9 caitlinemma495

      Posted

      Well the reason I get them is because it helps with the eye pain and pain in general. I had IIH but after my last surgery my surgeon said I just have IH. It's caused by the narrowing of my veins and vessels in my brain. I have about 13 inches of metal because of it In my brain.

      Your body will remake the spinal fluid they took just depends on how fast it does.

  • Monae03
    Monae03 caitlinemma495

    Posted

    Hi hun im monae it not that scary i have had 17 and if u get sudated it will be like blinking your eyes and the minor i cant tell you about the experience unsudated because I never had it that way
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